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My expertise includes innovation and research collaboration with interdisciplinary experts in the co design of educational resources to support three key areas in gerontological nursing: dementia; dignity and sensory impairments. https://orcid.org/0000-0002-2680-6462
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Aging in place reforms, dementia care, informal caregiver support, health services, economic evaluations, multiple chronic conditions, longitudinal analyses
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Occupational therapist, currently working as a researcher in DISTINCT project (Technology for Dementia)
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Neurodegenerative disorders, interventions for people with dementia and their carers, genetic counselling for families of people with dementia, bioethics
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I am a nurse and nursing scientist. I work as a research associate in the Person-Centered Dementia Care research group at the German Centre for Neurodegenerative Diseases in Witten. My doctoral thesis focuses on characteristics of dementia-friendly hospitals. Using a qualitative design, I am investigating the perspectives of people with dementia, their relatives and professional dementia experts with the aim of identifying the characteristics of a dementia-friendly hospital.
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My project is devoted to developing and evaluating of an intervention aimed at improving the relationship quality between a caregiver and a person with dementia (PwD) within a spousal couple.
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I am involved in many research projects, through my role as Assistant Professor at University of Bradford, Centre for Applied Dementia Studies. I am currently involved in the DYNAMIC young onset dementia study, the EXPAND experiences of paramedic emergency care study, and have been involved in the NIDUS study (home care), the Angela Project (young onset dementia), Journeying through Dementia and more. I teach across all areas of Dementia Care, including Dementia Care Mapping and an MSc in Advanced Dementia Studies. I have worked with people living with dementia since leaving school and lead a dementia charity for people with young onset dementia and their families in West Yorkshire.
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Palliative care in young-onset dementia
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I am an audiologist by profession, now PhD student, developing a core outcome set for future studies assessing interventions for co-existing dementia and hearing loss. This will be developed by identifying what is important to carers and individuals living with co-existing conditions.
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Co-designing a Living Well with Dementia evidence-based post-diagnostic intervention for people with Young Onset Dementia (YOD): this project aims to involve a range of stakeholders, including people with lived experience, in adapting the current LivDem course to suit the needs and life circumstances of people with YOD. The The primary aim of the intervention is to support people to be able to talk about and adjust to their diagnosis.
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Main research project aims to explore the lived experiences of former athletes living with young onset neurodegeneration. Area of expertise is Sport and Exercise Psychology.
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Dementia prevention:
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Development of a dementia-friendly initiative to promote the social health of people with dementia in the community
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Development of a dementia-friendly initiative to promote the social health of people with dementia in the community
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Working in various areas of health services research, such as social health for people living with dementia.
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As a PhD candidate at Maastricht University, my research focuses on understanding caregivers' work-life balance and well-being for individuals with dementia, with particular attention to their resilience in managing daily stressors. My work focuses on exploring and mapping the demands and resources these caregivers navigate across their work and home contexts. By identifying effective strategies to balance their professional and personal lives, I aim to contribute to improving their overall well-being and quality of life. My expertise in intensive longitudinal sampling (ILS) methods, particularly experience sampling methodology (ESM), enables me to capture caregivers' intricate, real-time experiences.
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Psychosocial applications of technology for health and wellness coaching of older adults with dementia and mild cognitive impairment and their carers in rural areas
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My PhD project focuses on the development and evaluation of an advance care planning website for people with dementia and their families, using a user-centered design
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PhD research aims to investigate how social location, marginalisation, and systems of power shape i) lived experiences of YOD, and ii) how this is expressed through personal narrative accounts.
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Academic GP completing an SPCR funded PhD exploring inequalities in post-diagnosis primary care for people living with dementia.
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To improve post-diagnostic care and support in young-onset dementia as part of the YOD-INCLUDED consortium
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My PhD project is part of the SPREAD+ consortium in which insight will be obtained from a need-driven approach into determinants of psychosocial well-being of the care triad consisting of people with dementia, informal- and professional caregivers. Special attention is paid to the quality of the relationships between the three parties and the roles they play in promoting each other's psychosocial well-being, their quality of life and the prevention of care burden among informal- and professional caregivers
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