Article of the month: September 2021

The website committee selected for publication of the month September:

September publication

Capstick, A., Dennison, A., Oyebode, J., Healy, L., Surr, C., Parveen, S., Sass, C.& Drury, M. (2021). Drawn from life: Cocreating narrative and graphic vignettes of lived experience with people affected by dementia. Health Expectations, 24(5), 1890-1900. https://doi.org/10.1111/hex.13332

This study aimed to adapt the Patient and Public Involvement process to make participation in cocreation by people living with dementia accessible and meaningful across a spectrum of cognitive abilities. Nine people living with dementia and five family members participated in this study. Narrative elicitation, informal conversation and observation were used to cocreate three vignettes based on group members’ personal experiences of dementia services. Each vignette was produced in both narrative and graphic formats. Results show it was possible to adapt the PPI process so that not only family members and people with milder cognitive difficulties could participate, but also those with more pronounced cognitive problems whose voices are less often heard.

To read here