{"id":5431,"date":"2015-11-25T18:23:20","date_gmt":"2015-11-25T16:23:20","guid":{"rendered":"http:\/\/interdem.org\/?page_id=5431"},"modified":"2026-04-07T14:56:14","modified_gmt":"2026-04-07T12:56:14","slug":"publications-5-2","status":"publish","type":"page","link":"https:\/\/interdem.org\/?page_id=5431","title":{"rendered":"Article of the month"},"content":{"rendered":" [vc_row][vc_column]<h1 class=\"sc_title sc_title_regular\" style=\"text-align:center;\"> <\/h1><h3 class=\"sc_title sc_title_regular\" style=\"text-align:center;color:#a5a5a5;\"> <\/h3><div class=\"sc_tabs sc_tabs_style_1\" data-active=\"0\"><ul class=\"sc_tabs_titles\"><li class=\"tab_names first\"><a href=\"#sc_tab_1432573081769-5\" class=\"theme_button\" id=\"sc_tab_1432573081769-5_tab\">Publications<\/a><\/li><\/ul><div id=\"sc_tab_1432573081769-5\" class=\"sc_tabs_content odd first\">[vc_column_text] [\/vc_column_text][vc_column_text]The Interdem website committee selects an Interdem \u2018 Publication of the month\u2019. This is a recent scientific paper, written by Interdem members that will be put in the spotlights because of its innovative character, methodological soundness, impact, or discussion of relevant psychosocial interventions in dementia.<\/p>\n<p>Pubmed will be searched for potential publications of the month and Interdem members may also send relevant new publications to the website committee (<a href=\"mailto:a.barbosa@bradford.ac.uk\" target=\"_blank\" rel=\"noopener\">interdemnetwork@gmail.com<\/a>).<\/p>\n<p>Website committee members cannot vote for an article they co-authored.[\/vc_column_text]<div class=\"sc_accordion sc_accordion_style_3\" data-active=\"0\"><div id=\"sc_accordion_item_Tue Oct 29 2024 15:29:52 GMT+0000 (Greenwich Mean Time)_1\" class=\"sc_accordion_item odd first\"><h4 class=\"sc_accordion_title\">2026<\/h4><div class=\"sc_accordion_content\">[vc_tta_accordion][vc_tta_section title=&#8221;March&#8221; tab_id=&#8221;1748441506632-56f4d028-5ba8&#8243;][vc_column_text]For publication of the month March 2026, the website committee selected the following publication:<\/p>\n<p>Solutions to inequalities in dementia diagnosis and care: A systematic review<\/p>\n<p><strong>Clarissa\u00a0Giebel, Catherine V.\u00a0Talbot, Bryony\u00a0Waters-Harvey, <\/strong>Joanne\u00a0Hitchen, Fiona\u00a0Rushton, <strong>Anna Volkmer, Dorota Szczesniak<\/strong><\/p>\n<p>People with dementia and their carers often face barriers during diagnosis and accessing post-diagnostic care, causing avoidable inequalities in health outcomes. Without any previous synthesis to date to help improve people with dementia\u2019s health outcomes, the aim of this systematic review was to identify and synthesise existing solutions to increase equity in dementia diagnosis and care.<\/p>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S1041610226000165\">https:\/\/www.sciencedirect.com\/science\/article\/pii\/S1041610226000165<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;February&#8221; tab_id=&#8221;1775566370661-29ce1ec7-5813&#8243;][vc_column_text]For publication of the month February 2026, the website committee selected the following publication:<\/p>\n<p>Thissen, S., <strong>Sizoo, E.<\/strong>, Smalbrugge, M., <strong>Gerritsen, D.L.<\/strong> and <strong>Perry, M.<\/strong>, 2026. From bubbling to boiling over: a meta-ethnography\u00a0of the\u00a0process towards and during crisis from\u00a0the\u00a0perspectives\u00a0of persons living with dementia, informal carers and healthcare professionals. <em>Age and Ageing<\/em>, <em>55<\/em>(1), p.afaf383<\/p>\n<p>This review using a meta-ethnography approach\u00a0offers important insights into how crises develop and escalate, drawing on\u00a0the experiences\u00a0of\u00a0people with dementia,\u00a0their informal carers, and healthcare professionals. It highlights\u00a0the\u00a0central tension between maintaining safety and respecting autonomy, as those involved navigate both\u00a0the\u00a0risks and\u00a0the\u00a0wishes\u00a0of\u00a0the\u00a0person with dementia. This study also\u00a0offers direction for anticipating and responding to emerging crises in practice, for example through collaborative care approaches.<\/p>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/academic.oup.com\/ageing\/article-abstract\/55\/1\/afaf383\/8440118\">https:\/\/academic.oup.com\/ageing\/article-abstract\/55\/1\/afaf383\/8440118<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1775564526389-dcf61f05-e5b7&#8243;][vc_column_text]For publication of the month January 2026, the website committee selected the following publication:<\/p>\n<p>Demnitz-King, H., Banerjee, S., et. al (2026). The Nottingham consensus on dementia risk reduction policy: recommendations from a modified Delphi process. <em>Nature Reviews Neurology<\/em>.<\/p>\n<p>Interdem authors include <strong>Chris Fox, <\/strong><strong>Martin Orrell, <\/strong><strong>Clarissa Giebel, Georgina Charlesworth <\/strong>and <strong>Tom Dening<\/strong>.<\/p>\n<div id=\"eng-abstract\" class=\"abstract-content selected\">\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Abstract<\/h3>\n<p>Translation of evidence about dementia risk and its reduction into effective, equitable public health policy is a major challenge. To address this challenge, the National Institute for Health and Care Research Policy Research Unit in Dementia and Neurodegeneration at Queen Mary University of London (DeNPRU-QM) convened a multidisciplinary panel of 40 experts from across England, with diverse lived, academic, clinical, policy and advocacy experience, at various career stages, and of diverse gender and ethnicity, to develop actionable policy recommendations for dementia risk reduction. Through a 2-day in-person workshop and a subsequent three-round modified Delphi survey, the panel evaluated and refined statements on dementia prevention. The panel achieved consensus on 56 recommendations in four domains: public health messaging, individual-level interventions, population-level interventions and research commissioning. A key priority across all domains was the need to consider and address health inequalities so that prevention efforts do not exacerbate existing disparities.<\/p>\n<\/div>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/www.nature.com\/articles\/s41582-025-01173-9\">https:\/\/www.nature.com\/articles\/s41582-025-01173-9<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion]<\/div><\/div><div id=\"sc_accordion_item_Tue Oct 29 2024 15:29:52 GMT+0000 (Greenwich Mean Time)_1\" class=\"sc_accordion_item even\"><h4 class=\"sc_accordion_title\">2025<\/h4><div class=\"sc_accordion_content\">[vc_tta_accordion][vc_tta_section title=&#8221;December&#8221; tab_id=&#8221;1769598698072-d1157391-d22d&#8221;][vc_column_text]For publication of the month December 2025, the website committee selected the following publication:<\/p>\n<p><strong>Clare, L.<\/strong>, Martyr, A., Caulfield, M., Gamble, L. D., Charlwood, C., Ward, J., Hulme, C., Prina, M., &amp; <strong>Oyebode, J. R.<\/strong> (2025). Living alone with dementia is a neglected source of inequality: findings from a scoping review of research evidence. Systematic Reviews.<\/p>\n<div id=\"eng-abstract\" class=\"abstract-content selected\">\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Background<\/h3>\n<p>With growing proportions of single-person households, increasing numbers of people with dementia are living alone, challenging the still-prevalent assumption that people have an informal carer available. We aimed to characterise the research literature on people living alone with dementia and summarise what is known about their characteristics and needs.<\/p>\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Method<\/h3>\n<p>This scoping review followed Joanna Briggs Institute methodology and PRISMA-ScR reporting guidelines. Seven databases (PubMed, Web of Science, CINAHL, Ageline, EMBASE, PsycInfo, Social Policy and Practice) were searched for English-language publications on 18\/01\/2024, without date limits. Eligible studies reported on people with dementia living alone, using any research design; reviews, editorials, and conference abstracts were excluded. Titles, abstracts, and full texts were screened independently. Data were extracted using structured forms and summarised narratively, grouping quantitative findings descriptively and qualitative findings thematically.<\/p>\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Results<\/h3>\n<p>We included 200 articles (162 quantitative, 38 qualitative) from 161 studies. Living alone was the primary focus in 30.5% of articles, living situation was explored in secondary comparisons or sub-group analyses in 62.5%, and noted only in describing samples in 7%. Most research (80.1%) was from Europe or North America. The first study was published in 1962 and the next in 1984, since when the annual number of publications has gradually increased. Across studies, people living alone with dementia were commonly described as older, more often female, and as experiencing significant unmet need. Reports noted variation in the extent of informal support, with some people receiving little or no support. Compared with those living with others, people living alone were often described as having less timely diagnosis, lower access to formal services, higher home care costs, and greater likelihood of moving into residential care or dying outside the home. Studies commonly reported social isolation, loneliness, and difficulties with daily living in people living alone with dementia. Family members providing support at a distance were described as receiving little assistance. Few studies examined approaches to addressing these needs or improving support.<\/p>\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Conclusions<\/h3>\n<p>This review highlights living alone with dementia as a growing but neglected source of inequality. Practical steps are needed now to address this issue in policy, service provision, practice and research.<\/p>\n<\/div>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/link.springer.com\/article\/10.1186\/s13643-025-03002-y\">https:\/\/link.springer.com\/article\/10.1186\/s13643-025-03002-y<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;November&#8221; tab_id=&#8221;1769598698207-8a79bd97-acee&#8221;][vc_column_text]For publication of the month November, the website committee selected the following publication:<\/p>\n<p>Wittmann, F., Luppa, M., Thyrian, J. R., Hoffmann, W., &amp; Riedel-Heller, S. G. (2025). Dementia risk among individuals with a migrant background\u2014a scoping review [Systematic Review]. Frontiers in dementia, Volume 4 &#8211; 2025. https:\/\/www.frontiersin.org\/journals\/dementia\/articles\/10.3389\/frdem.2025.1667478<\/p>\n<p>While non-pharmacological dementia prevention is increasingly prioritized in research and policy, intersectional perspectives remain underrepresented. These are essential to address structural determinants of health and persistent diversities and inequities. This scoping review aimed to synthesize the existing amount of research on dementia risk and prevention in relation to migration background, focusing on three questions: (1) dementia risk and associated risk factors, (2) prevention, and (3) evidence concerning the most marginalized migrant populations.<\/p>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/www.frontiersin.org\/journals\/dementia\/articles\/10.3389\/frdem.2025.1667478\/full\">https:\/\/www.frontiersin.org\/journals\/dementia\/articles\/10.3389\/frdem.2025.1667478\/full\u00a0<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;October&#8221; tab_id=&#8221;1769598698341-604d8c78-62b1&#8243;][vc_column_text]For publication of the month October, the website committee selected the following publication:<\/p>\n<p>Ritzen, M., Peetoom, K., Bartels, S. L., Bakker, C., de Vugt, M., &amp; YOD-included consortium\u00a0 (2025). Needs of people living with young-onset dementia and family carers, explored by dementia subtype, phase in the disease process, and living setting: A scoping review. <i>Journal of Alzheimer&#8217;s disease : JAD<\/i>,\u00a0<i>107<\/i>(4), 1340\u20131363.<\/p>\n<p>This scoping review aims to identify needs of people with Young Onset Dementia (YOD) and family carers in relation to dementia subtype, disease phase, and living setting. Literature was systematically searched in PubMed, CINAHL, Embase, and APA PsycINFO up to October 2024. After screening by two independent researchers, 140 articles were included. Four main themes of needs emerged: support, care, interpersonal, and personal needs. Needs varied per target group, dementia subtype, living setting, and disease phase. Prominent support needs included practical assistance, and emotional and psychological support. Information on diagnosis and prognosis, and active involvement of healthcare professionals were highlighted within care needs. Interpersonal needs often referred to companionship and togetherness, as well as empathy, understanding, and acceptance. Finally, security and safety, and time for oneself were emphasized as personal needs. Overall, the majority of current evidence pertained to Alzheimer&#8217;s disease, the post-diagnostic phase, and living at home. YOD-needs vary widely, requiring flexible, person- and family-centered care and support. Future research should address underrepresented areas, including the needs of dyads, families, and YOD care home residents. Additionally, it should address needs related to rarer YOD subtypes and specific disease phases to better capture the diversity of these needs.<\/p>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/doi.org\/10.1177\/13872877251372148\">https:\/\/doi.org\/10.1177\/13872877251372148<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;September&#8221; tab_id=&#8221;1769598698472-00e3cd3c-afe2&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month September, the website committee selected the following publication:<\/p>\n<div class=\"csl-right-inline\">\n<p><strong>Wolverson, E.<\/strong>, Backhouse, T., <strong>Burnand, A.<\/strong>, Eriksen, S., <strong>Fonseca de Paiva, A.<\/strong>, <strong>Harrison Dening, K.<\/strong>, Mabire, J. B., <strong>Sabatini, S.<\/strong>, &amp; <strong>van der Steen, J. T.<\/strong> (2025). Spiritual Support for People Affected by Dementia: A Scoping Review.\u00a0<em>Dementia (London, England)<\/em>, 14713012251377812. Advance online publication.<\/p>\n<p>As a life-limiting illness, dementia requires a holistic approach to care, where spiritual support plays a crucial role in helping individuals and their caregivers find meaning and solace. Our aim was to systematically map the research conducted on psychosocial interventions developed to provide spiritual support for people living with dementia and their caregivers from diagnosis and across the disease trajectory. A scoping review was conducted to explore the breadth of research on \u2018spiritual support\u2019 in dementia care, encompassing interventions, service delivery models, programs, toolkits, approaches, and activities.<\/p>\n<\/div>\n<\/div>\n<p>Available here: <a href=\"https:\/\/doi.org\/10.1177\/14713012251377812\">https:\/\/doi.org\/10.1177\/14713012251377812\u00a0<\/a><\/p>\n<p>&nbsp;<\/p>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;August&#8221; tab_id=&#8221;1769598698601-c808e94c-e9f2&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month August, the website committee selected the following publication:<\/p>\n<div class=\"csl-right-inline\">Neal D, Craven MP, Cross J, et al. Digital assistive technologies for community-dwelling people with dementia: A systematic review of systematic reviews by the INTERDEM AI &amp; assistive technology taskforce (2025). <i>Digital Health; 11<\/i>. doi:10.1177\/20552076251362353<\/div>\n<\/div>\n<div><\/div>\n<div><\/div>\n<div>This systematic review of reviews examined progress and ongoing challenges in the use of digital assistive technologies to support social health for people living with dementia, following up on a 2017 position paper. Drawing from 112 reviews published since 2016, the study found that while advancements have been made, many earlier challenges persist. These include the need for personalized technology development, standardized usability assessments, more robust evidence of cost-effectiveness, realistic expectations around implementation, and improved ethical access to technologies. Notably, applications of artificial intelligence were absent from the included studies.<\/div>\n<div>\n<p>The review highlights that although research in this area has grown, there is still a need for more integrated and inclusive approaches. Future efforts should focus on evaluating emerging AI applications, developing technologies that are better tailored to users\u2019 needs, and using rigorous methods to assess meaningful outcomes. Ensuring equitable access and addressing ethical concerns will be essential to maximize the potential of digital assistive technologies in dementia care.<\/p>\n<\/div>\n<p>Available here:<a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/20552076251362353\"> https:\/\/journals.sagepub.com\/doi\/10.1177\/20552076251362353<\/a><\/p>\n<p>&nbsp;<\/p>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;July&#8221; tab_id=&#8221;1769598698731-888299b9-68c2&#8243;][vc_column_text] <div>For publication of the month July, the website committee selected the following publication:<\/div>\n<div><\/div>\n<div>\n<div class=\"citation-text\">\n<p>Marshall J, Papavasiliou E, Allan L, Bradbury K, Fox C, Hawkes M, Irvine A, Moniz-Cook E, Pick A, Polley M, Rathbone A, Reeve J, Robinson DL, Rook G, Sadler E, Wolverson E, Walker S, Cross J (2025) SPLENDID Collaboration. Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom. Health Expect. 28(3):e70286. doi: 10.1111\/hex.70286.<\/p>\n<div class=\"citation-text\"><\/div>\n<div class=\"citation-actions\">\n<p>This systematic review explored the role of social prescribing (SP) in supporting carers of people living with dementia (PLWD), highlighting the complex and varied nature of their needs. SP aims to connect carers with non-clinical services to address emotional, social, and practical challenges, yet current research lacks clarity on how these interventions are structured and implemented. The review, which included 52 studies, found that SP for carers in the UK is inconsistently classified and often initiated by a wide range of stakeholders, leading to a fragmented approach. Participation tends to be opportunistic rather than systematically planned, and while many carers reported benefits such as improved mood, social connections, and quality of life, others experienced negative outcomes related to intervention relevance and emotional strain.<\/p>\n<p>The findings suggest that SP holds promise for improving outcomes for carers of PLWD, but significant gaps remain in understanding its long-term impact and how best to tailor interventions to individual needs. Challenges include logistical barriers, emotional readiness, and the dynamics of the PLWD\u2013carer relationship, which can influence uptake and sustainability of SP. Future research should focus on refining SP mechanisms to better match carers\u2019 specific circumstances, evaluating long-term effects, and exploring how the carer\u2013PLWD relationship affects engagement with SP. This will help develop more coordinated, responsive, and effective support systems for this vital group.<\/p>\n<p>Available here:<\/p>\n<\/div>\n<\/div>\n<p><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.70286\">Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom &#8211; Marshall &#8211; 2025 &#8211; Health Expectations &#8211; Wiley Online Library<\/a><\/p>\n<section id=\"boxed-text1\" class=\"bt xbox font-sm\">\n<section id=\"dad270154-sec-0080\"><\/section>\n<\/section>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;June&#8221; tab_id=&#8221;1769598698863-4137e69c-fb58&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month June, the website committee selected the following publication:<\/p>\n<p class=\"x_MsoNormal\">Aunsmo, R. H., Strand, B. H., Bergh, S., Hansen, T., Kivim\u00e4ki, M., K\u00f6hler, S., . . . Selb\u00e6k, G. (2025). Loneliness trajectories and dementia risk: Insights from the HUNT cohort study. <em>Alzheimers Dement (Amst), <\/em>17(3), e70154. DOI<span class=\"identifier doi\"><span class=\"id-label\">\u00a0<\/span><a class=\"id-link\" href=\"https:\/\/doi.org\/10.1002\/dad2.70154\" target=\"_blank\" rel=\"noopener\" data-ga-category=\"full_text\" data-ga-action=\"DOI\">10.1002\/dad2.70154<\/a><\/span><\/p>\n<p>The aim of this study was to examine whether the course of the subjective feeling of loneliness over the three decades preceding a dementia diagnosis was associated with increased dementia risk, as well as to determine whether this association varied by sex or depending on the length of follow\u2010up period. Results sugest that persistent and incident loneliness was associated with a higher risk of dementia. Transient loneliness was not associated with a higher risk of dementia. Loneliness 11 years before to the cognitive assessment was associated with dementia.<\/p>\n<p>The authors conclude that reducing the sense of loneliness might reduce or delay the onset of dementia.<\/p>\n<section id=\"boxed-text1\" class=\"bt xbox font-sm\">\n<section id=\"dad270154-sec-0080\"><\/section>\n<\/section>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;May&#8221; tab_id=&#8221;1769598698994-83524b71-fd0b&#8221;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month May, the website committee selected the following publication:<\/p>\n<p class=\"x_MsoNormal\"><span data-olk-copy-source=\"MessageBody\">Scerri A, Schou Juul F, Silva R, et al. Ethical issues associated with assistive technologies for persons living with dementia and their caregivers \u2013 An overview of reviews.\u00a0<i>Dementia<\/i>. 2025;0(0). doi:<a title=\"https:\/\/doi.org\/10.1177\/14713012251341374\" href=\"https:\/\/doi.org\/10.1177\/14713012251341374\" data-auth=\"NotApplicable\" data-linkindex=\"0\">10.1177\/14713012251341374<\/a><\/span><\/p>\n<p class=\"x_MsoNormal\">This review synthesizes the ethical issues associated with assistive technologies (AT) for persons with dementia and their caregivers. Central concerns include autonomy, privacy, non-maleficence, beneficence, and justice, which intersect and shape the ethical implications of AT use. The ethical debate surrounding ATs is influenced by the varying priorities of stakeholders, differences in the interpretation of ethical principles, and cultural factors. These elements contribute to the complexity of ethical considerations in the design and implementation of AT in dementia care. This overview of review highligh<span lang=\"EN-US\">ts<\/span>\u00a0how future research on assistive technologies (AT) in dementia care should explore ethical considerations throughout the AT lifecycle, from design to real-world use, across diverse settings. It also emphasises the need to balance ethical principles while ensuring accessibility and inclusivity. This review underscores the complexity of ethical issues related to assistive technologies for dementia care and how these identified factors inform the ethical design and their use for persons with dementia and their caregivers.<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;April&#8221; tab_id=&#8221;1769598699132-179e5ec9-ec9b&#8221;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month April, the website committee selected the following publication:<\/p>\n<p>Neal, D., Bartels, S.L., Berdai Chaouni, S., Caprioli, T., Comas-Herrera, A., Chattat, R., Diaz, A., Dr\u00f6es, R.M., Faulkner, T., Felding, S.A. and Franco-Martin, M., 2025. Effective for Whom? A Review of Psychological and Social Intervention Recommendations in European Dementia Care Guidelines Through the Lenses of Social Health and Intersectionality.\u00a0<i>Behavioral Sciences<\/i>,\u00a0<i>15<\/i>(4), p.457. <a href=\"https:\/\/doi.org\/10.3390\/bs15040457\">https:\/\/doi.org\/10.3390\/bs15040457<\/a><\/p>\n<div class=\"citation-text\">\n<div data-olk-copy-source=\"MessageBody\">In dementia care, access to effective psychosocial interventions is often addressed by evidence-based guidelines for care providers. However, it is unclear if current guidelines consider personal characteristics that may impact intervention effectiveness. This study investigates if, and within what framing, dementia care guidelines in Europe address what is effective and for whom. A review of 47 guidelines from 12 European countries was conducted. Content analysis focused on (i) if guidelines recommended specific psychosocial interventions, and how guidelines referred to (ii) social health, (iii) the intersection of social positioning, and (iv) inequities in care or outcomes. Thirty-five guidelines (74%) recommended specific psychosocial interventions. Around half referenced aspects of social health and of intersectionality. Thirteen guidelines (28%) referenced inequities. Social health was not explicitly recognised as a mechanism of psychosocial interventions. Only age and comorbidity were consistently considered to impact interventions&#8217; effectiveness. Inequities were acknowledged to arise from within-country regional variations and individual economic status, but were not linked to (intersectional) individual societal positions such as sex and\/or gender, sexuality, and\/or religion. The results between European countries were heterogeneous. Current guidelines offer little insight into what works for whom. Policymakers and guideline developers should work with researchers, generating and translating evidence into policy.<\/div>\n<\/div>\n<section id=\"CD003477-sec-0003\"><\/section>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;March&#8221; tab_id=&#8221;1769598699269-f30266ae-ce96&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month March, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<div class=\"x_elementToProof\" data-olk-copy-source=\"MessageBody\"><strong>van der Steen JT, van der Wouden JC, Methley AM, Smaling HJ A, Vink AC, Bruinsma MS. Music-based therapeutic interventions for people with dementia.\u00a0<i>Cochrane Database of Systematic Reviews<\/i>, 2025, Issue 3. Art. No.: CD003477. DOI:\u00a0<a id=\"OWA9e21a112-be10-32ca-f8c4-1085451a3626\" class=\"x_OWAAutoLink\" title=\"https:\/\/www.cochranelibrary.com\/cdsr\/doi\/10.1002\/14651858.CD003477.pub5\/full\" href=\"https:\/\/www.cochranelibrary.com\/cdsr\/doi\/10.1002\/14651858.CD003477.pub5\/full\" data-end=\"779\" data-start=\"669\" data-auth=\"NotApplicable\" data-linkindex=\"0\">10.1002\/14651858.CD003477.pub5<\/a><\/strong><\/div>\n<div data-olk-copy-source=\"MessageBody\"><\/div>\n<\/div>\n<section id=\"CD003477-sec-0002\">This Cochrane review assesses the effects of music\u2010based therapeutic interventions for people with dementia on emotional well\u2010being (including quality of life), mood disturbance or negative affect (i.e. depressive symptoms and anxiety), behavioural problems (i.e. overall behavioural problems or neuropsychiatric symptoms, and more specifically agitation or aggression), social behaviour and cognition, at the end of therapy and four or more weeks after the end of treatment, and to assess any adverse effects.Results suggest that: a) When compared to usual care, providing people with dementia with at least five sessions of a music\u2010based therapeutic intervention probably improves depressive symptoms and may improve overall behavioural problems at the end of treatment; b) When compared to other activities, music\u2010based therapeutic interventions may improve social behaviour at the end of treatment. No conclusions can be reached about the outcome of anxiety as the certainty of the evidence is very low; c) There may be no effects on other outcomes at the end of treatment. There was no evidence of long\u2010term effects from music\u2010based therapeutic interventions; d) Adverse effects may be rare, but the studies were inconsistent in their reporting of adverse effects; and e) Future studies should examine the duration of effects in relation to the overall duration of treatment and the number of sessions.<\/section>\n<section id=\"CD003477-sec-0003\"><\/section>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;February&#8221; tab_id=&#8221;1769598699437-22170f7a-9cc2&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month February, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Gon\u00e7alves-Pereira M, Marques MJ, Alves RF, Jelley H, Wolfs C, Meyer G, Bieber A,\u00a0Irving K, Hopper L, Zanetti O, Portolani DM, Selbaek G, R\u00f8svik J, Sk\u00f6ldunger A, Sj\u00f6lund BM,\u00a0de Vugt M, Verhey F, Woods B. (2025) Sense of coherence, subjective burden, and anxiety and depression symptoms in caregivers of people with dementia: Causal dynamics unveiled by a longitudinal cohort study in Europe. J Affect Disord. 15;373:1-11. <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S0165032724020664?via%3Dihub\">doi: 10.1016\/j.jad.2024.12.078.<\/a><\/strong><\/p>\n<\/div>\n<p class=\"x_MsoNormal\"><span lang=\"EN-US\" data-olk-copy-source=\"MessageBody\">In this article a large cohort of 451 dyads of community-dwelling people with mild-moderate dementia and their caregivers was followed for one year. Causal relations were studied between sense of coherence, burden, depression and anxiety of caregivers. Sense of coherence levels remained stable after twelve months, while caregiver burden and anxiety and depression symptoms increased. Findings were consistent with sense of coherence potential protective role against burden and psychological morbidity. However, they also supported reverse causality regarding part of the associations. Caregivers&#8217; sense of coherence levels may be directly influenced by subjective burden and psychological morbidity.<\/span><\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1769598699573-af448499-2d29&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month January, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Dr\u00f6es RM, McDermott O, Dassen FCM, Verhey FRJ, Orrell M. (2025). Best practice guidance to improve the design, effectiveness and implementation of technology for people with dementia. Aging Mental Health; 29(1):1-3. doi: <a href=\"https:\/\/www.tandfonline.com\/doi\/10.1080\/13607863.2024.2379422?url_ver=Z39.88-2003&amp;rfr_id=ori:rid:crossref.org&amp;rfr_dat=cr_pub%20%200pubmed#d1e175\">10.1080\/13607863.2024.2379422.<\/a><\/strong><strong>\u00a0<\/strong><\/p>\n<\/div>\n<p>This paper focuses on the web-based Best Practice Guidance for Human Interaction with Technology in Dementia, which provides recommendations on how to improve, evaluate and implement needs-based technology that is usable and effective for people with dementia, their caregivers, and care and welfare services providing care and support. The Best Practice Guidance is based on the research conducted in the Marie Sklodowska Curie Innovative Training Networks INDUCT and DISTINCT . It is a dynamic document that has been updated yearly since it was launched in 2019 and aims to be updated when new insights are available in this continuously growing field.<\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion][vc_tta_accordion][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1769598699777-b982c831-c9b8&#8243;][vc_column_text]For publication of the month January 2026, the website committee selected the following publication:<\/p>\n<p>Demnitz-King, H., Banerjee, S., et. al (2026). The Nottingham consensus on dementia risk reduction policy: recommendations from a modified Delphi process. <em>Nature Reviews Neurology<\/em>.<\/p>\n<p>Interdem authors include <strong>Chris Fox<\/strong> and <strong>Martin Orrell<\/strong>.<\/p>\n<div id=\"eng-abstract\" class=\"abstract-content selected\">\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Abstract<\/h3>\n<p>Translation of evidence about dementia risk and its reduction into effective, equitable public health policy is a major challenge. To address this challenge, the National Institute for Health and Care Research Policy Research Unit in Dementia and Neurodegeneration at Queen Mary University of London (DeNPRU-QM) convened a multidisciplinary panel of 40 experts from across England, with diverse lived, academic, clinical, policy and advocacy experience, at various career stages, and of diverse gender and ethnicity, to develop actionable policy recommendations for dementia risk reduction. Through a 2-day in-person workshop and a subsequent three-round modified Delphi survey, the panel evaluated and refined statements on dementia prevention. The panel achieved consensus on 56 recommendations in four domains: public health messaging, individual-level interventions, population-level interventions and research commissioning. A key priority across all domains was the need to consider and address health inequalities so that prevention efforts do not exacerbate existing disparities.<\/p>\n<\/div>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/www.nature.com\/articles\/s41582-025-01173-9\">https:\/\/www.nature.com\/articles\/s41582-025-01173-9<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;December&#8221; tab_id=&#8221;1769598699920-207e48ee-623a&#8221;][vc_column_text]For publication of the month December 2025, the website committee selected the following publication:<\/p>\n<p><strong>Clare, L.<\/strong>, Martyr, A., Caulfield, M., Gamble, L. D., Charlwood, C., Ward, J., Hulme, C., Prina, M., &amp; <strong>Oyebode, J. R.<\/strong> (2025). Living alone with dementia is a neglected source of inequality: findings from a scoping review of research evidence. Systematic Reviews.<\/p>\n<div id=\"eng-abstract\" class=\"abstract-content selected\">\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Background<\/h3>\n<p>With growing proportions of single-person households, increasing numbers of people with dementia are living alone, challenging the still-prevalent assumption that people have an informal carer available. We aimed to characterise the research literature on people living alone with dementia and summarise what is known about their characteristics and needs.<\/p>\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Method<\/h3>\n<p>This scoping review followed Joanna Briggs Institute methodology and PRISMA-ScR reporting guidelines. Seven databases (PubMed, Web of Science, CINAHL, Ageline, EMBASE, PsycInfo, Social Policy and Practice) were searched for English-language publications on 18\/01\/2024, without date limits. Eligible studies reported on people with dementia living alone, using any research design; reviews, editorials, and conference abstracts were excluded. Titles, abstracts, and full texts were screened independently. Data were extracted using structured forms and summarised narratively, grouping quantitative findings descriptively and qualitative findings thematically.<\/p>\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Results<\/h3>\n<p>We included 200 articles (162 quantitative, 38 qualitative) from 161 studies. Living alone was the primary focus in 30.5% of articles, living situation was explored in secondary comparisons or sub-group analyses in 62.5%, and noted only in describing samples in 7%. Most research (80.1%) was from Europe or North America. The first study was published in 1962 and the next in 1984, since when the annual number of publications has gradually increased. Across studies, people living alone with dementia were commonly described as older, more often female, and as experiencing significant unmet need. Reports noted variation in the extent of informal support, with some people receiving little or no support. Compared with those living with others, people living alone were often described as having less timely diagnosis, lower access to formal services, higher home care costs, and greater likelihood of moving into residential care or dying outside the home. Studies commonly reported social isolation, loneliness, and difficulties with daily living in people living alone with dementia. Family members providing support at a distance were described as receiving little assistance. Few studies examined approaches to addressing these needs or improving support.<\/p>\n<h3 class=\"c-article__sub-heading\" data-test=\"abstract-sub-heading\">Conclusions<\/h3>\n<p>This review highlights living alone with dementia as a growing but neglected source of inequality. Practical steps are needed now to address this issue in policy, service provision, practice and research.<\/p>\n<\/div>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/link.springer.com\/article\/10.1186\/s13643-025-03002-y\">https:\/\/link.springer.com\/article\/10.1186\/s13643-025-03002-y<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;November&#8221; tab_id=&#8221;1769598700065-1de29430-b439&#8243;][vc_column_text]For publication of the month November, the website committee selected the following publication:<\/p>\n<p>Wittmann, F., Luppa, M., Thyrian, J. R., Hoffmann, W., &amp; Riedel-Heller, S. G. (2025). Dementia risk among individuals with a migrant background\u2014a scoping review [Systematic Review]. Frontiers in dementia, Volume 4 &#8211; 2025. https:\/\/www.frontiersin.org\/journals\/dementia\/articles\/10.3389\/frdem.2025.1667478<\/p>\n<p>While non-pharmacological dementia prevention is increasingly prioritized in research and policy, intersectional perspectives remain underrepresented. These are essential to address structural determinants of health and persistent diversities and inequities. This scoping review aimed to synthesize the existing amount of research on dementia risk and prevention in relation to migration background, focusing on three questions: (1) dementia risk and associated risk factors, (2) prevention, and (3) evidence concerning the most marginalized migrant populations.<\/p>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/www.frontiersin.org\/journals\/dementia\/articles\/10.3389\/frdem.2025.1667478\/full\">https:\/\/www.frontiersin.org\/journals\/dementia\/articles\/10.3389\/frdem.2025.1667478\/full\u00a0<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;October&#8221; tab_id=&#8221;1769598700219-68dfe548-f5db&#8221;][vc_column_text]For publication of the month October, the website committee selected the following publication:<\/p>\n<p>Ritzen, M., Peetoom, K., Bartels, S. L., Bakker, C., de Vugt, M., &amp; YOD-included consortium\u00a0 (2025). Needs of people living with young-onset dementia and family carers, explored by dementia subtype, phase in the disease process, and living setting: A scoping review. <i>Journal of Alzheimer&#8217;s disease : JAD<\/i>,\u00a0<i>107<\/i>(4), 1340\u20131363.<\/p>\n<p>This scoping review aims to identify needs of people with Young Onset Dementia (YOD) and family carers in relation to dementia subtype, disease phase, and living setting. Literature was systematically searched in PubMed, CINAHL, Embase, and APA PsycINFO up to October 2024. After screening by two independent researchers, 140 articles were included. Four main themes of needs emerged: support, care, interpersonal, and personal needs. Needs varied per target group, dementia subtype, living setting, and disease phase. Prominent support needs included practical assistance, and emotional and psychological support. Information on diagnosis and prognosis, and active involvement of healthcare professionals were highlighted within care needs. Interpersonal needs often referred to companionship and togetherness, as well as empathy, understanding, and acceptance. Finally, security and safety, and time for oneself were emphasized as personal needs. Overall, the majority of current evidence pertained to Alzheimer&#8217;s disease, the post-diagnostic phase, and living at home. YOD-needs vary widely, requiring flexible, person- and family-centered care and support. Future research should address underrepresented areas, including the needs of dyads, families, and YOD care home residents. Additionally, it should address needs related to rarer YOD subtypes and specific disease phases to better capture the diversity of these needs.<\/p>\n<div>\n<div class=\"csl-right-inline\">\n<p>Available here: <a href=\"https:\/\/doi.org\/10.1177\/13872877251372148\">https:\/\/doi.org\/10.1177\/13872877251372148<\/a><\/p>\n<\/div>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;September&#8221; tab_id=&#8221;1769598700367-3706624a-d4c8&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month September, the website committee selected the following publication:<\/p>\n<div class=\"csl-right-inline\">\n<p><strong>Wolverson, E.<\/strong>, Backhouse, T., <strong>Burnand, A.<\/strong>, Eriksen, S., <strong>Fonseca de Paiva, A.<\/strong>, <strong>Harrison Dening, K.<\/strong>, Mabire, J. B., <strong>Sabatini, S.<\/strong>, &amp; <strong>van der Steen, J. T.<\/strong> (2025). Spiritual Support for People Affected by Dementia: A Scoping Review.\u00a0<em>Dementia (London, England)<\/em>, 14713012251377812. Advance online publication.<\/p>\n<p>As a life-limiting illness, dementia requires a holistic approach to care, where spiritual support plays a crucial role in helping individuals and their caregivers find meaning and solace. Our aim was to systematically map the research conducted on psychosocial interventions developed to provide spiritual support for people living with dementia and their caregivers from diagnosis and across the disease trajectory. A scoping review was conducted to explore the breadth of research on \u2018spiritual support\u2019 in dementia care, encompassing interventions, service delivery models, programs, toolkits, approaches, and activities.<\/p>\n<\/div>\n<\/div>\n<p>Available here: <a href=\"https:\/\/doi.org\/10.1177\/14713012251377812\">https:\/\/doi.org\/10.1177\/14713012251377812\u00a0<\/a><\/p>\n<p>&nbsp;<\/p>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;August&#8221; tab_id=&#8221;1769598700513-f59ad220-ca6f&#8221;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month August, the website committee selected the following publication:<\/p>\n<div class=\"csl-right-inline\">Neal D, Craven MP, Cross J, et al. Digital assistive technologies for community-dwelling people with dementia: A systematic review of systematic reviews by the INTERDEM AI &amp; assistive technology taskforce (2025). <i>Digital Health; 11<\/i>. doi:10.1177\/20552076251362353<\/div>\n<\/div>\n<div><\/div>\n<div><\/div>\n<div>This systematic review of reviews examined progress and ongoing challenges in the use of digital assistive technologies to support social health for people living with dementia, following up on a 2017 position paper. Drawing from 112 reviews published since 2016, the study found that while advancements have been made, many earlier challenges persist. These include the need for personalized technology development, standardized usability assessments, more robust evidence of cost-effectiveness, realistic expectations around implementation, and improved ethical access to technologies. Notably, applications of artificial intelligence were absent from the included studies.<\/div>\n<div>\n<p>The review highlights that although research in this area has grown, there is still a need for more integrated and inclusive approaches. Future efforts should focus on evaluating emerging AI applications, developing technologies that are better tailored to users\u2019 needs, and using rigorous methods to assess meaningful outcomes. Ensuring equitable access and addressing ethical concerns will be essential to maximize the potential of digital assistive technologies in dementia care.<\/p>\n<\/div>\n<p>Available here:<a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/20552076251362353\"> https:\/\/journals.sagepub.com\/doi\/10.1177\/20552076251362353<\/a><\/p>\n<p>&nbsp;<\/p>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;July&#8221; tab_id=&#8221;1769598700661-d600ca3e-38aa&#8221;][vc_column_text] <div>For publication of the month July, the website committee selected the following publication:<\/div>\n<div><\/div>\n<div>\n<div class=\"citation-text\">\n<p>Marshall J, Papavasiliou E, Allan L, Bradbury K, Fox C, Hawkes M, Irvine A, Moniz-Cook E, Pick A, Polley M, Rathbone A, Reeve J, Robinson DL, Rook G, Sadler E, Wolverson E, Walker S, Cross J (2025) SPLENDID Collaboration. Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom. Health Expect. 28(3):e70286. doi: 10.1111\/hex.70286.<\/p>\n<div class=\"citation-text\"><\/div>\n<div class=\"citation-actions\">\n<p>This systematic review explored the role of social prescribing (SP) in supporting carers of people living with dementia (PLWD), highlighting the complex and varied nature of their needs. SP aims to connect carers with non-clinical services to address emotional, social, and practical challenges, yet current research lacks clarity on how these interventions are structured and implemented. The review, which included 52 studies, found that SP for carers in the UK is inconsistently classified and often initiated by a wide range of stakeholders, leading to a fragmented approach. Participation tends to be opportunistic rather than systematically planned, and while many carers reported benefits such as improved mood, social connections, and quality of life, others experienced negative outcomes related to intervention relevance and emotional strain.<\/p>\n<p>The findings suggest that SP holds promise for improving outcomes for carers of PLWD, but significant gaps remain in understanding its long-term impact and how best to tailor interventions to individual needs. Challenges include logistical barriers, emotional readiness, and the dynamics of the PLWD\u2013carer relationship, which can influence uptake and sustainability of SP. Future research should focus on refining SP mechanisms to better match carers\u2019 specific circumstances, evaluating long-term effects, and exploring how the carer\u2013PLWD relationship affects engagement with SP. This will help develop more coordinated, responsive, and effective support systems for this vital group.<\/p>\n<p>Available here:<\/p>\n<\/div>\n<\/div>\n<p><a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1111\/hex.70286\">Reimagining Dementia Care: A Complex Intervention Systematic Review on Optimising Social Prescribing (SP) for Carers of People Living With Dementia (PLWD) in the United Kingdom &#8211; Marshall &#8211; 2025 &#8211; Health Expectations &#8211; Wiley Online Library<\/a><\/p>\n<section id=\"boxed-text1\" class=\"bt xbox font-sm\">\n<section id=\"dad270154-sec-0080\"><\/section>\n<\/section>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;June&#8221; tab_id=&#8221;1769598700812-c4238112-e8f9&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month June, the website committee selected the following publication:<\/p>\n<p class=\"x_MsoNormal\">Aunsmo, R. H., Strand, B. H., Bergh, S., Hansen, T., Kivim\u00e4ki, M., K\u00f6hler, S., . . . Selb\u00e6k, G. (2025). Loneliness trajectories and dementia risk: Insights from the HUNT cohort study. <em>Alzheimers Dement (Amst), <\/em>17(3), e70154. DOI<span class=\"identifier doi\"><span class=\"id-label\">\u00a0<\/span><a class=\"id-link\" href=\"https:\/\/doi.org\/10.1002\/dad2.70154\" target=\"_blank\" rel=\"noopener\" data-ga-category=\"full_text\" data-ga-action=\"DOI\">10.1002\/dad2.70154<\/a><\/span><\/p>\n<p>The aim of this study was to examine whether the course of the subjective feeling of loneliness over the three decades preceding a dementia diagnosis was associated with increased dementia risk, as well as to determine whether this association varied by sex or depending on the length of follow\u2010up period. Results sugest that persistent and incident loneliness was associated with a higher risk of dementia. Transient loneliness was not associated with a higher risk of dementia. Loneliness 11 years before to the cognitive assessment was associated with dementia.<\/p>\n<p>The authors conclude that reducing the sense of loneliness might reduce or delay the onset of dementia.<\/p>\n<section id=\"boxed-text1\" class=\"bt xbox font-sm\">\n<section id=\"dad270154-sec-0080\"><\/section>\n<\/section>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;May&#8221; tab_id=&#8221;1769598700988-8b3c4cd9-29e1&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month May, the website committee selected the following publication:<\/p>\n<p class=\"x_MsoNormal\"><span data-olk-copy-source=\"MessageBody\">Scerri A, Schou Juul F, Silva R, et al. Ethical issues associated with assistive technologies for persons living with dementia and their caregivers \u2013 An overview of reviews.\u00a0<i>Dementia<\/i>. 2025;0(0). doi:<a title=\"https:\/\/doi.org\/10.1177\/14713012251341374\" href=\"https:\/\/doi.org\/10.1177\/14713012251341374\" data-auth=\"NotApplicable\" data-linkindex=\"0\">10.1177\/14713012251341374<\/a><\/span><\/p>\n<p class=\"x_MsoNormal\">This review synthesizes the ethical issues associated with assistive technologies (AT) for persons with dementia and their caregivers. Central concerns include autonomy, privacy, non-maleficence, beneficence, and justice, which intersect and shape the ethical implications of AT use. The ethical debate surrounding ATs is influenced by the varying priorities of stakeholders, differences in the interpretation of ethical principles, and cultural factors. These elements contribute to the complexity of ethical considerations in the design and implementation of AT in dementia care. This overview of review highligh<span lang=\"EN-US\">ts<\/span>\u00a0how future research on assistive technologies (AT) in dementia care should explore ethical considerations throughout the AT lifecycle, from design to real-world use, across diverse settings. It also emphasises the need to balance ethical principles while ensuring accessibility and inclusivity. This review underscores the complexity of ethical issues related to assistive technologies for dementia care and how these identified factors inform the ethical design and their use for persons with dementia and their caregivers.<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;April&#8221; tab_id=&#8221;1769598701144-bf8ce2c7-3bd1&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month April, the website committee selected the following publication:<\/p>\n<p>Neal, D., Bartels, S.L., Berdai Chaouni, S., Caprioli, T., Comas-Herrera, A., Chattat, R., Diaz, A., Dr\u00f6es, R.M., Faulkner, T., Felding, S.A. and Franco-Martin, M., 2025. Effective for Whom? A Review of Psychological and Social Intervention Recommendations in European Dementia Care Guidelines Through the Lenses of Social Health and Intersectionality.\u00a0<i>Behavioral Sciences<\/i>,\u00a0<i>15<\/i>(4), p.457. <a href=\"https:\/\/doi.org\/10.3390\/bs15040457\">https:\/\/doi.org\/10.3390\/bs15040457<\/a><\/p>\n<div class=\"citation-text\">\n<div data-olk-copy-source=\"MessageBody\">In dementia care, access to effective psychosocial interventions is often addressed by evidence-based guidelines for care providers. However, it is unclear if current guidelines consider personal characteristics that may impact intervention effectiveness. This study investigates if, and within what framing, dementia care guidelines in Europe address what is effective and for whom. A review of 47 guidelines from 12 European countries was conducted. Content analysis focused on (i) if guidelines recommended specific psychosocial interventions, and how guidelines referred to (ii) social health, (iii) the intersection of social positioning, and (iv) inequities in care or outcomes. Thirty-five guidelines (74%) recommended specific psychosocial interventions. Around half referenced aspects of social health and of intersectionality. Thirteen guidelines (28%) referenced inequities. Social health was not explicitly recognised as a mechanism of psychosocial interventions. Only age and comorbidity were consistently considered to impact interventions&#8217; effectiveness. Inequities were acknowledged to arise from within-country regional variations and individual economic status, but were not linked to (intersectional) individual societal positions such as sex and\/or gender, sexuality, and\/or religion. The results between European countries were heterogeneous. Current guidelines offer little insight into what works for whom. Policymakers and guideline developers should work with researchers, generating and translating evidence into policy.<\/div>\n<\/div>\n<section id=\"CD003477-sec-0003\"><\/section>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;March&#8221; tab_id=&#8221;1769598701300-14a2e7b2-7093&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month March, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<div class=\"x_elementToProof\" data-olk-copy-source=\"MessageBody\"><strong>van der Steen JT, van der Wouden JC, Methley AM, Smaling HJ A, Vink AC, Bruinsma MS. Music-based therapeutic interventions for people with dementia.\u00a0<i>Cochrane Database of Systematic Reviews<\/i>, 2025, Issue 3. Art. No.: CD003477. DOI:\u00a0<a id=\"OWA9e21a112-be10-32ca-f8c4-1085451a3626\" class=\"x_OWAAutoLink\" title=\"https:\/\/www.cochranelibrary.com\/cdsr\/doi\/10.1002\/14651858.CD003477.pub5\/full\" href=\"https:\/\/www.cochranelibrary.com\/cdsr\/doi\/10.1002\/14651858.CD003477.pub5\/full\" data-end=\"779\" data-start=\"669\" data-auth=\"NotApplicable\" data-linkindex=\"0\">10.1002\/14651858.CD003477.pub5<\/a><\/strong><\/div>\n<div data-olk-copy-source=\"MessageBody\"><\/div>\n<\/div>\n<section id=\"CD003477-sec-0002\">This Cochrane review assesses the effects of music\u2010based therapeutic interventions for people with dementia on emotional well\u2010being (including quality of life), mood disturbance or negative affect (i.e. depressive symptoms and anxiety), behavioural problems (i.e. overall behavioural problems or neuropsychiatric symptoms, and more specifically agitation or aggression), social behaviour and cognition, at the end of therapy and four or more weeks after the end of treatment, and to assess any adverse effects.Results suggest that: a) When compared to usual care, providing people with dementia with at least five sessions of a music\u2010based therapeutic intervention probably improves depressive symptoms and may improve overall behavioural problems at the end of treatment; b) When compared to other activities, music\u2010based therapeutic interventions may improve social behaviour at the end of treatment. No conclusions can be reached about the outcome of anxiety as the certainty of the evidence is very low; c) There may be no effects on other outcomes at the end of treatment. There was no evidence of long\u2010term effects from music\u2010based therapeutic interventions; d) Adverse effects may be rare, but the studies were inconsistent in their reporting of adverse effects; and e) Future studies should examine the duration of effects in relation to the overall duration of treatment and the number of sessions.<\/section>\n<section id=\"CD003477-sec-0003\"><\/section>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;February&#8221; tab_id=&#8221;1769598701455-a669fdf9-51e7&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month February, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Gon\u00e7alves-Pereira M, Marques MJ, Alves RF, Jelley H, Wolfs C, Meyer G, Bieber A,\u00a0Irving K, Hopper L, Zanetti O, Portolani DM, Selbaek G, R\u00f8svik J, Sk\u00f6ldunger A, Sj\u00f6lund BM,\u00a0de Vugt M, Verhey F, Woods B. (2025) Sense of coherence, subjective burden, and anxiety and depression symptoms in caregivers of people with dementia: Causal dynamics unveiled by a longitudinal cohort study in Europe. J Affect Disord. 15;373:1-11. <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S0165032724020664?via%3Dihub\">doi: 10.1016\/j.jad.2024.12.078.<\/a><\/strong><\/p>\n<\/div>\n<p class=\"x_MsoNormal\"><span lang=\"EN-US\" data-olk-copy-source=\"MessageBody\">In this article a large cohort of 451 dyads of community-dwelling people with mild-moderate dementia and their caregivers was followed for one year. Causal relations were studied between sense of coherence, burden, depression and anxiety of caregivers. Sense of coherence levels remained stable after twelve months, while caregiver burden and anxiety and depression symptoms increased. Findings were consistent with sense of coherence potential protective role against burden and psychological morbidity. However, they also supported reverse causality regarding part of the associations. Caregivers&#8217; sense of coherence levels may be directly influenced by subjective burden and psychological morbidity.<\/span><\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1769598701610-64adf454-326c&#8221;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month January, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Dr\u00f6es RM, McDermott O, Dassen FCM, Verhey FRJ, Orrell M. (2025). Best practice guidance to improve the design, effectiveness and implementation of technology for people with dementia. Aging Mental Health; 29(1):1-3. doi: <a href=\"https:\/\/www.tandfonline.com\/doi\/10.1080\/13607863.2024.2379422?url_ver=Z39.88-2003&amp;rfr_id=ori:rid:crossref.org&amp;rfr_dat=cr_pub%20%200pubmed#d1e175\">10.1080\/13607863.2024.2379422.<\/a><\/strong><strong>\u00a0<\/strong><\/p>\n<\/div>\n<p>This paper focuses on the web-based Best Practice Guidance for Human Interaction with Technology in Dementia, which provides recommendations on how to improve, evaluate and implement needs-based technology that is usable and effective for people with dementia, their caregivers, and care and welfare services providing care and support. The Best Practice Guidance is based on the research conducted in the Marie Sklodowska Curie Innovative Training Networks INDUCT and DISTINCT . It is a dynamic document that has been updated yearly since it was launched in 2019 and aims to be updated when new insights are available in this continuously growing field.<\/p>\n<p>&nbsp;<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion]<\/div><\/div><div id=\"sc_accordion_item_Tue Oct 29 2024 15:29:52 GMT+0000 (Greenwich Mean Time)_1\" class=\"sc_accordion_item odd\"><h4 class=\"sc_accordion_title\">2024<\/h4><div class=\"sc_accordion_content\">[vc_tta_accordion][vc_tta_section title=&#8221;December&#8221; tab_id=&#8221;1738851817257-032e362f-4217&#8243;][vc_column_text] <div><\/div>\n<div>\n<p>For publication of the month December, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Giebel C, Marshall H, Cannon J, et al. The impact of game play on dementia knowledge: A student evaluation of the Dementia Inequalities Game.\u00a0<em>Dementia<\/em>. 2024;0(0). doi:<a href=\"https:\/\/doi.org\/10.1177\/14713012241306489\">10.1177\/14713012241306489<\/a><\/strong><\/p>\n<\/div>\n<p>The aim of this study was to assess the impact of playing the co-produced Dementia Inequalities Game on knowledge about dementia and associated inequalities in health care, allied health professional, nursing and psychology students. The game was played by 318 undergraduate and postgraduate students in North of England. Playing the game significantly increased knowledge about dementia (<em>p<\/em>\u00a0&lt; .001) and dementia inequalities (<em>p<\/em> &lt; .001).\u00a0The Dementia Inequalities Game is an effective tool to improve knowledge about dementia and associated inequalities in health care and psychology students. Using the game as an educational and sociable intervention in health and social care professionals is a next avenue to test.<\/p>\n<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;November&#8221; tab_id=&#8221;1738851817407-52c6fd0e-48a7&#8243;][vc_column_text]For publication of the month November, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">Altona J, Wiegelmann H, Lenart-Bulga M, Vernooij-Dassen M, Verspoor E, Seifert I, Misonow J, Szcze\u015bniak D, Rymaszewska J, Chattat R, Jeon YH, Moniz-Cook E, Roes M, Perry M, Wolf-Ostermann K. (2024). <a href=\"https:\/\/www.frontiersin.org\/journals\/psychiatry\/articles\/10.3389\/fpsyt.2024.1387192\/full\">Instruments for assessing social health in the context of cognitive decline and dementia: a systematic review<\/a>. Front Psychiatry 13;15:1387192. doi: 10.3389\/fpsyt.2024.1387192.<\/div>\n<div><\/div>\n<div><\/div>\n<div>This systematic review aims to classify existing instruments that measure various domains of social health. To achieve this, the authors applied a new multidimensional framework consisting of six key domains of social health. A total of 227 studies (longitudinal, case-control, and cross-sectional cohort studies) with 102 single instruments were included. The search terms were as follows: (1) dementia (i.e., Alzheimer&#8217;s, cognitive impairment); (2) social health markers (i.e., decision-making, social participation, loneliness); and (3) instruments (i.e., tools, measures). The instruments are mainly self-reported, and the number of items ranges from 3 to 126. Despite the wide array of instruments available, most focus on individual domains of social health. The authors recommend the development of more conceptually robust instruments that can comprehensively evaluate psychosocial interventions and adequately capture all domains of social health.<\/div>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;October&#8221; tab_id=&#8221;1738851817590-a9de3d97-b915&#8243;][vc_column_text]For publication of the month October, the website committee selected the following publication:<\/p>\n<p id=\"gps6096-sec-0004\" class=\"article-section__content\">Kohl, G., Koh, W. Q., Scior, K., &amp; Charlesworth, G. (2024).<a href=\"https:\/\/journals.plos.org\/plosone\/article?id=10.1371\/journal.pone.0310983\"> \u201cIt\u2019s just getting the word out there\u201d: Self-disclosure by people with young-onset dementia<\/a>. <em>PLOS ONE, 19<\/em>(9), e0310983. doi: 10.1371\/journal.pone.0310983<\/p>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section><\/section>\n<section>This study provides a holistic understanding of people with young-onset dementia\u2019s experiences with self-disclosure and how these evolved. Policies should prioritize the creation of dementia-friendly communities, while recommendations for practice include integrating empowerment interventions and peer support into post-diagnostic support. These efforts will support individuals in their self-disclosure journey, promote social engagement and reduce stigma.<\/section>\n<section><\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;September&#8221; tab_id=&#8221;1738851817749-2e0c9332-5cb6&#8243;][vc_column_text]For publication of the month September, the website committee selected the following publication:<\/p>\n<section id=\"gps6096-sec-0004\" class=\"article-section__content\">Bartels SL, Stephens N, D&#8217;Andrea F, Handley M, Markaryan M, Nakakawa Bernal A, Van den Block L, de Bruin SR, Windle K, Roes M, Janssen N, Christie H, Garcia L, Teesing G, Moniz-Cook E, Graff M (2024). Discussing methodological gaps in psychosocial intervention research for dementia: an opinion article from the INTERDEM Methodology Taskforce guided by the MRC framework. Frontiers Dementia. 26;3:1458023. doi: 10.3389\/frdem.2024.1458023.<\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;August&#8221; tab_id=&#8221;1738851817891-3afc1132-45db&#8221;][vc_column_text]For publication of the month August, the website committee selected the following publication:<\/p>\n<section id=\"gps6096-sec-0004\" class=\"article-section__content\">Risch AK, Lechner-Meichsner F, Wilz G. (2024) Telephone-Based Acceptance and Commitment Therapy for Caregivers of Persons with Dementia: Results of a Randomized Controlled Trial. Clinical Gerontology. 21:1-19. doi: 10.1080\/07317115.2024.2393307.\u00a0<\/section>\n<p>See <a href=\"https:\/\/doi.org\/10.1080\/07317115.2024.2393307\">full text.<\/a><\/p>\n<div id=\"\" class=\"NLM_sec NLM_sec_level_1\">\n<h4 id=\"d1e135\" class=\"section-heading-2\">Objectives<\/h4>\n<p class=\"last\">Family caregivers of persons with dementia (PwD) experience high levels of distress. We used a randomized-controlled trial to investigate the effects of telephone-based acceptance and commitment therapy (tbACT) for family caregivers.<\/p>\n<\/div>\n<div id=\"\" class=\"NLM_sec NLM_sec_level_1\">\n<h4 id=\"d1e138\" class=\"section-heading-2\">Methods<\/h4>\n<p class=\"last\">Caregivers were randomly allocated to an intervention group (tbACT,\u00a0<i>n<\/i>\u2009=\u200941) or an untreated control group (CG,\u00a0<i>n<\/i>\u2009=\u200940). The intervention consisted of eight weekly sessions of tbACT. Depression and anxiety (primary outcomes), physical symptoms, pre-death grief, care-related thoughts, acceptance (secondary outcomes), quality of life, coping and well-being (well-being\/coping outcomes) were assessed pre- and post-assessment. A 6-month follow-up was conducted.<\/p>\n<\/div>\n<div id=\"\" class=\"NLM_sec NLM_sec_level_1\">\n<h4 id=\"d1e148\" class=\"section-heading-2\">Results<\/h4>\n<p class=\"last\">Compared to CG participants, tbACT participants had at post-assessment significantly lower depressive symptoms; fewer physical symptoms (rheumatic pain); better physical health; more resource utilization (coping with daily hassles, social support); better coping with the care situation and better emotional well-being. During the six-month follow-up, tbACT participants showed less pre-death grief, fewer physical symptoms, and more utilization of resources related to coping with daily hassles.<\/p>\n<\/div>\n<div id=\"\" class=\"NLM_sec NLM_sec_level_1\">\n<h4 id=\"d1e151\" class=\"section-heading-2\">Conclusions<\/h4>\n<p class=\"last\">tbACT is a feasible and promising psychotherapeutic intervention for family caregivers of PwD. Because of small sample size our results are preliminary.<\/p>\n<\/div>\n<div id=\"\" class=\"NLM_sec NLM_sec_level_1\">\n<p class=\"last\">\n<\/div> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;July&#8221; tab_id=&#8221;1738851818028-cd76f9d2-8cb7&#8243;][vc_column_text]For the publication of the month July, the website committee selected the following publication:<\/p>\n<section id=\"gps6096-sec-0004\" class=\"article-section__content\">Lorito, C. D., Pollock, K., Booth, V., Howe, L., Goldberg, S., Godfrey, M., . . . Wardt, V. v. d. (2024). Social participation in the promoting activity, independence and stability in early dementia (PrAISED), a home-based therapy intervention for people living with dementia: a realist evaluation. BMC Geriatrics, 24(1), 615. doi: 10.1186\/s12877-024-05086-y<\/section>\n<p>See <a href=\"https:\/\/bmcgeriatr.biomedcentral.com\/articles\/10.1186\/s12877-024-05086-y\">full text<\/a>.<\/p>\n<h4><u>Background<\/u><\/h4>\n<p>Interventions promoting social activity may reduce behavioural psychological symptoms and improve quality of life in people living with dementia. This study aimed to identify social benefits for participants living with dementia in the context of Promoting Activity, Independence and Stability in Early Dementia (PrAISED), an exercise intervention programme promoting physical activity and independence in participants living with dementia in England.<\/p>\n<h4><u>Methods<\/u><\/h4>\n<p>This was a multi-method realist evaluation undertaking secondary analysis of data collected during the PrAISED process evaluation, including qualitative interviews with participants with dementia, caregivers and therapists, personal notes of researchers, and video recordings of therapy sessions. The study consisted of four phases: (1) Setting operational definition of social outcomes in PrAISED; (2) Developing Context, Mechanisms, Outcome (CMO) configurations; (3) Testing and refining CMOs; and (4) Synthesising definitive CMOs into a middle range theory.<\/p>\n<h4><u>Results<\/u><\/h4>\n<p>Two CMOs were identified. (1) When therapists were able to make therapy sessions engaging and had the caregivers\u2019 support, the participants experienced therapy sessions as an opportunity to achieve goals in areas they were interested in. They also found the sessions enjoyable. This all led to the participants being highly engaged in their social interactions with the therapists. (2) When the participants realised that they were gaining benefits and progress through the PrAISED intervention, such as increased balance, this boosted their confidence in physical ability. It might also reduce caregivers\u2019 risk-aversion\/gatekeeping attitude, which in turn would lead to participants\u2019 increased participation in social activities.<\/p>\n<h4><u>Conclusion<\/u><\/h4>\n<p>The PrAISED intervention supported social participation in participants living with dementia. Under certain circumstances, home-based therapy interventions can be beneficial for social health (regardless of physical health gains). Given the limitations of currently available outcome measures to assess social participation, qualitative methods should be used to explore social health outcomes.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;June&#8221; tab_id=&#8221;1738851818191-7d4d0ec9-153e&#8221;][vc_column_text]For the publication of the month June, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\"><\/div>\n<section id=\"gps6096-sec-0004\" class=\"article-section__content\">Martyr A, Gamble LD, Hunt A, <strong>Quinn C<\/strong>, Morris RG, Henderson C, Allan L, Opdebeeck C, Charlwood C, Jones RW, Pentecost C, Kopelman MD, Thom JM, Matthews FE, <strong>Clare L<\/strong>. Differences in trajectories of quality of life according to type of dementia: 6-year longitudinal findings from the IDEAL programme. BMC Med. 2024 Jun 24;22(1):265. doi: 10.1186\/s12916-024-03492-y. PMID: 38915081; PMCID: PMC11197262.<\/section>\n<p>See <a href=\"https:\/\/link.springer.com\/content\/pdf\/10.1186\/s12916-024-03492-y.pdf\">full text<\/a>.<\/p>\n<h4>Background:<\/h4>\n<p>People with different types of dementia may have distinct symptoms and experiences that affect their quality of life. This study investigated whether quality of life varied across types of dementia and over time.<\/p>\n<h4>Methods:<\/h4>\n<p>The participants were 1555 people with mild-to-moderate dementia and 1327 carers from the IDEAL longitudinal cohort study, recruited from clinical services. As many as possible were followed for up to 6 years. Diagnoses included were Alzheimer&#8217;s disease, vascular dementia, mixed Alzheimer&#8217;s and vascular dementia, Parkinson&#8217;s disease dementia, dementia with Lewy bodies, and frontotemporal dementia. Self- and informant-rated versions of the Quality of Life in Alzheimer&#8217;s Disease scale were used. A joint model, incorporating a mixed effects model with random effects and a survival model to account for dropout, was used to examine whether quality of life varied by dementia type at the time of diagnosis and how trajectories changed over time.<\/p>\n<h4>Results:<\/h4>\n<p>The strongest associations between dementia type and quality of life were seen around the time of diagnosis. For both self-ratings and informant ratings, people with Parkinson&#8217;s disease dementia or dementia with Lewy bodies had lower quality of life scores. Over time there was little change in self-rated scores across all dementia types (-\u20090.15 points per year). Informant-rated scores declined over time (-\u20091.63 points per year), with the greatest decline seen in ratings by informants for people with dementia with Lewy bodies (-\u20092.18 points per year).<\/p>\n<h4>Conclusions:<\/h4>\n<p>Self-rated quality of life scores were relatively stable over time whilst informant ratings showed a steeper decline. People with Parkinson&#8217;s disease dementia or dementia with Lewy bodies report particularly low levels of quality of life, indicating the importance of greater attention to the needs of these groups.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;May&#8221; tab_id=&#8221;1738851818333-aa0fdfdc-823f&#8221;][vc_column_text]For the publication of the month May, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p>Giebel, C., Harding, E., Volkmer, A., Chirico, I., Hopper, L., Szczesniak, D., et al. (2024). The landscape of inequalities in dementia across Europe: First insights from the INTERDEM taskforce. <em>International Journal of Geriatric Psychiatry, 39<\/em>(5), e6096.<\/p>\n<p>See full text <a href=\"https:\/\/doi.org\/10.1002\/gps.6096\">here<\/a><\/p>\n<\/div>\n<section><\/section>\n<section id=\"gps6096-sec-0001\" class=\"article-section__content\">Getting a diagnosis of dementia does not equate to equitable access to care. People with dementia and unpaid carers face many barriers to care, which can vary within, and across, different countries and cultures. With little evidence across different countries, the aim of this scoping exercise was to identify the different and similar types of inequalities in dementia across Europe, and provide recommendations for addressing these.This study involved a brief online survey with INTERDEM and INTERDEM Academy members across Europe, and with members of Alzheimer Europe&#8217;s European Working Group of People with Dementia and Carers in February and March 2023. Members were asked about whether inequalities in dementia care existed within their country; if yes, to highlight three key inequalities. Responses on barriers were coded into groups, and frequencies of inequalities were calculated. Highlighted inequalities were discussed and prioritised at face-to-face and virtual consensus meetings in England, Ireland, Italy, and Poland, involving people with dementia, unpaid carers, health and social care providers, and non-profit organisations.<\/section>\n<section id=\"gps6096-sec-0003\" class=\"article-section__content\">Forty-nine academics, PhD students, people with dementia and unpaid carers from 10 countries (Belgium, Denmark, Germany, Greece, Ireland, Italy, Poland, Malta, Netherlands, UK) completed the survey. The most frequently identified inequalities focused on unawareness and lack of information, higher level system issues (i.e. lack of communication among care professionals), lack of service suitability, and stigma. Other barriers included workforce training and knowledge, financial costs, culture and language, lack of single-point-of-contact person, age, and living location\/postcode lottery. There was general consensus among people living dementia and care providers of unawareness as a key barrier in different European countries, with varied priorities in Ireland depending on geographical location.<\/section>\n<section><\/section>\n<section id=\"gps6096-sec-0004\" class=\"article-section__content\">These findings provide a first insight on dementia inequalities across Europe, generate cross-country learnings on how to address these inequalities in dementia, and can underpin further solution-focused research that informs policy and key decision makers to implement changes.<\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;April&#8221; tab_id=&#8221;1738851818470-26067bee-5d78&#8243;][vc_column_text]For the publication of the month April, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Kristensen, F., Gregersen, R.,<\/strong> Pedersen, M. K., Skrubbeltrang, C., &amp; Thuesen, J. (2024). Rehabilitation Needs in People living with Dementia: A Scoping Review of Assessment Tools and Procedures. <em>Aging and Health Research<\/em>, 100187.<\/p>\n<p>See <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S2667032124000088\">here<\/a><\/p>\n<\/div>\n<p>Rehabilitation is increasingly being integrated into dementia care. To provide person-centred rehabilitation interventions, a systematic assessment of rehabilitation needs is essential. This scoping review was conducted to identify and map the characteristics of tools and procedures used by health professionals to assess the rehabilitation needs of people living at home with early-stage dementia. A comprehensive literature search was conducted in 2018, 2020, 2021 and 2023 of PubMed, Embase, PsycInfo, CINAHL and Prospero. Identified tools were classified according to the World Health Organization\u2019s ICF classification and subjective perspectives. Procedures were classified according to place, time and the people involved in the needs assessment. Eleven papers were included. The population considered was predominantly people diagnosed with Alzheimer\u2019s dementia. The identified tools mainly assessed problems with functioning, predominantly focusing on activity and less frequently on participation. One tool had a focus on the environment. None of the tools focused on personal factors. Subjective perspectives were mainly assessed in terms of goal setting. Procedures were poorly described. While several needs assessment tools were identified, procedures for needs assessment were sparsely described in the included papers. This scoping review indicates that a strengthened focus on needs assessment is needed in future research and practice.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;March&#8221; tab_id=&#8221;1738851818645-692f0b23-a598&#8243;][vc_column_text]For the publication of the month March, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p><strong>Christie HL<\/strong>, <strong>Atefi G,<\/strong> C<strong>raven MP, Orrell M, de Vugt ME<\/strong>. EmpRess: an eHealth implementation readiness checklist for dementia developed through an interview study of stakeholder needs. <em>Aging Ment Health<\/em>. 2024 Mar 11:1-9. doi: 10.1080\/13607863.2024.2323951.<\/p>\n<\/div>\n<p>See <a href=\"https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/13607863.2024.2323951\">here<\/a><\/p>\n<div id=\"\" class=\"NLM_sec NLM_sec_level_1\">\n<p id=\"d1e165\" class=\"section-heading-2\">This study aimed to create a tool to assess eHealth interventions for dementia by adapting an existing implementation readiness (ImpRess) checklist that assessed manualised interventions.<\/p>\n<\/div>\n<p id=\"d1e168\" class=\"section-heading-2\">In Part 1, online semi-structured interviews with individual stakeholders (<i>N<\/i>\u2009=\u20099) with expertise in eHealth and dementia were conducted (response rate 83%). The Nonadoption, Abandonment, and challenges to the Scale-Up, Spread, and Sustainability of Health and care technologies (NASSS) framework was applied, both to guide the construction of the interview guide, as well as to use its subdomains as codes in the deductive qualitative thematic analysis. Respondents were industry professionals (<i>n<\/i>\u2009=\u20093), researchers (<i>n<\/i>\u2009=\u20093), policy officers (<i>n<\/i>\u2009=\u20092), and a clinician (<i>n<\/i>\u2009=\u20091). In Part 2, the items of the original ImpRess checklist were supplemented by items that covered determinants discussed in the interviews, that were not included in the original checklist.<\/p>\n<p id=\"d1e187\" class=\"section-heading-2\">The main findings from the interviews included: Participants\u2019 preference for a non-dementia-specific, more general approach to the checklist; the importance of searching for shared values with implementers; and the need for more systematic monitoring of implementation.<\/p>\n<p id=\"d1e190\" class=\"section-heading-2\">The EmpRess checklist applies an inclusive design approach. The checklist will help evaluate the implementation determinants of eHealth interventions for dementia and provide up-to-date information on what is, and is not, working in eHealth for dementia care. [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;February&#8221; tab_id=&#8221;1738851818786-237f676f-f729&#8243;][vc_column_text]For the publication of the month February, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p>Cooper, C., Vickerstaff, V., Barber, J., Phillips, R., Ogden, M., Walters, K., . . . Budgett, J. (2024). A psychosocial goal-setting and manualised support intervention for independence in dementia (NIDUS-Family) versus goal setting and routine care: a single-masked, phase 3, superiority, randomised controlled trial. Lancet Healthy Longev, 5(2), e141-e151.<\/p>\n<\/div>\n<p>See <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/38310894\/\">here<\/a><\/p>\n<p>Although national guidelines recommend that everyone with dementia receives personalised post-diagnostic support, few do. Unlike previous interventions that improved personalised outcomes in people with dementia, the NIDUS-Family intervention is fully manualised and deliverable by trained and supervised, non-clinical facilitators. We aimed to investigate the effectiveness of home-based goal setting plus NIDUS-Family in supporting the attainment of personalised goals set by people with dementia and their carers.<\/p>\n<p>The authors did a two-arm, single-masked, multi-site, randomised, clinical trial recruiting patient-carer dyads from community settings. We randomly assigned dyads to either home-based goal setting plus NIDUS-Family or goal setting and routine care (control). Randomisation was blocked and stratified by site (2:1; intervention to control), with allocations assigned via a remote web-based system. NIDUS-Family is tailored to goals set by dyads by selecting modules involving behavioural interventions, carer support, psychoeducation, communication and coping skills, enablement, and environmental adaptations. The intervention involved six to eight video-call or telephone sessions (or in person when COVID-19-related restrictions allowed) over 6 months, then telephone follow-ups every 2-3 months for 6 months. The primary outcome was carer-rated goal attainment scaling (GAS) score at 12 months. Analyses were done by intention to treat. This trial is registered with the ISRCTN registry, ISRCTN11425138.<\/p>\n<p>Between April 30, 2020, and May 9, 2021, we assessed 1083 potential dyads for eligibility, 781 (72\u00b71%) of whom were excluded. Of 302 eligible dyads, we randomly assigned 98 (32\u00b74%) to the control group and 204 (67\u00b75%) to the intervention group. The mean age of participants with dementia was 79\u00b79 years (SD 8\u00b72), 169 (56%) were women, and 133 (44%) were men. 247 (82%) dyads completed the primary outcome, which favoured the intervention (mean GAS score at 12 months 58\u00b77 [SD 13\u00b70; n=163] vs 49\u00b70 [14\u00b71; n=84]; adjusted difference in means 10\u00b723 [95% CI 5\u00b775-14\u00b771]; p&lt;0\u00b7001). 31 (15\u00b72%) participants in the intervention group and 14 (14\u00b73%) in the control group experienced serious adverse events.<\/p>\n<p>NIDUS-Family is the first readily scalable intervention for people with dementia and their family carers that improves attainment of personalised goals. We therefore recommend that it be implemented in health and care services.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1738851818940-ff194b91-30e3&#8243;][vc_column_text]For the publication of the month January, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\">\n<p>Nimmons D, Aker N, Burnand A, Jordan KP, Cooper C, Davies N, <strong>Manthorpe J<\/strong>, Chew-Graham CA, Kingstone T, Petersen I, Walters K. <a href=\"https:\/\/www.semanticscholar.org\/paper\/Clinical-effectiveness-of-pharmacological-and-for-A-Nimmons-Aker\/fc4a2ba0a98c0da5b607f287d62aa58ec17ea1b4\">Clinical effectiveness of pharmacological and non-pharmacological treatments for the management of anxiety in community dwelling people living with dementia: A systematic review and meta-analysis<\/a>. Neurosci Biobehav Rev. 2024 Feb;157:105507. doi: 10.1016\/j.neubiorev.2023.105507. Epub 2023 Dec 13. PMID: 38097097.<\/p>\n<\/div>\n<p>People living with dementia commonly experience anxiety, which is often challenging to manage. We investigated the effectiveness of treatments for the management of anxiety in this population. We conducted a systematic review and meta-analysis of randomised controlled trials, and searched EMBASE, CINAHL, MEDLINE and PsycInfo. We estimated standardised mean differences at follow-up between treatments relative to control groups and pooled these across studies using random-effects models where feasible. Thirty-one studies were identified. Meta-analysis demonstrated non-pharmacological interventions were effective in reducing anxiety in people living with dementia, compared to care as usual or active controls. Specifically, music therapy (SMD-1.92(CI:-2.58,-1.25)), muscular approaches (SMD-0.65(CI:-1.02,-0.28)) and stimulating cognitive and physical activities (SMD-0.31(CI:-0.53,-0.09)). Pharmacological interventions with evidence of potential effectiveness included Ginkgo biloba, probiotics, olanzapine, loxapine and citalopram compared to placebo, olanzapine compared to bromazepam and buspirone and risperidone compared to haloperidol. Meta-analyses were not performed for pharmacological interventions due to studies&#8217; heterogeneity. This has practice implications when promoting the use of more non-pharmacological interventions to help reduce anxiety among people living with dementia.[\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion]<\/div><\/div><div id=\"sc_accordion_item_Tue Oct 29 2024 15:16:15 GMT+0000 (Greenwich Mean Time)_1\" class=\"sc_accordion_item even\"><h4 class=\"sc_accordion_title\">2023<\/h4><div class=\"sc_accordion_content\">[vc_tta_accordion][vc_tta_section title=&#8221;December&#8221; tab_id=&#8221;1730738000271-a167987f-0f6c&#8221;][vc_column_text]For the publication of the month December, the website committee selected the following publication:<\/p>\n<div class=\"citation-text\"><strong>Dupont C, Gilissen J, Dassen FCM, Branco RM, Heins P, Heffernan E, Bartels SL.<\/strong> (2023). Supporting early-career dementia researchers: Identifying support needs and ways forward via a European study. Alzheimers Dement. doi: 10.1002\/alz.13530. Epub ahead of print. PMID: 37983858.<\/div>\n<p>See <a href=\"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/10.1002\/alz.13530\">here<\/a><\/p>\n<section id=\"alz13530-sec-0010\" class=\"article-section__content\">Early-career researchers contribute significantly to dementia research and clinical practice. However, a growing group of early-career dementia researchers (ECDRs) lack appropriate support throughout their careers. Thus, this study aimed to (i) explore support needs, (ii) determine recommendations, and (iii) set the agenda for organizations to better support ECDRs. An iterative, explanatory sequential mixed-methods design was applied. First ECDRs&#8217; needs were identified using an online survey informed by the Vitae Researcher Development Framework. Next, priority areas were selected and explored qualitatively with ECDRs in two workshops, utilizing the World Caf\u00e9 methodology. Sixty-five ECDRs throughout Europe completed the survey, with the majority reporting that greater support is needed in terms of funding and career opportunities, social support and well-being, and \u201cwide-reaching\u201d dissemination. Based on the findings, six recommendations for support organizations, funding bodies, and universities to better support ECDRs are formulated, each intended for specific target audiences.<\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;November&#8221; tab_id=&#8221;1730738000321-6ed2e2ba-d531&#8243;][vc_column_text]For the publication of the month November, the website committee selected the following publication:<\/p>\n<p>Taranr\u00f8d, L. B., <strong>Kirkevold<\/strong>, \u00d8., Pedersen, I., &amp; <strong>Eriksen<\/strong>, S. (2023). The transition of care from farm-based daycare for people with dementia: The perspective of next of kin. <em>International journal of qualitative studies on health and well-being, 18<\/em>(1), 2228047.<\/p>\n<p>See <a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/38016039\/\">https:\/\/pubmed.ncbi.nlm.nih.gov\/38016039\/<\/a><\/p>\n<p><strong class=\"sub-title\">Purpose:\u00a0<\/strong>The aim of the present study was to explore the next of kin&#8217;s experiences with the transition for people with dementia from a farm-based daycare (FDC) to another service in the municipality.<\/p>\n<p><strong class=\"sub-title\">Methods:\u00a0<\/strong>The study has a qualitative, descriptive design. Eight semi-structured interviews with next of kin were conducted. The data were analysed in accordance with content analysis.<\/p>\n<p><strong class=\"sub-title\">Results:\u00a0<\/strong>Through the analysis three main categories were developed: (1) Bearing the burden, (2) Being in transition, and (3) Feeling supported. The transition period was highly stressful for next of kin due to the exacerbation of their relatives&#8217; dementia symptoms. The next of kin focussed on optimizing the everyday lives of their relatives with dementia, even at the expense of their own well-being. Most participants experienced support from FDC, healthcare services and their informal network.<\/p>\n<p><strong class=\"sub-title\">Conclusions:\u00a0<\/strong>The study contributes important insights into the next of kin&#8217;s experiences. Good quality service, close dialog, information, and support between the different part in the transition process, can be useful for the further development of services with good quality and to reduce the negative effects of care on next of kin.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;October&#8221; tab_id=&#8221;1730738003688-9ad56b92-1e08&#8243;][vc_column_text]For the publication of the month October, the website committee selected the following publication:<\/p>\n<p><span class=\"authors\"><span class=\"author\"><span class=\"contrib\"><strong><span class=\"authorName\">Kohl<\/span><\/strong><span class=\"separator\"><strong>, G.<\/strong>, <\/span><\/span><span class=\"contrib\"><span class=\"authorName\">Koh<\/span><span class=\"separator\">, W., <\/span><\/span><span class=\"contrib\"><span class=\"authorName\"><span class=\"separator\">\u00a0<\/span>Scior, K.<\/span><span class=\"separator\"> &amp;\u00a0<\/span><\/span><span class=\"contrib\"><span class=\"authorName\"><span class=\"separator\">\u00a0<\/span><strong>Charlesworth, G.<\/strong><\/span><\/span><\/span><\/span>\u00a0<span class=\"date\">(2023)<\/span>\u00a0<span class=\"art_title\">Self-Disclosure and Social Media Use among Younger and Older People with Dementia: An Internet-Mediated Mixed-Methods Study,<\/span>\u00a0<span class=\"serial_title\">International Journal of Human\u2013Computer Interaction,<\/span>\u00a0<span class=\"doi_link\">DOI:\u00a0<a href=\"https:\/\/doi.org\/10.1080\/10447318.2023.2265728\">10.1080\/10447318.2023.2265728<\/a><\/span><\/p>\n<p>This mixed-methods study explores self-disclosure by people with dementia on social media, comparing patterns and purpose of use by those aged 65 and above versus those aged under 65. Of 143 internet-using respondents of an online survey, 77 (aged between 44 and 88\u2009years) were users of social media. Facebook was the most commonly used platform (95%), followed by Twitter, Instagram, LinkedIn, YouTube, and TikTok. People with dementia aged under 65 used more platforms and used social media more frequently than older counterparts. Results show that younger users shared dementia-related information for purposes of advocacy and awareness whereas older users prioritized the dementia journey. Social media gives people with dementia a voice to share their experiences, raise awareness, and support themselves and other individuals affected by the condition.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;September&#8221; tab_id=&#8221;1730738006519-75f0c7fc-24e9&#8243;][vc_column_text]For the publication of the month September, the website committee selected the following publication:<\/p>\n<p>Harwood, R. H., <strong>Goldberg, S. E<\/strong>., Brand, A., van Der Wardt, V., Booth, V., <strong>Di Lorito, C<\/strong>., Hoare, Z., Hancox, J., Bajwa, R., <strong>Burgon, C.<\/strong>, Howe, L., Cowley, A., Bramley, T., Long, A., Lock, J., Tucker, R., Adams, E. J., <strong>O&#8217;Brien, R.<\/strong>, Kearney, F., Kowalewska, K., \u2026 Masud, T. (2023). Promoting Activity, Independence, and Stability in Early Dementia and mild cognitive impairment (PrAISED): randomised controlled trial. BMJ (Clinical research ed.), 382, e074787. <a href=\"https:\/\/doi.org\/10.1136\/bmj-2023-074787\">https:\/\/doi.org\/10.1136\/bmj-2023-074787<\/a><\/p>\n<section id=\"gps5983-sec-0001\" class=\"article-section__content\">This randomised controlled trial examined the effectiveness of the Promoting activity, Independence, and Stability in Early Dementia and mild cognitive impairment (PrAISED) intervention, when compared with usual care and a falls risk assessment. This exercise and functional activity therapy intervention was delivered in participant\u2019s homes and communities at five sites in the United Kingdom. The participants were 365 adults with early dementia or MCI who were living at home, as well as their relatives or carers. The dementia-specific intervention entailed a tailored and progressive rehabilitation programme that targeted strength, balance, physical activity, undertaking activities of daily living, and psychological needs. Intervention participants (n=183) received a median of 31 PrAISED therapy sessions and completed an average of 121 minutes of PrAISED exercise per week. It was necessary to adapt procedures during the covid-19 pandemic. The primary outcome was score on the carer-reported disability assessment for dementia scale 12 months after randomisation, and data were available for 149 intervention and 141 control participants. Secondary outcomes included falls between months 4 and 15, activities of daily living, physical activity, quality of life, frailty, and cognition. Scores on the primary outcome measure did not differ between groups (adjusted mean difference -1.3, 95% confidence interval -5.2 to 2.6; Cohen&#8217;s d effect size -0.06, 95% confidence interval -0.26 to 0.15; P=0.51). Between months 4 and 15, the intervention group experienced 79 falls and the control group 200 falls (adjusted incidence rate ratio 0.78, 95% confidence interval 0.5 to 1.3; P=0.3). The authors concluded that, despite good uptake, the intervention did not improve activities of daily living, physical activity, or quality of life; reduce falls; or improve any other secondary health status outcomes. Future studies should examine alternative approaches to maintaining physical ability and wellbeing in people living with dementia.<\/section> [\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;August&#8221; tab_id=&#8221;1730738043550-cc7b633d-73e4&#8243;][vc_column_text]For the publication of the month August, the website committee selected the following publication:<\/p>\n<p><strong><span style=\"font-size: 12.0pt; font-family: 'Calibri',sans-serif;\">Huizenga J<\/span><\/strong><span style=\"font-size: 12.0pt;\">, Scheffelaar A, Bleijenberg N, Wilken JP, <strong><span style=\"font-family: 'Calibri',sans-serif;\">Keady J<\/span><\/strong>, Van Regenmortel T. (2023). What matters most: Exploring the everyday lives of people with dementia.\u00a0International Journal of Geriatric Psychiatry,\u00a038(8), e5983.<\/span><\/p>\n<section id=\"gps5983-sec-0001\" class=\"article-section__content\">This study explores how people with dementia experience their everyday lives, providing insight into what is important to them to live the best they can at home. Open interviews together with home tours and walking interviews were conducted with 15 people with dementia. Data collection included one to three sessions per participant. Six dimensions of what matters most in everyday life were identified: 1) Engaging in meaningful activities, which included routines, household chores, leisure, day activities, and volunteering or work; 2) Keeping a sense of connection, in relationships within the home, with family, friends, groups, and the neighbourhood; 3) Having a sense of belonging, which included attachments inside and outside the home, and to cherished objects; 4) Connecting to self, which included the ability to reflect on past experiences, live in the present moment and anticipate the future; 5) Adjusting to ongoing changes, which included alterations in sensory perceptions, perceptions of the physical environment, and navigating shifts in interpersonal dynamics; 6) Being open to help and support, from professionals, community and society.<\/section>\n<p><span style=\"font-size: 12.0pt;\"> Available <a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/gps.5983\" target=\"_blank\" rel=\"noopener\">here<\/a><\/span>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;July&#8221; tab_id=&#8221;1730738044733-72b0a8f9-c2f2&#8243;][vc_column_text]For the publication of the month July, the website committee selected the following publication:<\/p>\n<p>Salcher-Konrad M, Shi C, Patel D, McDaid D, Astudillo-Garc\u00eda CI, Bobrow K, Choy J, Comas-Herrera A, Fry A, Knapp M, Leung DKY, Lopez-Ortega M, Lorenz-Dant K, Musyimi C, Ndetei D, Nguyen TA, <strong><u>Oliveira D,<\/u><\/strong> Putra A, Vara A, <strong><u>Wong G,<\/u><\/strong> Naci H (2023) STRiDE Evidence Review Group. Research evaluating the effectiveness of dementia interventions in low- and middle-income countries: A systematic mapping of 340 randomised controlled trials. <em>Int J Geriatr Psychiatry, <\/em>38(7):e5965<\/p>\n<p>More people with dementia live in low- and middle-income countries (LMICs) than in high-income countries, but best-practice care recommendations are often based on studies from high-income countries. The authors aimed to map the available evidence on dementia interventions in LMICs (registered on PROSPERO: CRD42018106206). Randomised controlled trials (RCTs) published between 2008 and 2018 were included. A total of 11 electronic academic and grey literature databases (MEDLINE, EMBASE, PsycINFO, CINAHL Plus, Global Health, World Health Organization Global Index Medicus, Virtual Health Library, Cochrane CENTRAL, Social Care Online, BASE, MODEM Toolkit) were searched.<\/p>\n<p>A total of 340 RCTs with 29,882 (median, 68) participants, published 2008-2018 were included. Over two-thirds of the studies were conducted in China (n = 237, 69.7%). Ten LMICs accounted for 95.9% of included RCTs. The largest category of interventions was Traditional Chinese Medicine (n = 149, 43.8%), followed by Western medicine pharmaceuticals (n = 109, 32.1%), supplements (n = 43, 12.6%), and structured therapeutic psychosocial interventions (n = 37, 10.9%). Overall risk of bias was judged to be high for 201 RCTs (59.1%), moderate for 136 (40.0%), and low for 3 (0.9%).<\/p>\n<p>Evidence-generation on interventions for people with dementia or MCI and\/or their carers in LMICs is concentrated in just a few countries, with no RCTs reported in the vast majority of LMICs. The body of evidence is skewed towards selected interventions and overall subject to high risk of bias. There is a need for a more coordinated approach to robust evidence-generation for LMICs.<\/p>\n<p>Available <a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/gps.5965\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;June&#8221; tab_id=&#8221;1730738045883-16010de9-c021&#8243;][vc_column_text]For the publication of the month June, the website committee selected the following publication:<\/p>\n<p class=\"x_MsoNormal\">Ziebuhr B, Zanasi M, Bueno Aguado Y, Losada Dur\u00e1n R,\u00a0<b>Dening T<\/b>, Tournier I, Niedderer K,\u00a0<b>Diaz A,<\/b>\u00a0Druschke D, Almeida R,\u00a0Holthoff-Detto\u00a0V<sup>\u00a0<\/sup>\u00a0(2023). Living Well with Dementia: Feeling Empowered through Interaction with Their Social Environment.\u00a0<i>International Journal of Environmental Research and Public Health,<\/i> 20(12):6080.\u00a0<b><\/b><\/p>\n<p>This study aims to understand how feelings of empowerment in people living with dementia still residing at home can be promoted. The authors conducted\u00a0 interviews with 12 participants with mild-to-moderate stages of dementia in Germany and Spain as part of a European study on mindful design for dementia. Three\u00a0 categories were identified: the first category \u2018experiencing changes in personal life and coping with changes in life\u2019 covered losses and coping strategies; the second category \u2018retaining a sense of usefulness\u2018 included social participation and the need for activities with others; the third category \u2018feeling empowered\u2019 covered reflections on lifetime achievements, accomplishments in the present life, being in control and self-worth. Participants emphasised continuity and the importance of making active decisions and meaningful social contributions. Empowerment within the person living with dementia was achieved through their interactions with their social environment, including the significance of communication about their needs and wishes and enabling shared decision-making and interactions with others in reciprocity.<\/p>\n<p>Available\u00a0<a href=\"https:\/\/doi.org\/10.3390\/ijerph20126080\" target=\"_blank\" rel=\"noopener noreferrer\" data-auth=\"NotApplicable\" data-linkindex=\"1\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;May&#8221; tab_id=&#8221;1730738074193-3e105f11-3747&#8243;][vc_column_text]For the publication of the month May, the website committee selected the following publication:<\/p>\n<p>D\u00f6rner, J., H\u00fcsken, J. M., Schm\u00fcdderich, K., Dinand, C., Dichter, M. N., &amp; <strong>Halek, M.<\/strong> (2023). Perspectives on sleep of people living with dementia in nursing homes: a qualitative interview study. <em>BMC Geriatrics, <\/em>23(1), 331.<\/p>\n<p>BACKGROUND: Disturbed sleep among people living with dementia in nursing homes is widespread and is associated with diseases and all-cause mortality. This study examined the sleep of people living with dementia from their perspectives in nursing homes and that of the nurses who care for people living with dementia. METHODS: A qualitative cross-sectional study was conducted. A total of 15 people living with dementia and 15 nurses in 11 German nursing homes were enrolled in this study. Data was collected between February and August 2021 through semistructured interviews, which were audio recorded and transcribed. Thematic analyses were performed by three independent researchers. Thematic mind maps and controversial findings were discussed with the Research Working Group of People with Dementia of the German Alzheimer Association. RESULTS: Thematic analysis identified five overarching themes from the nursing home participants regarding sleep patterns: (1) characteristics of good sleep, (2) characteristics of bad sleep, (3) personal influences of people living with dementia on sleep, (4) environmental factors on sleep, and (5) sleep strategies of people living with dementia. Analysis also identified five overarching themes from the nurses participants: (1) characteristics of good sleep, (2) characteristics of bad sleep, (3) personal influences on sleep, (4) environmental factors on sleep, and (5) interventions for sleep promotion. CONCLUSIONS: The thematic analyses demonstrated that the perspectives of people living with dementia and nurses indicate the need to give more consideration to psychosocial factors and individual aspects of sleep in clinical practice. The results could also be helpful for the development of targeted assessment instruments and complex non-pharmacological interventions to promote sleep.<\/p>\n<p>Available <a href=\"https:\/\/link.springer.com\/article\/10.1186\/s12877-023-04052-4\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;April&#8221; tab_id=&#8221;1730738078717-1083db59-c567&#8243;][vc_column_text]For the publication of the month April, the website committee selected the following publication:<\/p>\n<p>Scheeres-Feitsma, TM,\u00a0van Laarhoven, AJJMK,\u00a0de Vries, R,\u00a0Schaafsma, P,\u00a0<strong>van der Steen, JT<\/strong>.\u00a0Family involvement in euthanasia or Physician Assisted Suicide and dementia: A systematic review.\u00a0<em>Alzheimer&#8217;s Dement<\/em>.\u00a02023;\u00a01-\u00a013.\u00a0<a href=\"https:\/\/doi.org\/10.1002\/alz.13094\">https:\/\/doi.org\/10.1002\/alz.13094<\/a><\/p>\n<p>This is an innovative and relevant subject. The paper describes the results of a systematic review about the involvement of family in euthanasia or physician assisted suicide (PAS) in dementia. The authors concluded that the wish for euthanasia\/PAS arises in situations of burdensome care and fear of future deterioration. The family feels entrusted with the responsibility to enact upon the death wish. In shaping this responsibility, four roles of family can be distinguished: carer, advocate, supporter, and performer. Family as in need of support themselves is understudied.<\/p>\n<p>Available <a href=\"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/10.1002\/alz.13094\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;March&#8221; tab_id=&#8221;1730738100342-b5fbf7bb-75ac&#8221;][vc_column_text]For the publication of the month March, the website committee selected the following publication:<\/p>\n<p><strong>James, T<\/strong>., Mukadam, N., Sommerlad, A., Barrera-Caballero, S., &amp; Livingston, G. (2023). Equity in care and support provision for people affected by dementia: experiences of people from UK South Asian and White British backgrounds. International Psychogeriatrics, 1-10<\/p>\n<p>This study aimed to explore the care and support received and wanted by United Kingdom (UK) South Asian and White British people affected by dementia and whether access to it is equitable. Results showed that people of the same background make differing choices about care. Equitable access to care is impacted by people&#8217;s personal resources, and people from South Asian backgrounds may experience the double disadvantage of having fewer options for care that meets their needs and fewer resources to seek care elsewhere.<\/p>\n<p>Available <a href=\"https:\/\/www.cambridge.org\/core\/journals\/international-psychogeriatrics\/article\/equity-in-care-and-support-provision-for-people-affected-by-dementia-experiences-of-people-from-uk-south-asian-and-white-british-backgrounds\/A274AA3EA1259FE9484412EFD6ECE5D4\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;February&#8221; tab_id=&#8221;1730738101578-e9b0bd1c-0de9&#8243;][vc_column_text]For the publication of the month February, the website committee selected the following publication:<\/p>\n<p>Thijssen M, Kuijer-Siebelink W, Lexis MAS, Nijhuis-van der Sanden MWG, Daniels R, <strong>Graff M<\/strong>. What matters in development and sustainment of community dementia friendly initiatives and why? A realist multiple case study. BMC Public Health.<\/p>\n<p>The aim of this study was to identify contextual factors and mechanisms that influence the development and sustainment of Dutch Dementia Friendly Initiatives, and explain how they are interrelated. To this end, a multiple case study was carried out using a realist approach. Interviews, observations, documentation and focus groups were used with professionals (<i>n<\/i>\u2009=\u200946), volunteers (<i>n<\/i>\u2009=\u200920), people with dementia (<i>n<\/i>\u2009=\u20091) and carers (<i>n<\/i>\u2009=\u20092). Findings revealed that the development and sustainment of dementia friendly initiatives require the development of a support base, collaboration, and participation of people with dementia and their carers.<\/p>\n<p>Available <a href=\"https:\/\/bmcpublichealth.biomedcentral.com\/articles\/10.1186\/s12889-023-15125-9\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1730738102853-ce0fff2f-ca64&#8243;][vc_column_text]For the publication of the month January, the website committee selected the following publication:<\/p>\n<p>Sabatini S, Martyr A, Gamble LD, Collins R, Matthews FE, Morris RG, Rusted JM, Pentecost C<strong>, Quinn C, Clare L<\/strong>; behalf of the IDEAL study team. (2023) Longitudinal Predictors of Informant-Rated Involvement of People with Dementia in Everyday Decision-Making: Findings from the IDEAL Program. J Appl Gerontol.<\/p>\n<p>This study explored informant-rated involvement of people with dementia in everyday decision-making over 2 years and whether functional, behavioural, and psychological factors related to the person with dementia and the caregiver explain variability in involvement of people with dementia in everyday decision-making. IDEAL data for 1182 people with dementia and their caregivers ws used.\u00a0 People with dementia who were female, single, and\/or whose caregiver was younger had greater involvement in everyday decision-making than those without these characteristics. Better cognition, fewer functional difficulties, fewer neuropsychiatric symptoms, less caregiver stress, and better informant-rated relationship quality were associated with higher involvement in everyday decision-making. Cognitive and functional rehabilitation, and educational resources for caregivers, could prolong involvement of people with dementia in everyday decision-making.<\/p>\n<p>Available <a href=\"https:\/\/journals.sagepub.com\/doi\/full\/10.1177\/07334648221128558\">here<\/a>[\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion]<\/div><\/div><div id=\"sc_accordion_item_Tue Oct 29 2024 15:16:15 GMT+0000 (Greenwich Mean Time)_1\" class=\"sc_accordion_item odd\"><h4 class=\"sc_accordion_title\">2022<\/h4><div class=\"sc_accordion_content\">[vc_tta_accordion][vc_tta_section title=&#8221;December&#8221; tab_id=&#8221;1730738133073-1b023874-b998&#8243;][vc_column_text]For the publication of the month December, the website committee selected the following publication:<\/p>\n<p>Ashley, L., <strong>Surr, C.<\/strong>, Kelley, R., Price, M., <strong>Griffiths, A. W.<\/strong>, Fowler, N. R., . . . Wyld, L. (2022). Cancer care for people with dementia: Literature overview and recommendations for practice and research. <em>CA Cancer J Clin, <\/em>Advance access.<\/p>\n<p>As many countries experience population aging, patients with cancer are becoming older and have more preexisting comorbidities, which include prevalent, age-related, chronic conditions such as dementia.\u00a0<em>People living with dementia<\/em>\u00a0(PLWD) are vulnerable to health disparities, and dementia has high potential to complicate and adversely affect care and outcomes across the cancer trajectory. This report offers an overview of dementia and its prevalence among patients with cancer and a summary of the research literature examining cancer care for PLWD. The reviewed research indicates that PLWD are more likely to have cancer diagnosed at an advanced stage, receive no or less extensive cancer treatment, and have poorer survival after a cancer diagnosis. These cancer disparities do not necessarily signify inappropriately later diagnosis or lower treatment of people with dementia as a group, and they are arguably less feasible and appropriate targets for care optimization. The reviewed research indicates that PLWD also have an increased risk of cancer-related emergency presentations, lower quality processes of cancer-related decision making, accessibility-related barriers to cancer investigations and treatment, higher\u00a0<em>experienced<\/em>\u00a0treatment burden and higher caregiver burden for families, and undertreated cancer-related pain. The authors propose that optimal cancer care for PLWD should focus on proactively minimizing these risk areas and thus must be highly person-centered, with holistic decision making, individualized reasonable adjustments to practice, and strong inclusion and support of family carers. Comprehensive recommendations are made for clinical practice and future research to help clinicians and providers deliver best and equitable cancer care for PLWD and their families.<\/p>\n<p>Available <a href=\"https:\/\/acsjournals.onlinelibrary.wiley.com\/doi\/full\/10.3322\/caac.21767\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;November&#8221; tab_id=&#8221;1730738133137-b32c710b-731a&#8221;][vc_column_text]For the publication of the month November, the website committee selected the following publication:<\/p>\n<p>Marques MJ, Tan EYL, <strong>Woods B<\/strong>, Jelley H, Kerpershoek L, <strong>Hopper L, Irving K,<\/strong> Bieber A, Stephan A, Sk\u00f6ldunger A, Sj\u00f6lund BM, Selbaek G, R\u00f8svik J, <strong>Zanetti O<\/strong>, Portolani DM, Mar\u00f4co J, <strong>de Vugt M, Verhey F, Gon\u00e7alves-Pereira M<\/strong>; Actifcare Consortium. Trajectories of relationship quality in dementia: a longitudinal study in eight European countries. Aging Ment Health. 2022 Nov;26(11):2307-2315. doi: 10.1080\/13607863.2021.1969641.<\/p>\n<p>In this collaborative INTERDEM article, the aim was to explore Relationship Quality (RQ) trajectories in dementia, and identify predictors of change. Longitudinal data were collected from a cohort of 350 community-dwelling people with dementia and their informal carers, participating in the Actifcare study in eight European countries. Results showed that RQ in the group of carers declined over 1 year, but RQ scores for the persons with dementia did not change. Higher stress in carers negatively influenced their baseline RQ ratings. Carer sense of coherence and being a spouse were associated with more positive baseline RQ carer assessments. Higher levels of neuropsychiatric symptoms were linked to decline in carers&#8217; RQ, whereas social support was associated with more positive RQ trajectories. The authors stress the importance of carer-perceived social support and sense of coherence, and of reducing neuropsychiatric symptoms, in maintaining a good RQ.<\/p>\n<p>Available <a href=\"https:\/\/www.tandfonline.com\/doi\/abs\/10.1080\/13607863.2021.1969641?journalCode=camh20\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;October&#8221; tab_id=&#8221;1730738133206-4e656548-7c3f&#8221;][vc_column_text]For the publication of the month\u00a0 October, the website committee selected the following publication:<\/p>\n<p>Molinari-Ulate, M., Mahmoudi, A., <strong>Franco-Mart\u00edn, M. A., &amp; van der Roest, H. G.<\/strong> (2022). Psychometric Characteristics of Comprehensive Geriatric Assessments (CGAs) for long-term care facilities and community care: A Systematic Review.\u00a0<em>Ageing Research Reviews<\/em>, 101742.<\/p>\n<p>Comprehensive Geriatric Assessments (CGAs) have been incorporated as an integrated care approach effective to face the challenges associated to uncoordinated care, risk of hospitalization, unmet needs, and care planning experienced in older adult care. This review reports on the psychometric properties and content of the CGAs for long-term and community care. Three CGAs were identified for long-term care settings and seven for community care. Evidence for good to excellent validity and reliability was reported for various instruments. Setting more specific and clear domains, associated to the special needs of the care setting, could improve informed decisions at the time of selecting and implementing a CGA. Considering the amount and quality of the evidence, the instrument development trajectory, the validation in different languages, and availability in different care settings, the authors recommend the interRAI LTCF and interRAI HC to be used for long-term facilities and community care.<\/p>\n<p>Available <a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S1568163722001842\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;September&#8221; tab_id=&#8221;1730738133318-e424dc3f-dc72&#8243;][vc_column_text]For the publication of the month\u00a0 September, the website committee selected the following publication:<\/p>\n<p>Chirico I, <strong>Giebel C, Lion K,<\/strong> Mackowiak M, <strong>Chattat R,<\/strong> Cations M, Gabbay M, Moyle W, Pappad\u00e0 A, Rymaszewska J, Senczyszyn A, Szczesniak D, Tetlow H, Trypka E, Valente M, Ottoboni G. (2022). Use of technology by people with dementia and informal carers during COVID-19: A cross-country comparison. Int J Geriatr Psychiatry. 37(9). doi: 10.1002\/gps.5801.<\/p>\n<p>This study aimed to explore the use of technology and its perceived effects across different settings and countries. The sample included 127 informal carers and 15 people with dementia from the UK, Italy, Australia and Poland. Semi-structured interviews explored participants&#8217; experiences of using technology and their perceived effects.\u00a0Three themes emerged from the data: (1) Technology kept us alive during COVID-19; (2) Remote care was anything but easy; (3) Perceived technology limitations. Many similarities emerged between countries supporting the role of technology for being socially engaged, having a routine, and staying active. However, the benefits of technology for health and psychosocial care were more limited. Across countries, barriers to the access and use of technology included lack of digital literacy, dementia severity, and lack of appropriate digital environments. Help\u00a0 from carers were also necessary and sometimes perceived as an additional burden. Furthter actions should be taken to overcome the barriers to the access and use of technology by older and vulnerable people globally.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;August&#8221; tab_id=&#8221;1730738133378-dfeb5cc0-9f85&#8243;][vc_column_text]For the publication of the month August, the website committee selected the following publication:<\/p>\n<table>\n<tbody>\n<tr>\n<td>\n<div class=\"gs_citr\" tabindex=\"0\">\n<div class=\"citation-text\">Thal\u00e9n L, Malinowsky C, Margot-Cattin I, Gaber SN, Seetharaman K, Chaudhury H, Cutchin M, Wallcook S, Anders K, Brorsson A, <strong>Nyg\u00e5rd L.<\/strong> (2022). Out-of-home participation among people living with dementia: A study in four countries. Dementia (London). 1(5):1636-1652. doi: 10.1177\/14713012221084173.<\/div>\n<div class=\"citation-actions\"><\/div>\n<\/div>\n<\/td>\n<\/tr>\n<tr>\n<th class=\"gs_cith\" scope=\"row\"><\/th>\n<td><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>Social participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada (n = 29), Sweden (n = 35), Switzerland (n = 35) and the UK (n = 64). Interviews were conducted using the Participation in ACTivities and places OUTside the Home for older adults (ACT-OUT) instrument. Participants still visited 16 (Median) places out of a possible total of 24, and they had abandoned 5 (Median) places. Neighbourhood was the place most participants still visited, whereas 50% of them had stopped going to a Sports facility, with no significant differences between country samples regarding how many participants had abandoned that place (Fisher&#8217;s exact test, p &gt; 0.01). There were significant differences between country samples in the frequency of present participation and abandonment of the Hospital, Dentist&#8217;s office, Cemetery, Garden, and Forest (Fisher&#8217;s exact test, all p &lt; 0.01). Although the participants still visited a variety of places, they had stopped going to places previously visited, which indicates reductions in participation, posing an inherent risk to well-being. The similarities and differences across samples from the four countries suggest that healthcare services and access to public transport may contribute to the complex interactional process of out-of-home participation for people living with dementia. The findings highlight the need for initiatives targeting specific types of places to support continued participation in society, especially places at a higher risk of abandonment such as places for recreation and physical activity.<\/p>\n<p>Access <a href=\"https:\/\/journals.sagepub.com\/doi\/10.1177\/14713012221084173\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;July&#8221; tab_id=&#8221;1730738133440-5130adc6-cc5b&#8221;][vc_column_text]For the publication of the month July, the website committee selected the following publication:<\/p>\n<table>\n<tbody>\n<tr>\n<td>\n<div class=\"gs_citr\" tabindex=\"0\">Telenius, E. W., Tangen, G. G., Eriksen, S., &amp; <strong>Rokstad, A. M. M<\/strong>. (2022). Fun and a meaningful routine: the experience of physical activity in people with dementia.\u00a0<i>BMC Geriatrics<\/i>,\u00a0<i>22<\/i>(1), 1-10. https:\/\/doi.org\/10.1186\/s12877-022-03149-6<\/div>\n<\/td>\n<\/tr>\n<tr>\n<th class=\"gs_cith\" scope=\"row\"><\/th>\n<td><\/td>\n<\/tr>\n<\/tbody>\n<\/table>\n<p>Physical activity is important to health and wellbeing. People with dementia are less physically active than their cognitively healthy counterparts. Reasons for this are multifaceted, and are thought to be social, psychological, and physiological. People with dementia often use services such as home care, day care centres and nursing home, and according to the stage of disease they are less or more dependent on other people to take part in activities. To develop appropriate services to this patient group, their needs and preferences regarding physical activity must be recognized. The aim of the study was therefore to provide insight into experiences with physical activity in people with dementia. METHODS: The current study is part of a larger research project on needs in people with dementia. The main project included qualitative semi-structured interviews with 35 persons with dementia. 27 of the participants talked about their experience with physical activity. In the current study, the relevant findings on this theme were analysed separately. A phenomenological hermeneutic research design was applied. RESULTS: The analysis revealed three main categories regarding experiences with physical activity. To be physically active provided positive experiences such as feelings of mastering and post-exercise euphoria. To be physically active was meaningful. The daily walk was an important routine to many, and it gave meaningful content to the day. Keeping up with activities confirmed identity. Lastly, to be active was perceived as challenging. Participants described different barriers to being physically active such as a decline of physical function, lack of motivation and being dependent on others to go out. CONCLUSIONS: Many of the participants expressed that being physically active was important to them. It is essential that informal and formal carers are aware of the role physical activity plays in the lives of many people with dementia, so that appropriate measures can be taken to assure continued active living in order to preserve health and quality of life.<\/p>\n<p>Access <a href=\"https:\/\/link.springer.com\/article\/10.1186\/s12877-022-03149-6#citeas\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;June&#8221; tab_id=&#8221;1730738133501-467b1d6e-b146&#8243;][vc_column_text]For the publication of the month June, the website committee selected the following publication:<\/p>\n<p>Gaber SN, Thal\u00e9n L, Malinowsky CW, Margot-Cattin I, Seetharaman K, Chaudhury H, Cutchin M,\u00a0Wallcook S, Kottorp A, Brorsson A, Biglieri S,\u00a0<strong>Nyg\u00e5rd L<\/strong>. Social Citizenship Through Out-of-Home Participation Among Older Adults With and Without Dementia. J Appl Gerontol. 2022&#8242; doi: 10.1177\/07334648221112425.<\/p>\n<p>There is limited empirical knowledge about how older adults living with dementia enact their social citizenship through out-of-home participation. This study aimed: (a) to investigate out-of-home participation among older adults with and without dementia in four countries and (b) to compare aspects of stability or change in out-of-home participation. Using a cross-sectional design, older adults with mild-to-moderate dementia and without dementia, aged 55 years and over, were interviewed using the Participation in ACTivities and Places OUTside the Home questionnaire in Canada (<em>n<\/em>\u00a0= 58), Sweden (<em>n<\/em>\u00a0= 69), Switzerland (<em>n<\/em>\u00a0= 70), and the United Kingdom (<em>n<\/em>\u00a0= 128). Data were analyzed using descriptive statistics and a two-way analysis of variance. After adjustment for age, diagnosis of dementia and country of residence had significant effects on total out-of-home participation (<em>p<\/em>\u00a0&lt; .01). The results contribute to policies and development of programs to facilitate social citizenship by targeting specific activities and places.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;May&#8221; tab_id=&#8221;1730738133560-005ffff7-29f8&#8243;][vc_column_text]For the publication of the month May, the website committee selected the following publication about characteristics of dementia friendly hospitals:<\/p>\n<p>Manietta C, Purwins D, Reinhard A, Knecht C, <strong>Roes M<\/strong>. <a href=\"https:\/\/bmcgeriatr.biomedcentral.com\/articles\/10.1186\/s12877-022-03103-6\">Characteristics of dementia-friendly hospitals: an integrative review<\/a>. BMC Geriatr. 2022 May 31;22(1):468. doi: 10.1186\/s12877-022-03103-6. PMID: 35641899.<\/p>\n<p>The authors did an integrative review to assess characteristics of dementia friendly hospitals. Six characteristics were found: continuity, person-centeredness, consideration of phenomena within dementia and environment, valuing relatives and knowledge and expertise within the hospital. The authors suggest to do further research to better take into account the perspectives of people with dementia.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;April&#8221; tab_id=&#8221;1730738133625-335edc6e-918f&#8221;][vc_column_text]The website committee has chosen the following as article of the month April:<\/p>\n<p>D\u2019Andrea F,\u00a0<strong>Tischler V, Dening T,<\/strong>\u00a0Churchill A. Olfactory stimulation for people with dementia: A rapid review.\u00a0<em>Dementia<\/em>. April 2022. doi:<a href=\"https:\/\/doi.org\/10.1177\/14713012221082377\">10.1177\/14713012221082377<\/a><\/p>\n<p>This study used a mixed methods approach to synthesise the evidence on olfactory stimulation in dementia care. In particular, this review (1) synthesised the qualitative and quantitative evidence on the impact of olfactory stimulation on responsive behaviours, cognitive function, communication, quality of life, pain and physical functioning; (2) assessed the effects of different types of scents used and identify, if any, patterns in their effects and (3) reviewed the different ways in which olfactory stimuli are administered and identify, if any, patterns in their effects.<\/p>\n<p>Mixed results were reported on the benefits of olfactory stimulation on responsive behaviours and cognitive function. Although the evidence available is limited, encouraging results were found regarding olfactory stimulation and increased sleep duration, food intake and improved balance. Overall, the review shows promising results that support further investigation of olfactory stimulation as a nonpharmacological intervention for people with dementia.[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;March&#8221; tab_id=&#8221;1730738133692-8fd30241-a56d&#8221;][vc_column_text]The website committee has chosen the following as article of the month March:<\/p>\n<p>Carbone, E., Piras, F., Pastore, M., &amp; <strong><u>Borella, E.<\/u><\/strong> (2022). The Role of Individual Characteristics in Predicting Short- and Long-Term Cognitive and Psychological Benefits of Cognitive Stimulation Therapy for Mild-to-Moderate Dementia.\u00a0<em>Frontiers in aging neuroscience<\/em>,\u00a0<em>13<\/em>, 811127. <a href=\"https:\/\/doi.org\/10.3389\/fnagi.2021.811127\">https:\/\/doi.org\/10.3389\/fnagi.2021.811127<\/a><\/p>\n<p>There is a growing body of evidence of the benefits of\u00a0Cognitive Stimulation Therapy\u00a0on cognitive and\u00a0emotional\/behavioural functioning, and quality of life in people\u00a0with mild-to-moderate dementia.\u00a0This study\u00a0explored\u00a0whether and to what extent individual\u00a0characteristics of people with dementia\u00a0might predict the cognitive, behavioural, and psychological benefits of CST (Italian version) in the short and longer term. A complex picture emerged, depending on the outcome measures considered. Higher education predicted larger gains in general cognitive functioning and, along with less severe depressive symptoms, in language (magnification effects). Older age was associated with positive changes in mood (compensation effects). Albeit very modestly, older age was also associated with larger gains in everyday functioning (compensation effects). Gains in quality of life were predicted by older age and lower education (compensation effects). Baseline cognitive functioning, mood and\/or behavioural symptoms broadly influenced performance too,<\/p>\n<p>but their role again depended on the outcomes considered. These findings underscore the importance of considering and further exploring how psychosocial interventions like CST are affected by individual characteristics in order to maximize their efficacy for people with dementia .<\/p>\n<p>&nbsp;<\/p>\n<p>To read <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC8787290\/\">here<\/a>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;February&#8221; tab_id=&#8221;1730738133760-75b9e155-3345&#8243;][vc_column_text]The website committee has chosen the following as article of the month February:<\/p>\n<p>Collins, R., Hunt, A.,\u00a0<strong>Quinn, C.,<\/strong>\u00a0Martyr, A., Pentecost, C., &amp;\u00a0<strong>Clare, L.<\/strong>\u00a0(2022). Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: Findings from the IDEAL programme. Dementia.\u00a0<a href=\"https:\/\/doi.org\/10.1177\/14713012211069449\">https:\/\/doi.org\/10.1177\/14713012211069449<\/a><\/p>\n<p>This study aims to identify methods, tools and approaches that could facilitate meaningful communication with people with moderate-to-severe dementia and support the inclusion of their perspectives. In-depth, semi-structured interviews were conducted with 17 dementia research and\/or care professionals with expertise in communication. Findings highlight the fundamental importance of person-centred conversations, getting to know the participant and developing a bi-directional conversation. There is evidence for the potential utility of communication, based around personalized pictures, photographs or objects, and adapting them to the preferences and abilities of each person with moderate-to-severe dementia.<\/p>\n<p>To read\u00a0<a href=\"https:\/\/eur02.safelinks.protection.outlook.com\/?url=https%3A%2F%2Fdoi.org%2F10.1177%2F14713012211069449&amp;data=04%7C01%7Calice.vaneijk%40radboudumc.nl%7C20127d9f2bfe42b5bdc308d9fc6c89f8%7Cb208fe69471e48c48d87025e9b9a157f%7C1%7C0%7C637818365501845528%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C3000&amp;sdata=dV8Cy7LZpx%2BHyyS9%2BILcRzk4BrEzJ6v5qTf8V2bnM4o%3D&amp;reserved=0\"><strong>here<\/strong><\/a><strong>\u00a0<\/strong>[\/vc_column_text][\/vc_tta_section][vc_tta_section title=&#8221;January&#8221; tab_id=&#8221;1730738133828-10fe4790-23a9&#8243;][vc_column_text]The website committee has chosen the following as article of the month January:<\/p>\n<p>Kowe A,\u00a0<strong>K\u00f6hler S<\/strong>, G\u00f6r\u00df D, Teipel S. The patients\u2019 and caregivers\u2019 perspective: In-hospital navigation aids for people with dementia- a qualitative study with a value sensitive design approach. Assist Technol. 2022 Jan 12:1-10. doi: 10.1080\/10400435.2021.2020378. Epub ahead of print. PMID: 34919023<\/p>\n<p>Orientation and navigation for people with dementia becomes increasingly difficult, due to cognitive decline. But many people are also affected by topographical disorientation, the inability to orient and navigate in the real environment. Where finding your way in a hospital is already difficult for people without cognitive impairment, it is very challenging for people with dementia. While this is a group with frequent hospitalisations and longer lengths of stays, as compared to people without cognitive impairment. This study addresses an underreported setting in dementia care research, the hospital, and aims to contribute to the development of a needs-based in-hospital navigation aid. Using a value sensitive design, the researchers interviewed 10 persons with dementia and 10 informal carers. Besides design recommendations for an in-hospital navigation aid, also values were identified for the aid to be accepted for use. According to participants the aid should ensure the safety of the person with dementia, while maintaining their independence. Additionally, the aid should be of low complexity and simple to use, and training would increase the willingness to use the aid. The use of in-hospital navigation aids potentially have high benefit, they could counteract immobilisation and rehospitalisation which is common amongst people with dementia.[\/vc_column_text][\/vc_tta_section][\/vc_tta_accordion]<\/div><\/div><div id=\"sc_accordion_item_Tue Oct 29 2024 15:16:15 GMT+0000 (Greenwich Mean Time)_1\" class=\"sc_accordion_item even\"><h4 class=\"sc_accordion_title\">2017 - 2021<\/h4><div class=\"sc_accordion_content\"><div class=\"sc_toggles sc_toggles_style_3\"><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item odd first\"><h4 class=\"sc_toggles_title\">December 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text] <h1 class=\"post_title entry-title\"><span style=\"font-size: 16px;\">Budak KB, Atefi G, Hoel V, <\/span><strong style=\"font-size: 16px;\">Laporte Uribe F, Meiland F<\/strong><span style=\"font-size: 16px;\">, Teupen S, Felding SA,\u00a0<\/span><strong style=\"font-size: 16px;\">Roes M.\u00a0<\/strong><span style=\"font-size: 16px;\">(2021) \u00a0Can technology impact loneliness in dementia? A scoping review on the role of assistive technologies in delivering psychosocial interventions in long-term care.\u00a0<\/span><em style=\"font-size: 16px;\">Disabil Rehabil Assist Technol.\u00a0<\/em><span style=\"font-size: 16px;\">9:1-13. doi: 10.1080\/17483107.2021<\/span><\/h1>\n<div class=\"post_text_area\">\n<p>In this scoping review the authors aimed to\u00a0identify assistive technologies which could be promising in addressing loneliness in people living with dementia in long-term care. From all the included 24 publications, only one has directly measure the loneliness. However, the outcomes focusing on\u00a0behaviour, engagement, and mood measures indicate that delivering psychosocial interventions via assistive technologies, including social robots and multimedia computer systems, have the potential to impact loneliness in people living with dementia in LTC.<\/p>\n<p>To read\u00a0<a href=\"https:\/\/pubmed.ncbi.nlm.nih.gov\/34752177\/\">here<\/a><\/p>\n<\/div> [\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">October 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following as article of the month October: Stamou, V., La Fontaine, J., O\u2019Malley, M., Jones, B.,\u00a0<strong>Parkes, J<\/strong>., Carter, J., &amp;\u00a0<strong>Oyebode, J.\u00a0<\/strong>R. (2022). Helpful post-diagnostic services for young onset dementia: Findings and recommendations from the Angela project.\u00a0<em>Health &amp; social care in the community, 30<\/em>(1), 142-153. doi: 10.1111\/hsc.13383<\/p>\n<p>There is a significant lack of evidence regarding optimum models for service provision in young onset dementia (YOD). Our study aim was to gather detailed information about services experienced as helpful by those with YOD and family carers. The objective was to identify the core features of these services to inform service design, delivery and improvements. A qualitative approach based on appreciative inquiry was used, posing open-ended questions about services experienced as helpful, as part of a national UK survey of people with YOD and carers. We used inductive thematic analysis to analyse the free-text responses. The resulting template was used as a basis for analysis of in-depth follow-up interviews, conducted to acquire greater in-depth understanding. Two hundred and thirty-three survey respondents provided 856 examples of helpful support. Twenty-four follow-up interviews were conducted (two with dyads, so 26 participants in total: 8 with people with YOD, 14 with carers, 2 with dyads). Twelve themes capturing the features of helpful services were clustered into three super-ordinate themes. \u2018Person-centredness\u2019 reflects micro levels of person-professional interaction (positive attitude, flexibility, collaborative, user-friendly materials, and in-person). \u2018Functional consistency\u2019 captures the meso level, demonstrating that services were helpful when organised consistently with needs (age-appropriate, holistic, responsive, and accessible). \u2018Organisational coherence\u2019, at the macro level, emphasises the need for service integration, specialist services and service continuity. Key conclusions are that the needs for flexibility and a collaborative stance may be particularly important for those under 65\u00a0years with dementia, who have full lives and are used to being in control; to be age-appropriate, helpful services need to provide activities and opportunities suitable for active middle-aged people; and to be holistic, services need to provide for needs associated with rare dementias and be family-centred. Specialist services need to be commissioned and arrangements need to be stable over time to enable continuity.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">September 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<strong>Capstick, A., <\/strong>Dennison, A., <strong>Oyebode, J., <\/strong>Healy, L.,<strong> Surr, C., <\/strong>Parveen, S., Sass, C. &amp; Drury, M. (2021). Drawn from life: Cocreating narrative and graphic vignettes of lived experience with people affected by dementia. <em>Health Expectations<\/em>, <em>24<\/em>(5), 1890-1900. <a href=\"https:\/\/doi.org\/10.1111\/hex.13332\">https:\/\/doi.org\/10.1111\/hex.13332<\/a><\/p>\n<p>This study aimed to adapt the Patient and Public Involvement process to make participation in cocreation by people living with dementia accessible and meaningful across a spectrum of cognitive abilities. Nine people living with dementia and five family members participated in this study. Narrative elicitation, informal conversation\u00a0and observation were used to cocreate three vignettes based on group members&#8217; personal experiences of dementia services. Each vignette was produced in both narrative and graphic formats. Results show it was possible to adapt the PPI process so that not only family members and people with milder cognitive difficulties could participate, but also those with more pronounced cognitive problems whose voices are less often heard.<\/p>\n<p>To read <a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC8483207\/\">here<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">August 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<strong>Lion, K., Szcze\u015bniak, D., Evans, S., Evans, S., Farina, E., Brooker, D., Charrat, R, Meiland, F., Rymaszewska, J. (2021). <\/strong>Can we reduce the stigmatisation experience with psychosocial interventions? An investigation of the meeting centre support programme impact on people with cognitive impairments.\u00a0<em>European Psychiatry,<\/em>\u00a0<em>64<\/em>(S1), S137-S137. doi:10.1192\/j.eurpsy.2021.378<\/p>\n<p><strong>\u00a0<\/strong>This study aimed to investigate the stigmatisation level among people with dementia and mild cognitive impairment (MCI) in Poland, Italy and the United Kingdom and assess the role of the Meeting Centre Support Programme (MCSP) in decreasing stigmatisation. The authors investigated outcomes for 114 people who participated in the MCSP or usual care (UC) using a pre\/post-test control group study design. Level of stigmatisation was assessed with the Stigma Impact Scale: neurological impairment (SIS). Results suggest that stigmatisation among people with dementia and MCI is complex and seems culturally dependent. There is a great opportunity in psychosocial interventions to reduce the burden of stigma among people with dementia which requires further investigation.<\/p>\n<p>Can be read <a href=\"https:\/\/www.cambridge.org\/core\/journals\/european-psychiatry\/article\/can-we-reduce-the-stigmatisation-experience-with-psychosocial-interventions-an-investigation-of-the-meeting-centre-support-programme-impact-on-people-with-cognitive-impairments\/4A01A0F7098E3B1F90B78BC04FBC1470\">here<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">July 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected for publication of the month July:<\/p>\n<p><em><strong>The prevalence of young onset dementia: A systematic review and meta-analysis.<\/strong><\/em>\u00a0<a href=\"https:\/\/doi.org\/10.1002\/alz.042738\" target=\"_blank\" rel=\"noreferrer noopener\">https:\/\/doi.org\/10.1002\/alz.042738<\/a><\/p>\n<p>How common is young-onset dementia? In JAMA Neurology, a meta-analysis\u00a0of Hendriks and colleagues (Maastricht University) including\u00a074 studies encompassing 2.8 million adults ages 30 to 64\u00a0has been published. Overall, they estimate 119 per 100.000 people develop young-onset dementia, amounting to 3.9 million cases worldwide[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">June 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected for publication of the month June:<\/p>\n<p>Diaz A, Gove D, Nelson M, Smith M, Tochel C, Bintener C, Ly A, Bexelius C, Gustavsson A, Georges J, Gallacher J, Sudlow C.\u00a0<em><strong>Conducting public involvement in dementia research: The contribution of the European Working Group of People with Dementia to the ROADMAP project.<\/strong><\/em>\u00a0Health Expect. 2021 Jun;24(3):757-765. doi:\u00a0<a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/full\/10.1111\/hex.13246\" target=\"_blank\" rel=\"noreferrer noopener\">10.1111\/hex.13246.<\/a><\/p>\n<p>One of the goals of the ROADMAP (acronym for \u2018real world outcomes across the Alzheimer\u2019s Disease spectrum for better care: multi-modal data access platform\u2019) project was to identify outcomes perceived important for people with dementia and their caregivers. The European Working Group of People with Dementia (EWGPWD) were invited to participate on the ROADMAP project and e.g. provide feedback on project materials and insight into terminology. In-person consultations with people with dementia and caregivers were organized. The EWGPWD promoted a better understanding of concepts around disease progression and how researchers might approach measuring and interpreting findings, among other important results. The role of the working group (in ROADMAP) showed to be highly influential.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">May 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee chose as publication of the month May:\u00a0<a href=\"https:\/\/interdem.org\/wp-content\/uploads\/Pappada-etal-2021.-Syst-review-ict-pwd-carers-covid_Frontiers-technology.pdf\">Pappad\u00e0 et al. (2021) about Assistive technologies in Dementia Care<\/a>.<\/p>\n<p>The pandemic showed the potential of assistive technologies in supporting people with dementia and their carers. These technologies can help to improve dementia care. In this article a review of reviews was conducted regarding technological support for the mentioned target group, alongside a review of the studies run during the first pandemic wave.<\/p>\n<p>30 Reviews and 9 new studies are summarized according to target group and type of technology. Benefits were found for persons with dementia (staying in touch with others, stimulate cognitive functions or sustain daily living and instrumental activities) and carers (mental health, skills learning, and social aspects). The quality of the reviews was high, there was much methodological heterogeneity among the studies.<\/p>\n<p>The authors conclude that technologies were well-accepted and can be valuable in bypassing physical and environmental problems both during regular times and during future pandemic waves.<\/p>\n<p>Full reference:\u00a0Pappad\u00e0 A, Chattat R, Chirico I, Valente M and Ottoboni G (2021) Assistive Technologies in Dementia Care: An Updated Analysis of the Literature. Front. Psychol. 12:644587. doi: 10.3389\/fpsyg.2021.644587[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">April 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected for publication of the month April:<\/p>\n<p>Chirico, I., Ottoboni, G., Valente, M. and Chattat, R. (2021), Children and young people&#8217;s experience of parental dementia: A systematic review. Int J Geriatr Psychiatry.\u00a0<a href=\"https:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/gps.5542\">\u00a0https:\/\/doi.org\/10.1002\/gps.5542<\/a><\/p>\n<p>Increasing numbers of\u00a0 young people have a parent with dementia (young onset dementia). While there is extensive literature on the experiences and needs of spouses\/partners and adult children of people with dementia,\u00a0no systematic review has been conducted on the psychosocial impact of parental dementia on young people\u2019s development.\u00a0Young people living and\/or caring for a parent with dementia are likely to experience significant changes in family relationships in terms of providing significant support to both parents and keeping family together.<strong>\u00a0<\/strong>Parental dementia is likely to affect young people\u2019s choices, time perspectives and life planning in relation to education\/career, mobility and personal lives.<strong>\u00a0<\/strong>Appropriate support and care services are urgently needed to suit the needs of this population within a \u2018whole family\u2019 approach.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 25 2021 10:22:48 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">March 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]Horstk\u00f6tter, D., Deckers, K., &amp; K\u00f6hler, S. (2021). Primary Prevention of Dementia: An Ethical Review. <em>J Alzheimers Dis, 79<\/em>(2), 467-476. doi: 10.3233\/jad-201104<\/p>\n<p>Dementia poses important medical and societal challenges, and of all health risks people face in life, dementia is one of the most feared. Recent research indicates that up to about 40% of all cases of dementia might be preventable. A series of environmental, social, and medical risk-factors have been identified that should be targeted from midlife onwards when people are still cognitively healthy. At first glance, this seems not merely advisable, but even imperative. However, these new developments trigger a series of new ethical questions and concerns which have hardly been addressed to date. Pro-active ethical reflection, however, is crucial to ensure that the interests and well-being of those affected, ultimately all of us, are adequately respected. This is the goal of the current contribution. Against the background of a concrete case in primary dementia prevention, it provides a systematic overview of the current ethical literature and sketches an ethical research agenda. First, possible benefits of increased well-being must be balanced with the burdens of being engaged in particularly long-term interventions for which it is unclear whether they will ever pay out on a personal level. Second, while knowledge about one&#8217;s options to maintain brain health might empower people, it might also undermine autonomy, put high social pressure on people, medicalize healthy adults, and stigmatize those who still develop dementia. Third, while synergistic effects might occur, the ideals of dementia prevention might also conflict with other health and non-health related values people hold in life.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Mar 22 2021 09:27:11 GMT+0100 (hora est\u00e1ndar de Europa central)_10\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">February 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]Emma Wolverson et al. \u201cThe language of behaviour changes in dementia: A mixed methods survey exploring the perspectives of people with dementia, published in\u00a0the Journal of Advanced Nursing (JAN).<\/p>\n<p>The study aimed to explore the opinions of people with dementia, about the language used to describe changes in behaviour associated with dementia and used\u00a0a human rights approach\u00a0in a mixed methods convergent parallel synthesis design.\u00a0People with dementia raised concerns about the language used to describe changes in behaviour that can occur in dementia. Although there was no agreement on terminology, the preference towards terms reflecting the unmet needs likely to underline perceived changes in behaviour.\u00a0\u00a0There is scope for improvements in the language used for this paradigm in both research and practice.<\/p>\n<p><a href=\"https:\/\/eur02.safelinks.protection.outlook.com\/?url=https%3A%2F%2Fdoi.org%2F10.1111%2Fjan.14787&amp;data=04%7C01%7CAlice.vanEijk%40radboudumc.nl%7C2ef0209bb1014fcb2a8008d8ea18ed80%7Cb208fe69471e48c48d87025e9b9a157f%7C1%7C0%7C637516740076243413%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C1000&amp;sdata=SwSNPYK6CaBOQThyAlYiWGFkvD6UDxDp05pk5ozQFjo%3D&amp;reserved=0\">https:\/\/doi.org\/10.1111\/jan.14787<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 11 2021 19:45:13 GMT+0100 (hora est\u00e1ndar de Europa central)_3\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">January 2021<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following article as publication of the month January:<\/p>\n<p><strong>Scerri, A<\/strong>,\u00a0\u00a0Sammut, R,\u00a0\u00a0<strong>Scerri, C.<\/strong>\u00a0\u00a0Formal caregivers\u2019 perceptions and experiences of using pet robots for persons living with dementia in long\u2010term care: A meta\u2010ethnography.\u00a0<em>J. Adv. Nurs.<\/em>\u00a0 2021;\u00a077:\u00a083\u2013\u00a097.\u00a0<a href=\"https:\/\/eur04.safelinks.protection.outlook.com\/?url=https%3A%2F%2Fdoi.org%2F10.1111%2Fjan.14581&amp;data=04%7C01%7Cfj.meiland%40amsterdamumc.nl%7Cf612e14a3f1645ccf1d408d8d8b3c04b%7C68dfab1a11bb4cc6beb528d756984fb6%7C0%7C0%7C637497613835720531%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C1000&amp;sdata=lM5fT5%2BZg88inaYD4%2B1XWDpnfwI8Wtg2kYWTzt02Msg%3D&amp;reserved=0\">https:\/\/doi.org\/10.1111\/jan.14581<\/a><\/p>\n<p>The study describes the results of a meta-ethnography synthesizing evidence from recently published papers on the perceptions of formal caregivers using pet-robots for people with dementia living in residential care. It concludes that while pet robots can have emotional, social, behavioural, and practical benefits, there are several technological, organizational and contextual challenges and limitations that constrain their routine use. The possible findings synthesized could be of benefit to robot designers by identifying the technical adjustments needed, to facility managers and policy makers by understanding the organizational factors influencing implementation and developing realistic action plans and to other healthcare professionals by appreciating the benefits of introducing pet robots as a therapy in long\u2010term care settings.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jan 12 2021 10:27:34 GMT+0100 (hora est\u00e1ndar de Europa central)_5\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">December 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following article as publication of the month December:<\/p>\n<p>Du B, Lakshminarayanan M, Krishna M, Vaitheswaran S, Chandra M, Kunnukattil Sivaraman S, Goswami SP, Rangaswamy T, Spector A, Stoner CR. Psychometric properties of outcome measures in non-pharmacological interventions of persons with dementia in low-and middle-income countries: A systematic review. Psychogeriatrics. 2020 Dec 17. doi: 10.1111\/psyg.12647. Epub ahead of print. PMID: 33336529.<\/p>\n<p>In this systematic review outcome measures that are used in Low and Middle income countries to evaluate non-pharmacological interventions were assessed on psychometric properties. 18 measures for cognition, behaviour and psychologicial symptoms, and quality of life were valued as modest at best. The authors mention an urgent need to develop scientifically robust measures for use in these countries.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Dec 22 2020 08:45:30 GMT+0100 (hora est\u00e1ndar de Europa central)_9\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">November 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the following publication of the month for November 2020:<\/p>\n<p><em>\u201cToward a theory-based specification of non-pharmacological treatments in aging and dementia: Focused reviews and methodological recommendations\u201d<\/em><\/p>\n<p><em>\u00a0<\/em>Sikkes, S.A.M., Tang, Y., Jutten, R.J., Wesselman, L.M.P., Turkstra, L.S.,\u00a0<strong>Brodaty, H<\/strong>.,<strong>\u00a0Clare, L<\/strong>., Cassidy-Eagle, E., Cox, K.L., Ch\u00e9telat, G., Dautricourt, S., Dhana, K.,\u00a0Dodge, H.,\u00a0<strong>Dr\u00f6es, R.-M<\/strong>., Hampstead, B.M., Holland, T., Lampit, A., Laver, K., Lutz, A., Lautenschlager, N.T., McCurry, S.M.,\u00a0<strong>Meiland, F.J.M<\/strong>., Morris, M.C., Mueller, K.D., Peters, R., Ridel, G.,\u00a0<strong>Spector, A., van der Steen, J.T.<\/strong>, Tamplin, J., Thompson, Z. &amp; Bahar-Fuchs, A. on behalf of the ISTAART Non-pharmacological Interventions Professional Interest<\/p>\n<p>In the systematic overview paper, experts in Non-pharmacological treatments (NPT) have used umbrella theoretical framework to classify research in NPT in the context of aging and dementia studies, identify key challenges for different NPTs, and provide methodological guidelines for the design of future trials of NPTs. Applying the Rehabilitation Treatment Specification Framework (RTSS), the authors defined and specified the targets and ingredients of 13 nonpharmacological treatments (NPTs), including cognitive training, cognitive rehabilitation, physical exercise training or communication treatments. The evidence supports the efficacy of most NPTs in relation to their primary targets and indicates that RTSS are likely to make important contributions to our ability to specify existing treatment, design new treatment trials, and synthesize the evidence.<\/p>\n<p><a href=\"https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/10.1002\/alz.12188#\" target=\"_blank\" rel=\"noopener\">https:\/\/alz-journals.onlinelibrary.wiley.com\/doi\/10.1002\/alz.12188#<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Nov 23 2020 10:05:39 GMT+0100 (hora est\u00e1ndar de Europa central)_7\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">October 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<em>&#8220;Development of best practice recommendations to enhance access to and use of formal community care services for people with dementia in Europe: a Delphi process conducted by the Actifcare project&#8221;<\/em><\/p>\n<p>R\u00f8svik, J,. Michelet, M., Engedal, K., Bergh, S., Bieber, A., Gon\u00e7alves-Pereira, M., Portolani, D., Hopper., L., Irving.K., Jelley, H., Kerpershoek, L., Meyer, G., Marques, MJ., Sj\u00f8lund, B., Sk\u00f6ldunger, A., Stephan, A., Verhey, F., de Vugt, M., Woods, B., Wolfs, C., Zanetti, O. &amp; Selb\u00e6k, G.<\/p>\n<p>This article describes the development of best-practice recommendations on the access to, and use of formal care services. A Delphi consensus process was conducted among professional experts (n=48), people with dementia (n=14), and informal caregivers (n=20). Three categories of recommendations emerged, being recommendations to enhance access (for example having a key contact person), recommendations to enhance use, and recommendations that can facilitate access or use indirectly. These recommendations may be of further use to decision makers to improve the quality of care and quality of life of people with dementia and their informal caregivers. Link to the article:\u00a0<a href=\"https:\/\/eur04.safelinks.protection.outlook.com\/?url=https%3A%2F%2Fpubmed.ncbi.nlm.nih.gov%2F33030026%2F&amp;data=04%7C01%7Cfj.meiland%40amsterdamumc.nl%7Cc9c40ee9ac034274810c08d88c976984%7C68dfab1a11bb4cc6beb528d756984fb6%7C0%7C0%7C637413929220631774%7CUnknown%7CTWFpbGZsb3d8eyJWIjoiMC4wLjAwMDAiLCJQIjoiV2luMzIiLCJBTiI6Ik1haWwiLCJXVCI6Mn0%3D%7C1000&amp;sdata=a%2F8NVgrrFvD6kmsNpHEaKRfsyXA3qbti3k%2FrP7%2BAziE%3D&amp;reserved=0\">https:\/\/pubmed.ncbi.nlm.nih.gov\/33030026\/<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Oct 01 2020 11:10:06 GMT+0200 (hora de verano de Europa central)_2\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">September 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected as publication of the month\u00a0September:<\/p>\n<p>Giebel, Clarissa, Kathryn Lord, Claudia Cooper, Justine Shenton, Jacqueline Cannon, Daniel Pulford, Lisa Shaw et al. &#8220;A UK survey of COVID\u201019 related social support closures and their effects on older people, people with dementia, and carers.&#8221;\u00a0<em>International Journal of Geriatric Psychiatry<\/em>.<\/p>\n<p><strong>\u00a0<\/strong>This is the first\u00a0 study to \u00a0quantify\u00a0 how\u00a0 the\u00a0 pandemic \u00a0has\u00a0 impacted\u00a0 social\u00a0 support\u00a0 service \u00a0availability, and to explore the impact of this on the lives of older adults and people living with dementia across the UK. A total of 569 participants were involved in the study. Findings suggest that social support service usage was significantly \u00a0reduced \u00a0post Covid-19 and that \u00a0failure to \u00a0access \u00a0these \u00a0contributed to \u00a0worse quality of life and anxiety. Seeking alternative ways to re-provide support to meet the needs of those requiring social support are recommended.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Oct 01 2020 11:09:24 GMT+0200 (hora de verano de Europa central)_0\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">August 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected for publication of the month August:<\/p>\n<p><em>Clarke, C., B. Woods, E. Moniz-Cook, G. Mountain, L. \u00d8ksnebjerg, R. Chattat, A. Diaz, D. Gove, M. Vernooij-Dassen and E. Wolverson (2020). &#8220;Measuring the well-being of people with dementia: a conceptual scoping review.&#8221;<\/em> <em>Health and quality of life outcomes 18(1): 1-14.<\/em><\/p>\n<p>Enabling people with dementia to \u2018live well\u2019 is a policy and research priority in many countries. However, instruments for measuring outcomes of psychosocial interventions designed to promote well-being in dementia are often derived from a symptom-focused, loss\/deficit approach<\/p>\n<p>This article takes a radically different approach and presents an assets\/strengths-based framework, outlining structural domains for selecting self-report measures of well-being in people with dementia.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Aug 06 2020 11:47:30 GMT+0200 (hora de verano de Europa central)_10\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">July 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected as publication of the month July:<\/p>\n<p><strong>Verbeek, H.,<\/strong> <strong>Gerritsen, D. L.,<\/strong> Backhaus, R., de Boer, B. S., <strong>Koopmans, R. T<\/strong>., &amp; Hamers, J. P. (2020). Allowing visitors back in the nursing home during the COVID-19 crisis\u2013A Dutch national study into first experiences and impact on well-being. Journal of the American Medical Directors Association.<\/p>\n<p>COVID-19 has had a big impact on both residents of nursing homes (most of them having dementia) and their families. This study looks into the first experiences and impact on well-being of the restrictive measures during the lockdown in The Netherlands. If no visits are allowed this has a big impact on well-being, but nursing homes face the dilemma of infection prevention versus allowing personal contacts. They seem to apply guidelines differently across individual locations. This is an issue with much relevance to all societies.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Aug 06 2020 11:45:41 GMT+0200 (hora de verano de Europa central)_1\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">June 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the month June, the website committee selected the following publication of the month:<\/p>\n<p>Prins M, Veerbeek M, <strong>Willemse BM, Pot AM<\/strong>. Use and impact of the Alzheimer Experience: a free online media production to raise public awareness and enhance knowledge and understanding of dementia. Aging Ment Health. 2020. Jun;24(6):985-992. doi: 10.1080\/13607863.2019.1579781. Epub 2019 Mar 5. PMID: 30835497.<\/p>\n<p>To tackle stigmatization associated with dementia, in 2012 the Alzheimer Experience was developed. This free online media production, that virtually follows the life of two persons with dementia, shows people what it is like to have dementia, in order to improve their knowledge and understanding of dementia. This study describes the results of the evaluation of the Alzheimer Experience.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Jul 16 2020 08:50:28 GMT+0200 (hora de verano de Europa central)_9\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">May 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the following paper for the Interdem paper of the month by two German Interdem colleagues :<\/p>\n<p>\u201c<strong>Halek M<\/strong>, Reuther S, M\u00fcller-Widmer R, Trutschel D,\u00a0<strong>Holle D.\u201d<\/strong>\u00a0Dealing with the behaviour of residents with dementia that challenges: A stepped-wedge cluster randomized trial of two types of dementia-specific case conferences in nursing homes (FallDem).\u00a0<em>Int J Nurs Stud<\/em>. 2020;104:103435. doi:10.1016\/j.ijnurstu.2019.103435<\/p>\n<p>This study describes the effects of two dementia-specific case conferencing models on the prevalence of behavior that challenges others. This is important as understanding the behaviour of people with dementia and its underlying causes is necessary to enable the use of purposive nursing interventions. The paper finds that Comprehensive analysis of residents\u00b4 behaviour within case conferences does not reduce the prevalence of residents showing behavioural changes. Exploratory analysis shows trends that case conferences may reduce the prevalence of single behaviours such as apathy, delusion, hallucination, disinhibition, and eating and nighttime behaviour and have the potential to reduce the work-related burden of staff in nursing homes.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu May 21 2020 09:12:44 GMT+0200 (hora de verano de Europa central)_0\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">April 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The Interdem Website Committee has chosen the following as Publication of the Month April. This article focuses on a relevant and timely topic &#8211; the importance of staying connected.<\/p>\n<p><strong>Clark, A., Campbell, S., <u>Keady, J<\/u>.(INTERDEM), Kullberg, A., Manji, K., Rummery, K., &amp; Ward, R. (2020). Neighbourhoods as relational places for people living with dementia.\u00a0<em>Social Science &amp; Medicine.<\/em><\/strong><strong>\u00a0\u00a0<\/strong><\/p>\n<p><a href=\"https:\/\/www.sciencedirect.com\/science\/article\/pii\/S0277953620301465\" target=\"_blank\" rel=\"noopener\">READ ARTICLE<\/a><\/p>\n<p>The paper details some of the implications of neighbourhoods as sites of social connection based on material from 67 people living with dementia and 62 care-partners. It provides new insight into how people living with dementia experience the places where they live, and how those places can support people to live as independently as possible with the condition. Using a mixed methodology, the paper extends empirical and conceptual understanding of the relevance of neighbourhoods as relational sites of connection, interaction, and social engagement for people living with dementia.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Apr 30 2020 11:51:33 GMT+0200 (hora de verano de Europa central)_9\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">March 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The Interdem Website Committee has chosen a paper dedicated to loneliness as a Publication of the Month March.<\/p>\n<p>Managing loneliness: a qualitative study of older people\u2019s views by\u00a0K. Kharicha, J. Manthorpe, S. Iliffe, C. A. Chew-Graham, M. Cattan, C. Goodman, M. Kirby-Barr, J. H. Whitehouse &amp; K. Walters (Aging &amp; Mental Health, 2020, <a href=\"https:\/\/eur04.safelinks.protection.outlook.com\/?url=https%3A%2F%2Fdoi.org%2F10.1080%2F13607863.2020.1729337&amp;data=02%7C01%7Cfj.meiland%40amsterdamumc.nl%7Ca071896dc53040c4b65508d7ebe6f504%7C68dfab1a11bb4cc6beb528d756984fb6%7C0%7C0%7C637237249510226773&amp;sdata=zF4Dk%2B%2BtFp30%2By%2FD%2BWxaEQjXAoXlyC63y7s4ZlYfGI0%3D&amp;reserved=0\">https:\/\/doi.org\/10.1080\/13607863.2020.1729337<\/a>).<\/p>\n<p>Unlike the other months, we decided to make an exception and chose a paper which\u00a0 does not cover only people with dementia and\/or their carer. We believe that loneliness is a very important issue, and its relevance increased during the extraordinary time of COVID-19 pandemic. This paper will be relevant for all people living with dementia and their carers who need to deal with social isolation, staying away from their families and friends.<br \/>\nAuthors aimed to explore how community-dwelling lonely older people in England manage their experiences of loneliness. Participants in this study focused on a range of strategies to ameliorate their distress which had been developed over their lives and shaped according to individual coping styles and contexts. Older people also conveyed a personal responsibility for managing feelings of loneliness rather than relying on others. This paper also presents practical recommendations for policy developments and responses to manage loneliness in a better way, based on obtained outcomes.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Mar 26 2020 13:56:26 GMT+0100 (hora est\u00e1ndar de Europa central)_8\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">February 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<em>The website committee has chosen the following article as publication of the month\u00a0<\/em><em>February:<\/em><\/p>\n<p>Yu-Tzu Wu, Sharon M Nelis, Catherine Quinn, Anthony Martyr, Ian R Jones, Christina R Victor, Martin Knapp, Catherine Henderson, John V Hindle, Roy W Jones, Michael D Kopelman, Robin G Morris, James A Pickett, Jennifer M Rusted, Jeanette M Thom, Rachael Litherland, Fiona E Matthews, Linda Clare, the IDEAL Programme team, Factors associated with self- and informant ratings of quality of life, well-being and life satisfaction in people with mild-to-moderate dementia: results from the Improving the experience of Dementia and Enhancing Active Life programme,\u00a0<em>Age and Ageing<\/em>,\u00a0<a href=\"https:\/\/eur04.safelinks.protection.outlook.com\/?url=https%3A%2F%2Fdoi.org%2F10.1093%2Fageing%2Fafz177&amp;data=02%7C01%7Cfj.meiland%40amsterdamumc.nl%7Cf00ac0d5a46048e6e53c08d7cf339eaa%7C68dfab1a11bb4cc6beb528d756984fb6%7C0%7C0%7C637205692931856341&amp;sdata=l8po0q57rhemQRqnolXa0k%2F4CCzR7H9iETKAcEPEANA%3D&amp;reserved=0\">https:\/\/doi.org\/10.1093\/ageing\/afz177<\/a><\/p>\n<p><em>The authors compare self- and informant ratings of quality of life, life satisfaction and well-being. The study shows that self- and informant ratings are not equivalent in this areas. Importantly, even though this is the case, the relationships with other underlying factors are comparable. Both approaches can provide useful information for research examining factors associated with these living well measures.<\/em><\/p>\n<p><a href=\"http:\/\/interdem.org\/wp-content\/uploads\/afz177.pdf\" target=\"_blank\" rel=\"noopener\">DOWNLOAD ARTICLE<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Feb 25 2020 13:18:51 GMT+0100 (hora est\u00e1ndar de Europa central)_5\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">January 2020<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected for the article of the month January: Our reflections of Patient and Public Involvement in research as members of the European Working Group of People with Dementia.\u00a0Roberts C, Rochford-Brennan H, Goodrick J,\u00a0<strong style=\"font-style: inherit;\">Gove D, Diaz-Ponce A, Georges J<\/strong>. Dementia (London). 2020 Jan;19(1):10-17. doi: 10.1177\/1471301219876402.<\/p>\n<p>This article is a follow-up of the one on the Patient and Public Involvement paper (Gove et al 2018), where 7 key areas were outlined to help progress PPI. In this new article, members of the European Working Group of People with Dementia reflect on some of these areas that they consider important, and share how people with dementia can be valued and involved in an optimal way. This will lead to a win-win situation for all involved in dementia research, and thus this is an important publication for (INTERDEM) researchers.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jan 21 2020 09:30:26 GMT+0100 (hora est\u00e1ndar de Europa central)_4\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">December 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following article as publication of the month December<\/p>\n<p>Stoner, C.R., Lakshminarayanan, M., Durgante, H. &amp; Spector, A. (Dec 2019). Psychosocial interventions for dementia in low- and middle-income countries (LMICs): a systematic review of effectiveness and implementation readiness. <em>Aging &amp; Mental Health<\/em>. <a href=\"https:\/\/doi.org\/10.1080\/13607863.2019.1695742\">https:\/\/doi.org\/10.1080\/13607863.2019.1695742<\/a><\/p>\n<p>Little is known about the effectiveness and implementation readiness of psychosocial interventions for people with dementia in low- and middle- income countries. This systematic review evaluated 17 articles describing 11 interventions (e.g. occupational therapy, Cognitive Stimulation Therapy). Of the included studies, Cognitive Stimulation Therapy appears to be the most implementation ready. Other interventions were judged similarly effective, but data was lacking on the implementation readiness.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jan 21 2020 09:30:03 GMT+0100 (hora est\u00e1ndar de Europa central)_8\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">November 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following article as publication of the month November<\/p>\n<p>Vernooij-Dassen, M., Moniz-Cook, E., Verhey, F., Chattat, R., Woods, B., Meiland, F., Franco, M., Holmerova, I., Orrell, M. &amp; de Vugt, M. (Nov 2019). Bridging the divide between biomedical and psychosocial approaches in dementia research: the 2019 INTERDEM manifesto. <em>Aging &amp; Mental Health<\/em>. <a href=\"https:\/\/doi.org\/10.1080\/13607863.2019.1693968\">https:\/\/doi.org\/10.1080\/13607863.2019.1693968<\/a><\/p>\n<p>To date, dementia research appears to have developed with little interaction between biomedical and psychosocial approaches. This manifesto, written by members from the INTERDEM network, \u00a0describes a new perspective on integrated biomedical and psychosocial dementia research and concludes with a call to action.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jan 21 2020 09:29:32 GMT+0100 (hora est\u00e1ndar de Europa central)_10\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">October 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The Interdem website committee has chosen the following article as publication of the month October 2019: Sass, C., Burnley, N., Drury, M.,\u00a0<strong>Oyebode, J., &amp; Surr, C.<\/strong>\u00a0(2019). Factors associated with successful dementia education for practitioners in primary care: an in-depth case study.\u00a0<em>BMC medical education, 19<\/em>(1), 393.<\/p>\n<p>Doing research to identify the ingredients of good dementia care is one thing, transferring them to practice another. This article focuses on how to embed good dementia care in education for primary care professionals (e.g. general practitioners). That is an important professional group, caring for many people with dementia still living in the community. The article concludes with some key recommendations that everybody developing or giving dementia training should be aware of.<\/p>\n<p>The article is available in open access at\u00a0<a href=\"https:\/\/link.springer.com\/content\/pdf\/10.1186%2Fs12909-019-1833-2.pdf\">https:\/\/link.springer.com\/content\/pdf\/10.1186%2Fs12909-019-1833-2.pdf<\/a>.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Oct 21 2019 20:54:03 GMT+0200 (hora de verano de Europa central)_9\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">September 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following article as publication of the month September<\/p>\n<p>Yates, L., Csipke, E., Moniz-Cook, E., Leung, P., Walton, H., Charlesworth, G., &#8230; &amp; Orrell, M. (2019). The development of the Promoting Independence in Dementia (PRIDE) intervention to enhance independence in dementia.\u00a0<em>Clinical Interventions in Aging<\/em>,\u00a0<em>14<\/em>, 1615. &#8211;\u00a0<a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC6748161\/\">https:\/\/www.ncbi.nlm.nih.gov\/pmc\/articles\/PMC6748161\/<\/a><\/p>\n<p>The Promoting Independence in Dementia (PRIDE) program aims to better understand the factors associated with cognitive decline and \u201cexcess disability\u201d and to design and evaluate an evidence-based approach to maintaining independence in people with mild dementia. This article describes the underlying theory and proposed mechanisms of change for the\u00a0<a href=\"https:\/\/news.joindementiaresearch.nihr.ac.uk\/the-pride-study\/\">PRIDE<\/a>\u00a0intervention, a 3-session, manualized, postdiagnostic social intervention to help people with dementia live as well and as independently as possible in the community through engagement in cognitive, physical, and social activities.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Sep 25 2019 08:43:09 GMT+0200 (hora de verano de Europa central)_5\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">August 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee has chosen the following article as publication of the month August: <a href=\"http:\/\/interdem.org\/wp-content\/uploads\/August_2019.pdf\">August_2019<\/a>.\u00a0<a href=\"https:\/\/doi.org\/10.1016\/j.invent.2019.100260\">https:\/\/doi.org\/10.1016\/j.invent.2019.100260<\/a>\u00a0[In press] Interdem members&#8217; study investigated if effective &#8220;eHealth interventions&#8221; for caregivers of people with dementia were implemented after the research trials.\u00a0Authors suggest that internet-based interventions have low levels of implementation readiness and often important information to assess this aspect of intervention was unavailable. Authors found only two studies which obtained long-term funding from foundations after the research phase and suggest that more research should\u00a0focus on the factors enabling sustainable implementation of tested interventions in the future.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Aug 20 2019 09:02:56 GMT+0200 (hora de verano de Europa central)_8\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">July 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<span style=\"font-size: 11.0pt; font-family: 'Calibri',sans-serif; color: black;\">The website committee selected as paper of the month July: Charras K, Dram\u00e9 M. Treatment Indications in Clinical Practice and Applied Research on Psychosocial Interventions for People With Dementia. Am J Alzheimers Dis Other Demen. 2019 Jul 17:1533317519859213. doi: 10.1177\/1533317519859213 [Epub ahead of print].<\/span><\/p>\n<p><span style=\"font-size: 11.0pt; font-family: 'Calibri',sans-serif; color: black;\">This paper addresses the fact that clinical trials fail to prove effectiveness of psychosocial interventions for people with different types and levels of severity of dementia. Reviewing 12 Cochrane papers the authors provide an understanding of how and to what extent treatment indications, which are normal in pharmacological treatments, should be involved in psychosocial interventions. Several implications and recommendations for research and clinical practice with regard to treatment indications for psychosocial interventions are provided, to improve the effectiveness of these interventions.<\/span><\/p>\n<p><a href=\"http:\/\/interdem.org\/wp-content\/uploads\/2019-Charras.pdf\">FULL TEXT<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jul 23 2019 08:47:52 GMT+0200 (hora de verano de Europa central)_5\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">June 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication by Astell et al. for publication of the month June.<\/p>\n<p>In this article &#8220;Technology and Dementia: The Future is now&#8221;\u00a0a nice overview is given of current technology use in dementia, based on the input from members of the US Alzheimer\u2019s Association Technology Professional Interest Area. Many developments have taken place, however policy and practice lay behind. The authors suggest to broaden the view of supporting people with dementia beyond health care and call upon for policies\u00a0that provide people with dementia and their caregivers access to devices, services and other tools to live as well as possible with their condition.<\/p>\n<p>The abstract:<\/p>\n<p><strong><em>Background:<\/em><\/strong>\u00a0Technology has multiple potential applications to dementia from diagnosis and assessment to care delivery and supporting ageing in place.\u00a0<strong><em>Objectives:<\/em><\/strong>\u00a0To summarise key areas of technology development in dementia and identify future directions and implications.\u00a0<strong><em>Method:<\/em><\/strong>Members of the US Alzheimer\u2019s Association Technology Professional Interest Area involved in delivering the annual pre-conference summarised existing knowledge on current and future technology developments in dementia.\u00a0<strong><em>Results:<\/em><\/strong>\u00a0The main domains of technology development are as follows: (i) diagnosis, assessment and monitoring, (ii) maintenance of functioning, (iii) leisure and activity, (iv) caregiving and management.\u00a0<strong><em>Conclusions:<\/em><\/strong>\u00a0The pace of technology development requires urgent policy, funding and practice change, away from a narrow medical approach, to a holistic model that facilitates future risk reduction and prevention strategies, enables earlier detection and supports implementation at scale for a meaningful and fulfilling life with dementia.<\/p>\n<p>Reference:<\/p>\n<p>Astell AJ, Bouranis N, Hoey J, Lindauer A, Mihailidis A, Nugent C, Robillard\u00a0JM; Technology and\u00a0Dementia: The Future is Now. Dement Geriatr Cogn Disord. 2019;47(3):131-139. doi:\u00a010.1159\/000497800. Epub 2019 Jun 27. PubMed PMID: 31247624.<\/p>\n<p><a href=\"https:\/\/www.researchgate.net\/publication\/334077814_Technology_and_Dementia_The_Future_is_Now\" target=\"_blank\" rel=\"noopener\">free download\u00a0<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jul 02 2019 10:38:55 GMT+0200 (hora de verano de Europa central)_8\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">May 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<strong>WHO guidelines on Risk reduction of cognitive decline and dementia<\/strong><\/p>\n<p>Two years after The Lancet commission on dementia published their report and advised everybody to \u201cbe ambitious about prevention\u201d, the World Health Organisation published guidelines on risk reduction for cognitive decline and dementia.<\/p>\n<p>WHO Director-General Dr Tedros Adhanom Ghebreyesus summarized the key message: \u201cWe need to do everything we can to reduce our risk of dementia. The scientific evidence gathered for these Guidelines confirm what we have suspected for some time, that what is good for our heart, is also good for our brain.\u201d<\/p>\n<p>The WHO guidelines provide an overview of much of the existing research on 12 risk or protective lifestyle (e.g. physical activity, social activity, \u2026) and health (e.g. hypertension) factors that can be influenced to reduce the risk on dementia.<\/p>\n<p>Interdem-member Sebastian Koehler (University of Maastricht) collaborated on these WHO guidelines as member of the external review group.<\/p>\n<p>The full document can be found in different languages at <a href=\"https:\/\/www.who.int\/mental_health\/neurology\/dementia\/guidelines_risk_reduction\/en\/\">https:\/\/www.who.int\/mental_health\/neurology\/dementia\/guidelines_risk_reduction\/en\/<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri May 31 2019 11:24:02 GMT+0200 (hora de verano de Europa central)_2\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">April 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]Coughlan, G., Coutrot, A., Khondoker, M., Minihane, A.-M., Spiers, H., &amp; Hornberger, M. (2019). Toward personalized cognitive diagnostics of at-genetic-risk Alzheimer\u2019s disease.\u00a0<em>Proceedings of the National Academy of Sciences<\/em>, 201901600. doi:10.1073\/pnas.1901600116<\/p>\n<p>In short: the authors used spatial navigation big data (n = 27,108) from the Sea Hero Quest (SHQ) game to investigate whether big data can be used to benchmark a highly phenotyped healthy aging laboratory cohort into high- vs. low-risk persons based on their genetic and demographic risk factors. They wanted to see whether data of the mobile virtual reality game SHQ could assist in discriminating healthy aging from genetically at-risk individuals of Alzheimer\u2019s disease (AD). Results support supports the hypothesis that suboptimal navigation performance is present in preclinical AD and that this is detectable on levels of the SHQ game. Thus, spatial navigation emerges as a promising cognitive fingerprint, which can complement existing biomarkers for future AD diagnostics and disease intervention outcome measures.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri May 17 2019 09:32:44 GMT+0200 (hora de verano de Europa central)_8\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">March 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the month March the website committee selected the paper of <em>Salminen KS, Suominen MH, Soini H, Kautiainen H, Savikko N, Saarela RKT, Muurinen S, Pitkala KH. Associations between Nutritional Status and Health-Related Quality of Life among Long-Term Care Residents in Helsinki. J Nutr Health Aging. 2019;23(5):474-478<\/em><\/p>\n<p>The authors have conducted a cross-sectional study among 2160 older people residing in long-term care settings in Helsinki, Finland. This paper showed that nutritional status was significantly associated with health related quality of life among residents living in long-term care settings. Furthermore, residents had a higher chance of suffering from malnutrition, if they were more dependent in activities of daily living (ADL) functioning, suffered more often from dementia, had lower cognitive level, used less medications, and were eating more often inadequately.<\/p>\n<p>Results of the study emphasize that nutrition is a very important element in maintaining health-related quality of life of older people living in long-term care settings.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Apr 22 2019 09:56:50 GMT+0200 (hora de verano de Europa central)_9\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">February 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the month February the website committee selected the paper of Woods B, Arosio F, Diaz A, et al. Timely diagnosis of dementia? Family carers&#8217; experiences in 5 European countries. Int J Geriatr Psychiatry. 2019;34:114\u2013121.\u00a0<a href=\"https:\/\/doi-org.vu-nl.idm.oclc.org\/10.1002\/gps.4997\">https:\/\/doi-org.vu-nl.idm.oclc.org\/10.1002\/gps.4997<\/a>\u00a0.<\/p>\n<p>This study looks into what extent timely diagnosis of dementia are provided in Europe, associated factors associated, and the impact of the quality of diagnostic disclosure on caregivers. A survey was conducted amongst 1.409 informal carers, who recruited through five Alzheimer\u2019s Associations in Czech Republic, Finland, Italy, the Netherlands, and Scotland.<\/p>\n<p>Almost half of the respondents felt hat an earlier diagnosis would be more useful. Identified factors identified associated with delayed diagnoses were refusal by the person with dementia, professional attitudes, lack of awareness, and system delays.<\/p>\n<p>Although timely diagnosis of dementia is recommended in national strategies, and professional attitudes seem to improve, the findings do not indicate that the proportion of timely diagnoses is improving in Europe. More work on public awareness and professional responses is needed to improve this.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jul 03 2018 12:39:01 GMT+0200 (hora de verano de Europa central)_0\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">May 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Morgan et al (2018) has been selected as paper of the month.<\/p>\n<p>This review paper, published in May 2018 in Palliative Medicine, makes an important contribution to an area of limited research, dying at home for people living with dementia.<\/p>\n<p>See: Mogan, C., Lloyd-Williams, M., Harrison Dening, K. and Dowrick, C., 2018. The facilitators and challenges of dying at home with dementia: A narrative synthesis. Palliative Medicine, 32(6), pp.1042-1054.<\/p>\n<p><strong>\u00a0<\/strong><\/p>\n<p><strong>Abstract<\/strong><\/p>\n<p>Background: It is reported that, given the right support, most people would prefer to die at home, yet a very small minority of people with dementia do so. At present, knowledge gaps remain on how best to support end-of-life care at home for people with dementia.<\/p>\n<p>Aim: To identify and understand the challenges and facilitators of providing end-of-life care at home for people with dementia.<\/p>\n<p>Design: Narrative synthesis of qualitative and quantitative data.<\/p>\n<p>Data sources: The review adhered to the Preferred Reporting Items for Systematic Reviews and Meta-Analyses guidelines. A systematic literature search was conducted across six electronic databases (AMED, BNI, CINAHL, EMBASE, MEDLINE and PsycINFO) and reference lists of key journals were searched up to July 2017.<\/p>\n<p>Results: Searches returned 1949 unique titles, of which seven studies met\u00a0all the eligibility criteria (four quantitative and three qualitative). Six key themes were identified \u2013 four facilitators and two challenges. Facilitators included \u2018support from health care professionals\u2019, \u2018informal caregiver resilience and extended social networks\u2019, \u2018medications and symptom management\u2019 and \u2018appropriate equipment and home adaptations\u2019. Challenges included \u2018issues with professional services\u2019 and \u2018worsening of physical or mental health\u2019.<\/p>\n<p>Conclusion: People with dementia may not always require specialist palliative care at the end of life. Further research is required to overcome the methodological shortcomings of previous studies and establish how community development approaches to palliative care, such as compassionate communities, can support families to allow a greater number of people with dementia to die at home.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Apr 22 2019 09:56:37 GMT+0200 (hora de verano de Europa central)_5\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">January 2019<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For January, the website committee selected as publication of the Month, the paper of\u00a0Auer, S, H\u00f6fler, M, et al., 2018. Cross-sectional study of prevalence of dementia, behavioural symptoms, mobility, pain and other health parameters in nursing homes in Austria and the Czech Republic: results from the DEMDATA project. BMC Geriatrics (2018) 18:178, <a href=\"https:\/\/doi.org\/10.1186\/s12877-018-0870-8\">https:\/\/doi.org\/10.1186\/s12877-018-0870-8<\/a><\/p>\n<p>This paper described the results from the DEMDATA study, which is carried out in nursing homes by our members Stefanie Auer in Austria and Iva Holmerova in Czech Republic. This is a nice example of how people work together in our INTERDEM network.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Dec 21 2018 09:11:04 GMT+0100 (hora est\u00e1ndar de Europa central)_1\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">December 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The INTERDEM website committee selected as paper of the month December: Implementation and impact of unforgettable: an interactive art program for people with dementia and their caregivers. It was published last summer.<\/p>\n<p>The paper describes research into the Unforgettable initiative. This is a program developed by MoMa in New York and it\u00a0consists of interactive guided museum tours for people living with dementia and their caregivers. The article describes the experienced facilitators and barriers for a successful implementation of this program in 12 museums in the Netherlands. The research indicated that museum employees and volunteers gained more positive attitudes towards dementia, thus decreasing stigmatization.<\/p>\n<p>Hendriks, I., Meiland, F. J., Gerritsen, D. L., &amp; Dr\u00f6es, R.-M. (2018). Implementation and impact of unforgettable: an interactive art program for people with dementia and their caregivers. <em>International Psychogeriatrics, advance access<\/em>, 1-12.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Dec 18 2018 09:21:52 GMT+0100 (hora est\u00e1ndar de Europa central)_10\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">November 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]Thyrian, J.R., Michalowsky, B., Hertel, J., W\u00fcbbeler, M., Gr\u00e4ske, J., Holle, B., Sch\u00e4fer-Walkmann, S., Wolf-Ostermann, K. and Hoffmann, W., (2018) How Does Utilization of Health Care Services Change in People with Dementia Served by Dementia Care Networks? Results of the Longitudinal, Observational DemNet-D-Study.\u00a0<i>Journal of Alzheimer&#8217;s Disease<\/i>, (Preprint), pp.1-9.<\/p>\n<p>This paper describes\u00a0changes in\u00a0health\u00a0service\u00a0use by\u00a0people living with dementia\u00a0who are\u00a0served\u00a0by dementia care networks in Germany. It also considers\u00a0the\u00a0factors associated\u00a0with\u00a0changes in service utilisation over time. The study was observational with\u00a0face-to-face interviews over one year. The findings revealed\u00a0that people living with dementia in dementia care networks had higher service use than the general population and this changed little over time.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Dec 21 2018 09:08:09 GMT+0100 (hora est\u00e1ndar de Europa central)_10\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">October 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The INTERDEM website committee selected as paper of the month October 2018: Designing dementia-friendly gardens: A workshop for landscape architects: Innovative Practice. It was published in October 2018 in the journal Dementia.<\/p>\n<p>The article describes the results of a collaboration between scientific researchers from INTERDEM, practice (long-term care) and education (architecture) on how to design dementia-friendly gardens within nursing homes. Often, outdoor spaces in nursing homes are inaccessible, unfit and poorly designed for people with cognitive impairment. This paper explains three approaches from a variaty of perspectives (scientific, pedagogical and practice-based) on how best to design gardens and outdoor space for people with dementia.<\/p>\n<p>Designing dementia-friendly gardens: A workshop for landscape architects: Innovative Practice. Charras K, B\u00e9bin C, Laulier V, Mabire JB, Aquino JP.\u00a0Dementia (London). 2018 Oct 25:1471301218808609.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Oct 18 2018 13:34:51 GMT+0200 (hora de verano de Europa central)_6\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">September 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The INTERDEM website committee selected as paper of the month September: Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan-European consultation by\u00a0\u00d8ksnebjerg L. et al. was selected as an publication\u00a0of the month September 2018. The paper\u00a0was published in June 2018 and all authors are INTERDEM members.<\/p>\n<p>This is an original article covering an important topic of which interventions people living with dementia may consider as meaningful.\u00a025 people with dementia from 9 European countries participated in this study. Participants preferred\u00a0psychosocial interventions that imply social engagement and inclusion. The indicted activities were connected to enjoyment, emotional experiences and enriching their self-esteem and identity, rather then only keeping them active during the day. These findings, that seem to be closely linked to positive psychology approach as well as social health concept, may help in development future psychosocial intervention dedicated to people living with dementia.<\/p>\n<p>\u00d8ksnebjerg\u00a0L, Diaz\u2010Ponce\u00a0A, Gove\u00a0D, et\u00a0al.\u00a0Towards capturing meaningful outcomes for people with dementia in psychosocial intervention research: A pan\u2010European consultation.\u00a0<em>Health Expect<\/em>.\u00a02018;00:1\u201310.\u00a0<a href=\"https:\/\/doi.org\/10.1111\/hex.12799\">https:\/\/doi.org\/10.1111\/hex.12799<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Sep 12 2018 09:15:59 GMT+0200 (hora de verano de Europa central)_1\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">August 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The INTERDEM website committee selected as paper of the month August, the article by Wilz. et al. In this paper, secondary analyses were done to assess if individual goals of caregivers of people with dementia were met by a telephone intervention based on cognitive behavioural therapy. Personalised interventions and valuable outcomes for individuals receive more attention in the past decade. In this study the Goal attainment questionnaire was used to assess these valuable outcomes. Results showed that nearly all participants reported meaningful improvements with regard to their personal goals. Also, treatment compliance and implementation were highly satisfactory. To read more, please look at:<\/p>\n<p>Wilz G, Weise L, Reiter C, Reder M, Machmer A, Soellner R. Intervention Helps Family Caregivers of People With Dementia Attain Own Therapy Goals. Am J\u00a0Alzheimers Dis Other Demen. 2018 Aug;33(5):301-308. doi:\u00a010.1177\/1533317518769475. Epub 2018 Apr 16. PubMed PMID: 29660988[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Aug 03 2018 08:47:46 GMT+0200 (hora de verano de Europa central)_9\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">July 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The article of the month for July 2018 is written by Ther\u00e9se Bielsten and her colleagues (including John Keady, Interdem-member). This article focuses on couples where one of the partners has a diagnoses of dementia. It uses a qualitative methodology to identify the most relevant content for a guide to be used by such couples. The themes that were identified are home and neighbourhood (including safety and social relationships), meaningful activities (involvement in daily activities, meetings), approach and empowerment (informing others about the diagnosis) and couplehood (spending time together).<\/p>\n<p>A self-management tool covering these subject areas can be developed. The authors have no knowledge of any self-management support already developed for couples as couple, as a dyad. Most interventions focus on the family caregivers and\/or the wider social network.<\/p>\n<p><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/30033851\">Living Life and Doing Things Together: Collaborative Research With Couples Where One Partner Has a Diagnosis of Dementia.<\/a>\u00a0<strong>Bielsten<\/strong> T, Lasrado R, Keady J, Kullberg A, Hellstr\u00f6m I.\u00a0Qual Health Res. 2018 Jul 1:1049732318786944. doi: 10.1177\/1049732318786944. [Epub ahead of print]\u00a0PMID: 30033851[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jul 03 2018 12:39:41 GMT+0200 (hora de verano de Europa central)_9\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">June 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the publication of the month June 2018, the website committee selected the article published by<\/p>\n<p>Hopwood J, Walker N, McDonagh L, Rait G, Walters K, Iliffe S, Ross J, Davies N.\u00a0<strong>Internet-Based Interventions Aimed at Supporting Family Caregivers of People With Dementia: Systematic Review.\u00a0<\/strong>J Med Internet Res 2018;20(6):e216.\u00a0DOI:\u00a0<a href=\"http:\/\/doi.org\/10.2196\/jmir.9548\">10.2196\/jmir.9548<\/a><\/p>\n<p>This mixed-methods review explored the key components of internet-based interventions to support family caregivers of people with dementia, looked at which components were most valued by caregivers, and considered the evidence of effectiveness. Identified digital interventions focused on (1) contact with health or social care providers, (2) peer interaction, (3) provision of information, (4) decision support, and (5) psychological support. This review seems to highlight the promising potential for the use of internet-based interventions by caregivers, though the evidence base for internet-based interventions for caregivers remains limited. There is a need for high-quality research, with a particular focus on the development of interventions targeting specific stages in the dementia trajectory, as most identified interventions were broad and generic.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed May 09 2018 12:33:19 GMT+0200 (Hora de verano romance)_4\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">April 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the publication of the month April 2018, the website committee selected the article published by<\/p>\n<p>Dianne Gove, Ana Diaz-Ponce, Jean Georges, Esme Moniz-Cook, Gail Mountain, Rabih Chattat, Laila \u00d8ksnebjerg &amp; The European Working Group of People with Dementia (2017) Alzheimer Europe&#8217;s position on involving people with dementia in research through PPI (patient and public involvement), Aging &amp; Mental Health, 22:6, 723-729, DOI: <a href=\"https:\/\/doi.org\/10.1080\/13607863.2017.1317334\">10.1080\/13607863.2017.1317334<\/a><\/p>\n<p>Patient and public involvement (PPI) in research has been recognized as important and meaningful. This does not only refer to involvement as study participants, but also to support in generating ideas for research, advising researchers and doing research activities. Alzheimer Europe drafted this position paper, together with members of INTERDEM and the European Working Group of People with Dementia. It has been formally adopted by the Board of Alzheimer Europe and endorsed by the Board of INTERDEM and by the JPND working group \u2018Dementia Outcome Measures &#8211; Charting New Territory\u2019.<\/p>\n<p>The paper describes several topics of PPI that may help in making PPI really meaningful and enhancing the research process instead of merely being used as \u2018box thicking\u2019.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Apr 26 2018 10:48:05 GMT+0200 (Hora de verano romance)_3\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">March 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the publication of the month march\u00a02018, the website committee selected the article published by Joany Millenaar and her colleagues on the needs of young onset dementia caregivers. People with young onset dementia often still have children at home and their (past) employment might generate an important part of the household income. Consequently, the caregivers of somebody with young onset dementia are not only younger than those caring for an elderly person, but they also face a different set of challenges. Whether these caregivers experience low rather than high unmet needs is heavily influenced by understanding and accepting the diagnosis and the availability of social support.<\/p>\n<p>Millenaar, J. K., Bakker, C., Vliet, D., Koopmans, R. T., Kurz, A., Verhey, F. R., &amp; de Vugt, M. E. (2018). Exploring perspectives of young onset dementia caregivers with high versus low unmet needs. <em>International Journal of Geriatric Psychiatry, 33<\/em>(2), 340-347.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Apr 26 2018 10:33:32 GMT+0200 (Hora de verano romance)_7\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">February 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the publication of the month March, the website committee selected the article entitled <em>Are Humor Styles of People With Dementia Linked to Greater Purpose in Life? <\/em>by Wingyun Mak and Silvia S\u00f6rensen recently published in <em>The Gerontologist.<\/em><\/p>\n<p>The study aimed to answer the question whether humor styles were associated with the\u00a0 purpose in life among people living with dementia. Authors found that only adaptive humor styles were linked to higher meaning of life and that sense of humor maybe be important in life of people with dementia.<\/p>\n<p>The study also suggests that people with cognitive problems can still effectively use their sense of humor. These results also provide insight about some practical implications into trainings for people supporting people living with dementia, for example how to include using of sense of humor during their daily interactions.<\/p>\n<p>Reference: Mak W, S\u00f6rensen S. Are Humor Styles of People With Dementia Linked to\u00a0Greater Purpose in Life? <em>Gerontologist<\/em>, 2018, doi:10.1093\/geront\/gnx207[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Mar 19 2018 13:05:49 GMT+0100 (Hora est\u00e1ndar romance)_6\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">January 2018<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the paper of J.A. Garc\u00eda-Casal et al. This work describes the usability, reliability, and discriminant validity of a computer-based emotion recognition test, the Affect-GRADIOR, for elderly people with Alzheimer\u2019s Disease (AD) and amnestic mild cognitive impairment (aMCI). Limited capacity in recognition of emotional facial expressions is more pronounced in people with AD and aMCI, and has been found to be predictive in the development of aMCI in AD. In addition especially processing speed of emotion recognition is impaired in people with AD and aMCI. Although participants had limited experience with computers, they found Affect-GRADIOR easy and comprehensible. The authors conclude that Affect-GRADIOR is reliable for the evaluation of recognition of facial emotions in older adults, and that the program had good discriminant properties to detect differences in emotion recognition between healthy controls and people with AD and aMCI, but discriminated poorly between people with aMCI and AD. This computer-based emotion recognition assessment can be a helpful tool in early screening and differential diagnoses, providing opportunities for early treatment.<\/p>\n<p><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/29356568\"><strong>Usability<\/strong>\u00a0<strong>study<\/strong>\u00a0and\u00a0<strong>pilot<\/strong>\u00a0<strong>validation<\/strong>\u00a0of a computer-based emotion recognition test for older adults with\u00a0<strong>Alzheimer<\/strong>&#8216;s\u00a0<strong>disease<\/strong>\u00a0and amnestic mild cognitive impairment.<\/a>\u00a0Garc\u00eda-Casal JA, Mart\u00ednez-Abad F, Cid-Bartolom\u00e9 T, Smith SJ, Llano-Ord\u00f3\u00f1ez K, Perea-Bartolom\u00e9 MV, Go\u00f1i-Imizcoz M, Soto-P\u00e9rez F, Franco-Mart\u00edn M.\u00a0Aging Ment Health. 2018 Jan 22:1-11. doi: 10.1080\/13607863.2017.1423033. [Epub ahead of print][\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Jan 09 2018 14:17:31 GMT+0100 (Hora est\u00e1ndar romance)_3\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">December 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the publication of the month December, the website committee selected an article that is a bit unusual in this series, but it relates to a very important landmark of the dementia movement: Global action plan on the public health response to dementia 2017\u20132025. The World Health Organization (WHO) has adopted a Global Action Plan on Dementia in May 2017 and it is now published in a more accessible document, see here.<\/p>\n<p><a href=\"http:\/\/apps.who.int\/iris\/bitstream\/10665\/259615\/1\/9789241513487-eng.pdf?ua=1\">http:\/\/apps.who.int\/iris\/bitstream\/10665\/259615\/1\/9789241513487-eng.pdf?ua=1<\/a><\/p>\n<p>The plan includes actions for member states (all 194 countries that are member of WHO), WHO secretariat and regional and national offices as well as other stakeholders like Alzheimer associations and academic institutes. A key role for WHO is the Global Dementia Observatory that was launched this month and should serve as a data resource on prevalence, incidence and mortality on dementia and information about national plans and policies.<\/p>\n<p>Many people have campaigned for dementia to become a global health priority. This WHO plan and Observatory are the result of that advocacy efforts. Interdem can contribute by promoting psycho-social research for dementia and support the work of WHO.<\/p>\n<p>Reference: Global action plan on the public health response to dementia 2017\u20132025. Geneva: World Health Organization; 2017. Licence: CC BY-NC-SA 3.0 IGO.<\/p>\n<p>The press release: <a href=\"http:\/\/www.who.int\/mediacentre\/news\/releases\/2017\/dementia-triple-affected\/en\/\">http:\/\/www.who.int\/mediacentre\/news\/releases\/2017\/dementia-triple-affected\/en\/<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Dec 15 2017 10:01:41 GMT+0100 (Hora est\u00e1ndar romance)_5\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">November 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/27831482\">A Social Model of Loneliness: The Roles of Disability, Social Resources, and Cognitive Impairment.<\/a><\/p>\n<p>Burholt V,\u00a0<strong>Windle G<\/strong>, Morgan DJ; CFAS Wales team.<\/p>\n<p>Gerontologist. 2017 Nov 10;57(6):1020-1030. doi: 10.1093\/geront\/gnw125.<\/p>\n<p>Published in The Gerontologist, this article draws on cognitive discrepancy theory to hypothesise a pathway from disability to loneliness in later life, whilst taking into account the mediating and moderating effects of the social environment and cognitive impairment. A model is drawn up based on cross-sectional data from a sample of 3,314 participants living in Wales. Whilst focusing on older individuals in general, this paper still holds important implications for dementia. E.g., cognitive impairment ws shown to have a greater effect on social resources than disability. The authors end by mentioning several strategies to alleviate loneliness and highlight the importance of dementia friendly communities in this context.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Dec 15 2017 10:01:29 GMT+0100 (Hora est\u00e1ndar romance)_5\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">October 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Pini et al (2017) has been selected as paper of the month for October.<\/p>\n<p>An open access paper published in October 2017 in The Gerontologist, this paper uses an innovative methodological approach to understand the impact of caring through a needs led framework. Needs are identified and the plausibility of these needs are compared with other needs led theories. The paper highlights the importance of looking beyond the individual and considering relationships in dementia strategies.<\/p>\n<p>See: Pini, S., Ingleson, E., Megson, M., Clare, L., Wright, P. and Oyebode, J.R., 2017. A needs-led framework for understanding the impact of caring for a family member with dementia.\u00a0<em>The Gerontologist.<\/em>\u00a0https:\/\/doi.org\/10.1093\/geront\/gnx148<\/p>\n<p><strong>ABSTRACT<\/strong><\/p>\n<p><strong>Background and Objectives<\/strong><\/p>\n<p>Approximately half the care for people with dementia is provided by families. It is therefore imperative that research informs ways of maintaining such care. In this study, we propose that a needs-led approach can provide a useful, novel means of conceptualizing the impact of caring on the lives of family carers. Our aim was to develop and present a needs-led framework for understanding how providing care impacts on carers\u2019 fulfilment of needs.<\/p>\n<p><strong>Design and Methods<\/strong><\/p>\n<p>In this qualitative study, we conducted 42 semistructured interviews with a purposively diverse sample of family carers to generate nuanced contextualized accounts of how caring impacted on carers\u2019 lives. Our inductive thematic analysis focused upon asking: \u201cWhat need is being impacted here?\u201d in order to generate a needs-led framework for understanding.<\/p>\n<p><strong>Results<\/strong><\/p>\n<p>Nine themes were widely endorsed. Each completed the sentence: \u201cBeing a carer impacts on fulfilling my need to\/for\u2026.\u201d: Freedom; feel close to my relative; feel in control of my life; be my own person; protect my relative; share\/express my thoughts and feelings; take care of myself; feel connected to the people around me; get things done.<\/p>\n<p><strong>Discussion and Implications<\/strong><\/p>\n<p>These needs echo those from other research areas, with relational needs emerging as particularly central. The needs-led approach offers a perspective that is able to capture both stresses and positive aspects of caregiving. We recommend that clinical interviewing using Socratic questioning to discover human needs that are being impacted by caring would provide a valuable starting point for care planning.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Dec 15 2017 10:01:19 GMT+0100 (Hora est\u00e1ndar romance)_8\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">September 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the paper of Mausbach et al. as publication of the month September. This study links a psychosocial intervention for caregivers of people with Alzheimer\u2019s Disease (adaptive coping by engaging in pleasant activities) to a medical outcome: blood pressure. The 126 participants were followed for five years. Greater engagement in pleasant leisure activities was associated with lowered caregivers\u2019 blood pressure over time. Participation in pleasant leisure activities may have cardiovascular health benefits for Alzheimer\u2019s caregivers.<\/p>\n<p>Reference: Mausbach BT, et al. Engagement in Pleasant Leisure Activities and Blood Pressure: A 5-Year Longitudinal Study in Alzheimer Caregivers. Psychosom Med. 2017 Sep;79(7):735-741. PMID: 28640179[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Fri Dec 15 2017 10:01:05 GMT+0100 (Hora est\u00e1ndar romance)_10\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">August 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]For the month August, the website committee selected the report of Moniz-Cook et al., 2017 in which several INTERDEM colleagues collaborated.<\/p>\n<p>The report refers to a\u00a0 comprehensive study regarding challenging behaviors in dementia and in care homes. It reports a conceptual overview, two systematic reviews, review of clinical guidelines, the development of an intervention, its evaluation in a cluster randomized trial with process evaluation of implementation and an observational cohort study of people with challenging behavior. Even though the trial did not show effectiveness on challenging behavior, its comprehensiveness summarizes the current state of art and gives important details and suggestions for future work.<\/p>\n<p>Reference: Moniz-Cook E, Hart C, Woods B, Whitaker C, James I, Russell I, et al. Challenge Demcare: management of challenging behaviour in dementia at home and in care homes \u2013 development, evaluation and implementation of an online individualised intervention for care homes; and a cohort \u00a0study of specialist community mental health care for families. Programme Grants Appl Res 2017; 5 (15).<\/p>\n<p>It is available online here:<\/p>\n<p><u><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmedhealth\/PMH0096891\/pdf\/PubMedHealth_PMH0096891.pdf\">https:\/\/www.ncbi.nlm.nih.gov\/pubmedhealth\/PMH0096891\/pdf\/PubMedHealth_PMH0096891.pdf<\/a><\/u>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Sep 19 2017 09:57:27 GMT+0200 (Hora de verano romance)_3\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">July 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Thyrian et al., 2017 was selected as publication of the month July. This paper, published in a high impact journal, describes a large randomized clinical trial (634 people with dementia) on the safety and effectiveness of dementia care management compared to care as usual. It shows that dementia care management is a safe intervention that significantly reduces neuropsychiatric symptoms and caregiver burden. Furthermore it increased the use of antidementia drugs compared with care as usual. The authors argue that dementia care management should be incorporated in routine care.<\/p>\n<p>See for further reading: http:\/\/jamanetwork.com\/journals\/jamapsychiatry\/article-abstract\/2645498<a href=\"http:\/\/jamanetwork.com\/journals\/jamapsychiatry\/article-abstract\/2645498\">http:\/\/jamanetwork.com\/journals\/jamapsychiatry\/article-abstract\/2645498<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Sep 07 2017 12:34:52 GMT+0200 (Hora de verano romance)_1\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">June 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Van der Roest et al. 2017 has been selected as paper of the month June.<br \/>\nThis paper is a review on electronic assistive technology (AT) devices designed to support people with dementia. Aim of the review was to assess the efficacy of AT for memory support in people with dementia in terms of daily performance of personal and instrumental activities of daily living (ADL), level of dependency, and admission to long-term care. The results showed a lack of high-quality evidence to determine whether AT is effective in supporting people with dementia to manage their memory problems.<br \/>\n<a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/28602027\" target=\"_blank\" rel=\"noopener\">Cochrane Database Syst Rev<\/a>. 2017 Jun 11;6:CD009627. doi: 10.1002\/14651858.CD009627.pub2.<br \/>\n<strong>Assistive technology for memory support in dementia<\/strong>.<br \/>\nVan der Roest HG1, Wenborn J, Pastink C, Dr\u00f6es RM, Orrell M.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue May 23 2017 13:24:09 GMT+0200 (Hora de verano romance)_10\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">April 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Sampson et al. 2017, has been selected as publication of the month.<\/p>\n<p><strong><em><a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/27998325\">Improving the care of people with dementia in general hospitals: evaluation of a whole-system train-the-trainer model.<\/a>\u00a0<\/em><\/strong><em>Sampson EL, Vickerstaff V, Lietz S, Orrell M.\u00a0Int Psychogeriatr. 2017 Apr;29(4):605-614. doi: 10.1017\/S1041610216002222. Epub 2016 Dec 21.<\/em><\/p>\n<p>This article describes a \u201ctrain-the-trainer\u201d model which was implemented across eight acute hospital trusts in London in response to concerns about the quality of care that people with dementia receive during hospital admission. 2,020 hospital staff professionals were trained and the impact of training was evaluated using mixed methods.\u00a0There was a significant improvement in staffs\u2019 sense of competence in dementia care and the quality of interactions with patients. More hospitals adopted person-centered tools and pathways. Staff training can be considered an\u00a0important\u00a0step towards\u00a0improving hospital outcomes for people with dementia.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Apr 17 2017 14:43:18 GMT+0200 (Hora de verano romance)_0\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">March 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Wilson et al. 2017, has been selected as publication of the month. The paper describes their systematic review on psychosocial interventions targeted at reducing grief symptoms among family caregivers of people with dementia. It shows how important it is to implement psychosocial interventions for caregivers when the person with dementia is still alive in order to prevent caregivers&#8217; complicated grief. In fact, it seems that a combination of cognitive skills training and behavioral oriented interventions to improve the well-being of the carer and care recipient is effective in supporting the family caregivers once the person with dementia has passed away.<\/p>\n<p><strong><em>JBI Database System Rev Implement Rep. 2017 Mar;15(3):809-839. doi: 10.11124\/JBISRIR-2016-003017.<\/em><\/strong><br \/>\n<strong><em> Effectiveness of psychosocial interventions in reducing grief experienced by family carers of people with dementia: a systematic review. Wilson S, Toye C, Aoun S, Slatyer S, Moyle W, Beattie E.<\/em><\/strong><\/p>\n<p><em><strong>Abstract<\/strong><\/em><br \/>\n<em>OBJECTIVE<\/em>:<br \/>\nTo synthesize the existing evidence regarding the impact of psychosocial interventions to assist adjustment to grief, pre- and post-bereavement, for family carers of people with dementia.<br \/>\n<em>INCLUSION CRITERIA TYPES OF PARTICIPANTS<\/em>:<br \/>\nFamily carers of older persons with dementia (&gt;65 years).<br \/>\n<em>TYPES OF INTERVENTIONS<\/em>:<br \/>\nPsychosocial interventions in health and social care facilities, and community settings designed to assist family carers adjust to grief during the dementia trajectory and\/or following death.<br \/>\n<em>COMPARISONS<\/em>:<br \/>\nNo treatment, standard care or treatment as usual, or an alternative intervention.<br \/>\n<em>TYPES OF STUDIES<\/em>:<br \/>\nExperimental and epidemiological study designs.<br \/>\n<em>OUTCOMES<\/em>:<br \/>\nGrief in family carers including anticipatory, complicated and prolonged grief disorder measured with validated instruments.<br \/>\n<em>SEARCH STRATEGY<\/em>:<br \/>\nA three-step strategy sought to identify both published and unpublished studies from 1995.<br \/>\n<em>METHODOLOGICAL QUALITY<\/em>:<br \/>\nAssessed by two independent reviewers using standardized critical appraisal tools from the Joanna Briggs Institute Meta Analysis of Statistics Assessment and Review Instrument (JBI-MAStARI).<br \/>\n<em>DATA EXTRACTION<\/em>:<br \/>\nThe standardized data extraction tool from JBI-MAStARI was used by two reviewers independently.<br \/>\n<em>DATA SYNTHESIS<\/em>:<br \/>\nStatistical pooling of results was not possible due to the heterogeneity of the interventions and the outcome measures.<br \/>\n<em>RESULTS<\/em>:<br \/>\nData were extracted from three studies. Study designs were a randomized controlled trial; a pre-test, multiple post-test quasi-experimental; and a single group, repeated measures. The interventions were multi-component, had durations of nine to 26 weeks and were delivered while care recipients were alive. All studies were undertaken in the United States. There were 327 family carers, of which 197 received a psychosocial intervention. Family carers were predominantly female (84.7%), Caucasian (73.4%) and caring for their spouse (44.3%). All care recipients had dementia; 68.5% had Alzheimer&#8217;s disease. Two studies measured anticipatory grief, and the third study reported normal and complicated grief.Moderate benefits to anticipatory grief were evident upon completion of the &#8220;Easing the Way&#8221; intervention (effect size -0.43, P = 0.03). After controlling for research design and control variables, for every hour increase in the interventions focusing on family carers&#8217; cognitive skills, there were associated decreases in carers&#8217; normal grief (parameter estimate [PE] = -0.81, P = 0.02) and complicated grief (PE = -0.87, P = 0.03). For every hour increase in the interventions focusing on carer behavior, there was an associated decrease in carers&#8217; complicated grief (PE = -1.32, P = 0.04). For every hour increase in the interventions focusing on care recipient behavior, there was an associated decrease in carers&#8217; complicated grief (PE = -2.91, P = 0.04).<br \/>\n<em>CONCLUSION<\/em>:<br \/>\nThere is little evidence upon which to base practice with regard to interventions to reduce any aspects of grief. Findings suggest that different pre-death interventions might be warranted depending upon a family carer&#8217;s unique clinical presentation and combination of risk factors.Cognitive skills training provided while the care recipient is alive may positively impact normal and complicated grief following the death of the care recipient. When the cognitive skills training is provided in conjunction with behaviorally oriented interventions that improve the wellbeing of the carer and care recipient, carers&#8217; complicated grief symptoms may be reduced.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Mar 28 2017 10:11:16 GMT+0200 (Hora de verano romance)_8\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">February 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Toot et al. 2017, has been selected as publication of the month. The paper describes their systematic review on causes of nursing home admission of people with dementia. They focus on factors that are responsive to interventions, such as cognitive functioning, behavior and psychological problems, carer related issues, environmental factors, functional status and physical health. Based on their results especially cognitive enhancement strategies, assessment and management of behavior and psychological challenges, and carer education and support are recommended to delay nursing home placement.<br \/>\nSee: Toot S, Swinson T, Devine M, Challis D, Orrell M. <em>Causes of nursing home\u00a0placement for older people with dementia: a systematic review and meta-analysis<\/em>. Int Psychogeriatr. 2017 Feb;29(2):195-208. doi: 10.1017\/S1041610216001654. PubMed<\/p>\n<p><strong>ABSTRACT<\/strong><br \/>\n<strong>Background<\/strong>:<br \/>\nUp to half of people with dementia in high income countries live in nursing homes and more than two-thirds of care home residents have dementia. Fewer than half of these residents report good quality of life and most older people are anxious about the prospect of moving into a nursing home. Robust evidence is needed as to the causes of admission to nursing homes, particularly where these risk factors are modifiable.<br \/>\n<strong>Methods<\/strong>:<br \/>\nWe conducted a systematic literature search to identify controlled comparison studies in which the primary outcome was admission to nursing home of older adults with dementia. Identified studies were assessed for validity and 26 (17 cohort and 9 case-control) were included. Qualitative and quantitative analyses were conducted, including meta-analysis of 15 studies.<br \/>\n<strong>Results<\/strong>:<br \/>\nPoorer cognition and behavioral and psychological symptoms of dementia (BPSD) were consistently associated with an increased risk of nursing home admission and most of our meta-analyses demonstrated impairments in activities of daily living as a significant risk. The effects of community support services were unclear, with both high and low levels of service use leading to nursing home placement. There was an association between caregiver burden and risk of institutionalization, but findings with regard to caregiver depression varied, as did physical health associations, with some studies showing an increased risk of nursing home placement following hip fracture, reduced mobility, and multiple comorbidities.<br \/>\n<strong>Conclusion<\/strong>:<br \/>\nWe recommend focusing on cognitive enhancement strategies, assessment and management of BPSD, and carer education and support to delay nursing home placement.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Tue Mar 14 2017 11:04:27 GMT+0100 (Hora est\u00e1ndar romance)_0\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">January 2017<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/27633160\">A synthesis of the evidence on peer research with potentially vulnerable adults: how this relates to dementia.\u00a0<\/a>Di Lorito C, Birt L, Poland F, Csipke E, Gove D, Diaz-Ponce A, Orrell M. Int J Geriatr Psychiatry. 2017 Jan;32(1):58-67. doi: 10.1002\/gps.4577. Review.<\/p>\n<p>Peer research, co-research, or participatory research, is an innovative form of PPI where people living with dementia undertake research activities such as data collection alongside academics. Co-research with this group of service users has been attracting scientific interest, yet it appears that due to stigmatising preconceptions, studies are still scarce. This review draws on participatory research with different populations (also included mental health, learning disabilities and geriatric populations) in order to develop a model of good practice. The EWGPWD was consulted during the review process in order to create an overview of potential benefits as well as challenges of peer research, and pragmatic considerations to be addressed. Although there is a need for more high-quality data, this paper challenges traditional views on the role of people with dementia in research, and provides a nuanced view not only the practical but also the ethical implications of this research method.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Feb 01 2017 09:15:04 GMT+0100 (Hora est\u00e1ndar romance)_6\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">December 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]<em>Claudia Cooper, Rebecca Lodwick, Kate Walters, Rosalind Raine, Jill Manthorpe, Steve Iliffe, Irene Petersen; Inequalities in receipt of mental and physical healthcare in people with dementia in the UK. Age Ageing 2016 1-8. doi: 10.1093\/ageing\/afw208<\/em> is the article of the month (<a href=\"https:\/\/academic.oup.com\/ageing\/article-lookup\/doi\/10.1093\/ageing\/afw208\">READ<\/a>)<\/p>\n<p>Fair access to mental an physical healthcare is of great important to people with dementia, as they have high rates of physical ill health and neuropsychiatric symptoms. This study investigated whether there are inequalities by deprivation or gender in healthcare received by people with dementia and compared health care received by people with and without dementia. It studied primary care records of 68,061 community dwelling dementia patients and 259,337 people without dementia. \u00a0Compared with the control population, people with dementia had fewer primary care consultations and were less likely to have weight and blood pressure monitored annually, despite the association of dementia with vascular risk factors, frailty and malnutrition. Furthermore, women with dementia were more likely to receive psychotropic medications than men, which may negatively impact their physical health.\u00a0Interventions to improve access to \u00a0healthcare and reduce psychotropic use in people with dementia, especially women, could benefit people with dementia, their families and society by enabling them to live well with dementia for longer.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Dec 07 2016 11:57:02 GMT+0100 (Hora est\u00e1ndar romance)_9\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">November 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The paper of Dr\u00f6es et al., has been selected as publication of the month. The paper discusses the concept of social health, which acknowledges the people with dementia&#8217;s remaining capacities to fulfil potentials and obligations, to manage life and to participate in social activities. Furthermore, effective interventions in these domains are described as well as recommendations for research and practice.<br \/>\n<a href=\"https:\/\/www.ncbi.nlm.nih.gov\/pubmed\/27869503\" target=\"_blank\" rel=\"noopener\">Social health and dementia: a European consensus on the operationalization of the concept and directions for research and practice.<\/a><br \/>\nDr\u00f6es RM, Chattat R, Diaz A, Gove D, Graff M, Murphy K, Verbeek H, Vernooij-Dassen M, Clare L, Johannessen A, Roes M, Verhey F, Charras K, The Interdem Social Health Taskforce.<br \/>\nAging Ment Health. 2016 Nov 21:1-14. [Epub ahead of print][\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Nov 24 2016 10:58:08 GMT+0100 (Hora est\u00e1ndar romance)_1\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">October 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of <strong>Zeisel et al.<\/strong> as publication of the month. This article introduces the terminology \u201cEcopsychosocial interventions\u201d to describe a broad range of interventions that fall into this category. It can replace the term that is now often used and that describes what it is not, namely nonpharmacological interventions. The authors urge and welcome the professional community\u2019s adoption of the new recommended terminology as well as ongoing debate about it and study of topics included in the overall term, especially contextual issues and environmental design.<\/p>\n<p><em>Zeisel J, Reisberg B, Whitehouse P, Woods R, Verheul A. Ecopsychosocial Interventions in Cognitive Decline and Dementia: A New Terminology and a New Paradigm. Am J Alzheimers Dis Other Demen. 2016 Sep;31(6):502-7. doi: 10.1177\/1533317516650806.<\/em><\/p>\n<p><strong>ABSTRACT<\/strong><\/p>\n<p>Dementia is a major medical and social scourge. Neither pharmacological nor nonpharmacological interventions and treatments have received sufficient funding to be meaningful in combatting this tsunami. Because the term-&#8220;nonpharmacological&#8221;-refers to what these interventions are not, rather than what they are, nonpharmacological treatments face a special set of challenges to be recognized, accepted, funded, and implemented. In some ways, the current situation is analogous to using the term &#8220;nonhate&#8221; to mean &#8220;love.&#8221; This article presents a carefully reasoned argument for using the terminology &#8220;ecopsychosocial&#8221; to describe the full range of approaches and interventions that fall into this category. These include interventions such as educational efforts with care partners, social support programs for individuals with various levels of dementia, efforts to improve community awareness of dementia, an intergenerational school where persons with dementia teach young children, and the design of residential and community settings that improve functioning and can reduce behavioral symptoms of dementia. The proposed terminology relates to the nature of the interventions themselves, rather than their outcomes, and reflects the broadest range of interventions possible under the present rubric-nonpharmacological. The goal of this new label is to be better able to compare interventions and their outcomes and to be able to see the connections between data sets presently not seen as fitting together, thereby encouraging greater focus on developing new ecopsychosocial interventions and approaches that can improve the lives of those with dementia, their care partners, and the broader society.<\/p>\n<p><a href=\"http:\/\/interdem.org\/?page_id=5042\">Download Article\u00a0&#8211; Members area<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Thu Nov 24 2016 10:55:19 GMT+0100 (Hora est\u00e1ndar romance)_8\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">September 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of <em><strong>Stevnsborg L et al.<\/strong><\/em> as publication of the month. This study addresses the issue of inequalities of access to treatment and care for immigrants with dementia. A large nationwide register-based study was conducted in the elderly population with dementia in Denmark in 2012 (n\u200a=\u200a34,877). Indeed some worrisome differences in access were found and further research on barriers to access to suitable healthcare is needed.<\/p>\n<p>See: <em>Stevnsborg L, Jensen-Dahm C, Nielsen TR, Gasse C, Waldemar G. Inequalities in Access to Treatment and Care for Patients with Dementia and Immigrant Background: A Danish Nationwide Study. J Alzheimers Dis. 2016 Sep 6;54(2):505-14. doi: 10.3233\/JAD-160124. PubMed PMID: 27567820.<\/em><\/p>\n<p><strong>ABSTRACT<\/strong><\/p>\n<p><em><strong>Background<\/strong><\/em>:\u00a0Previous studies demonstrated lower quality diagnostic assessment of dementia in immigrant populations, but knowledge about the quality of treatment and care for dementia is still lacking.<\/p>\n<p><em><strong>Objective<\/strong><\/em>:\u00a0To conduct a nationwide registry-based study to determine whether inequality exists regarding access to anti-dementia treatment and care between immigrant and Danish-born patients with dementia.<\/p>\n<p><em><strong>Methods<\/strong><\/em>:\u00a0A cross-sectional register-based study was conducted in the entire elderly (60\u2265years) population with dementia in Denmark in 2012 (n\u200a=\u200a34,877). The use of anti-dementia drugs and residency in a nursing home were compared among Danish-born and Western and non-Western immigrants with dementia. Logistic regression analysis was done with adjustment for age, sex, comorbidity, marital status, basis of inclusion, and time since dementia diagnosis.<\/p>\n<p><strong><em>Results<\/em><\/strong>:\u00a0Immigrant background was associated with a significantly lower likelihood of receiving anti-dementia drug therapy (odds ratio (OR) [95% confidence interval (CI)]): non-Western\u200a=\u200a0.70 [0.56-0.87]; Western\u200a=\u200a0.74 [0.63-0.87]). No significant differences were found in type or amount of anti-dementia medication dispensed between the population groups (proxy measure for adherence). Non-Western immigrants were significantly less likely to live in a nursing home (0.52 [0.41-0.65]).<\/p>\n<p><em><strong>Conclusion<\/strong><\/em>:\u00a0This nationwide registry-based study indicated a worrisome difference in access to anti-dementia treatment and care for dementia patients with an immigrant background, but similar levels of adherence compared with the Danish-born population. Further research is necessary to pinpoint barriers to access to suitable healthcare among elderly immigrants with dementia but also to identify and develop culturally sensitive methods for their treatment and care.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Oct 10 2016 13:40:19 GMT+0200 (Hora de verano romance)_10\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">July - August 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of <strong><em>Nelleke van \u2018t Leven et al.<\/em><\/strong> as publication of the month. This study addresses the important topic of how interventions can deliver a person-centred approach. It examined how three specific multiple-component, activating dyadic interventions fitted needs, characteristics, and preferences of both the people with dementia and their informal caregivers. These interventions included the Pleasant Events Program, the Exercise and Support Intervention for People with Dementia and Their Caregivers, and Occupational Therapy. Results showed that five factors influenced the dyad&#8217;s &#8216;fit&#8217; for these interventions: timing, need for activity, lifestyle, apart-or-together and meaning of (lost) activity.<\/p>\n<p>See: Van&#8217;t Leven N, de Lange J, Prick AE, Pot AM . How do activating interventions fit the personal needs, characteristics and preferences of people with dementia living in the community and their informal caregivers? Dementia (London). 2016 Aug 10. pii: 1471301216662378. [Epub ahead of print][\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Oct 10 2016 13:40:16 GMT+0200 (Hora de verano romance)_8\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">June 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The publication of the month June, selected by the website committee, is Sobol et al. In this article results of a large RCT are described in which supervised aerobic exercises were compared to care as usual in community-dwelling persons with mild Alzheimer&#8217;s disease.\u00a0 Positive effects were shown on\u00a0 fitness, exercise self-efficacy, single-task physical performance and dual-task performance.<\/p>\n<p>See: Sobol NA, Hoffmann K, Frederiksen KS, Vogel A, Vestergaard K, Br\u00e6ndgaard H,\u00a0Gottrup H, Lolk A, Wermuth L, Jakobsen S, Laugesen L, Gergelyffy R, H\u00f8gh P,\u00a0Bjerregaard E, Siersma V, Andersen BB, Johannsen P, Waldemar G, Hasselbalch SG,\u00a0Beyer N. Effect of aerobic exercise on physical performance in patients with\u00a0Alzheimer&#8217;s disease. Alzheimers Dement. 2016 Jun 23. pii: S1552-5260(15)30002-9.\u00a0doi: 10.1016\/j.jalz.2016.05.004. [Epub ahead of print] PubMed PMID: 27344641.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Jun 01 2016 12:40:51 GMT+0200 (Hora de verano romance)_6\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">May 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of Wiskerke et al. as publication of the month. The paper discusses a rather new theme: how to deal with new relationships or sexual intimacy of persons with dementia whilst still married to another person? Results of qualitative interviews with relatives and staff are discussed.<br \/>\nSee: Wiskerke E, Manthorpe J. New relationships and intimacy in long-term care:\u00a0The views of relatives of residents with dementia and care home staff. Dementia\u00a0(London). 2016 May 6. pii: 1471301216647814. [Epub ahead of print] PubMed PMID:<br \/>\n27154963.[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Jun 01 2016 12:40:51 GMT+0200 (Hora de verano romance)_6\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">April 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]This time the website committee selected the publication of Laakkonen et al, as publication of the month April. This is a well-designed study about effects of self-management groups for informal caregivers and for persons with dementia. It addresses the important topic of promoting empowerment and problem solving skills in dementia.<\/p>\n<p>See: Laakkonen ML, Kautiainen H, H\u00f6ltt\u00e4 E, Savikko N, Tilvis RS, Strandberg TE, Pitk\u00e4l\u00e4 KH. Effects of Self-Management Groups for People with Dementia and Their Spouses-Randomized Controlled Trial. J Am Geriatr Soc. 2016 Apr;64(4):752-60.<\/p>\n<p>doi: 10.1111\/jgs.14055. Epub 2016 Apr 5. PubMed PMID: 27060101<\/p>\n<p><a href=\"http:\/\/www.ncbi.nlm.nih.gov\/pubmed\/27060101\" target=\"_blank\" rel=\"noopener\">READ MORE<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Apr 18 2016 09:17:24 GMT+0200 (Hora de verano romance)_9\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">March 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of Lawrence V. et al. as publication of the month. A large qualitative study was conducted with focus group discussion in sixteen care homes. It stresses relevant factors to consider when trying to implement psychosocial interventions in care homes.<\/p>\n<p>See: Lawrence V, Fossey J, Ballard C, Ferreira N, Murray J. Helping staff to\u00a0implement psychosocial interventions in care homes: augmenting existing practices\u00a0and meeting needs for support. Int J Geriatr Psychiatry. 2016 Mar;31(3):284-93.<\/p>\n<p>doi: 10.1002\/gps.4322. Epub 2015 Jul 20. PubMed PMID: 26192078<\/p>\n<p>You can find it <a href=\"http:\/\/onlinelibrary.wiley.com\/doi\/10.1002\/gps.4322\/abstract;jsessionid=E7F7F7221FA55248B14AB299DFD8CDD0.f04t02?systemMessage=Subscribe+and+renew+is+currently+unavailable+online.+Please+contact+customer+care+to+place+an+order%3A++http%3A%2F%2Folabout.wiley.com%2FWileyCDA%2FSection%2Fid-397203.html++.Apologies+for+the+inconvenience.&amp;userIsAuthenticated=false&amp;deniedAccessCustomisedMessage=\" target=\"_blank\" rel=\"noopener\">HERE<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Wed Mar 02 2016 10:44:27 GMT+0100 (Hora est\u00e1ndar romance)_6\" class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">February 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of Alieske Dam et al. as publication of the month. A thorough systematic review was performed on a relevant topic: social support interventions to improve well-being in caregivers. Multi-component interventions were most effective on caregiver social support and well-being.<br \/>\nSee: Dam AE, de Vugt ME, Klinkenberg IP, Verhey FR, van Boxtel MP. A systematic review of social support interventions for caregivers of people with dementia: Are they doing what they promise? Maturitas. 2016 Mar; 85: 117-30. doi:<br \/>\n10.1016\/j.maturitas.2015.12.008. Epub 2016 Jan 4.<\/p>\n<p>You can find it at: <a href=\"http:\/\/www.maturitas.org\/article\/S0378-5122(15)30092-X\/abstract\">http:\/\/www.maturitas.org\/article\/S0378-5122(15)30092-X\/abstract<\/a>[\/vc_column_text]<\/div><\/div><div id=\"sc_toogles_item_Mon Jan 25 2016 09:55:47 GMT+0100 (Hora est\u00e1ndar romance)_10\" class=\"sc_toggles_item odd\"><h4 class=\"sc_toggles_title\">January 2016<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the article of Clive Ballard et al. as publication of the month.<br \/>\nThis high-impact article describes results of a cluster-randomized factorial controlled trial in 16 U.K nursing homes showing that worsening of neuropsychiatric symptomatology after reduction of antipsychotic medication use in long-term care settings can be mitigated by concomitant delivery of an nonpharmacological intervention aimed at improving resident interactions.<\/p>\n<p>See: <strong>Ballard C, Orrell M, YongZhong S, Moniz-Cook E, Stafford J, Whittaker R, Woods B, Corbett A, Garrod L, Khan Z, Woodward-Carlton B, Wenborn J, Fossey J. Impact of Antipsychotic Review and Nonpharmacological Intervention on Antipsychotic Use, Neuropsychiatric Symptoms, and Mortality in People With Dementia Living in Nursing Homes: A Factorial Cluster-Randomized Controlled Trial by the Well-Being and Health for People With Dementia (WHELD) Program. Am J Psychiatry. 2015 Nov 20:appiajp201515010130. [Epub ahead of print] PubMed PMID: 2658540<\/strong><\/p>\n<p><a href=\"http:\/\/ajp.psychiatryonline.org\/doi\/abs\/10.1176\/appi.ajp.2015.15010130?url_ver=Z39.88-2003&amp;rfr_id=ori%3Arid%3Acrossref.org&amp;rfr_dat=cr_pub%3Dpubmed\" target=\"_blank\" rel=\"noopener\">Link to article<\/a>[\/vc_column_text]<\/div><\/div><div class=\"sc_toggles_item even\"><h4 class=\"sc_toggles_title\">November 2015<\/h4><div class=\"sc_toggles_content\">[vc_column_text]The website committee selected the publication of Alexandra K\u00f6nig et al. as publication of the month. The article describes an innovative way of assessing autonomy in persons with dementia by using a video event monitoring system. It was tested among 49 participants and results show that this technology may improve autonomy assessment in an unbiased way.<br \/>\nSee: K\u00f6nig A, Sacco G, Bensadoun G, Bremond F, David R, Verhey F, Aalten P, Robert P, Manera V. Ecological Assessment of Autonomy in Instrumental Activities of Daily Living in Dementia Patients by the Means of an Automatic Video Monitoring System. Front Aging Neurosci. 2015 Jun 9;7:110.<\/p>\n<h3><a href=\"http:\/\/journal.frontiersin.org\/article\/10.3389\/fnagi.2015.00098\/abstract\" target=\"_blank\" rel=\"noopener\">ACCESS<\/a><\/h3> [\/vc_column_text]<\/div><\/div><\/div><\/div><\/div><\/div><\/div><\/div>[\/vc_column][\/vc_row] ","protected":false},"excerpt":{"rendered":" [vc_row][vc_column][\/vc_column][\/vc_row] ","protected":false},"author":1,"featured_media":0,"parent":0,"menu_order":0,"comment_status":"open","ping_status":"open","template":"","meta":{"footnotes":""},"_links":{"self":[{"href":"https:\/\/interdem.org\/index.php?rest_route=\/wp\/v2\/pages\/5431"}],"collection":[{"href":"https:\/\/interdem.org\/index.php?rest_route=\/wp\/v2\/pages"}],"about":[{"href":"https:\/\/interdem.org\/index.php?rest_route=\/wp\/v2\/types\/page"}],"author":[{"embeddable":true,"href":"https:\/\/interdem.org\/index.php?rest_route=\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/interdem.org\/index.php?rest_route=%2Fwp%2Fv2%2Fcomments&post=5431"}],"version-history":[{"count":191,"href":"https:\/\/interdem.org\/index.php?rest_route=\/wp\/v2\/pages\/5431\/revisions"}],"predecessor-version":[{"id":9519,"href":"https:\/\/interdem.org\/index.php?rest_route=\/wp\/v2\/pages\/5431\/revisions\/9519"}],"wp:attachment":[{"href":"https:\/\/interdem.org\/index.php?rest_route=%2Fwp%2Fv2%2Fmedia&parent=5431"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}