Article of month April

For the publication of the month April 2018, the website committee selected the article published by

Dianne Gove, Ana Diaz-Ponce, Jean Georges, Esme Moniz-Cook, Gail Mountain, Rabih Chattat, Laila Øksnebjerg & The European Working Group of People with Dementia (2017) Alzheimer Europe’s position on involving people with dementia in research through PPI (patient and public involvement), Aging & Mental Health, 22:6, 723-729, DOI: 10.1080/13607863.2017.1317334

Patient and public involvement (PPI) in research has been recognized as important and meaningful. This does not only refer to involvement as study participants, but also to support in generating ideas for research, advising researchers and doing research activities. Alzheimer Europe drafted this position paper, together with members of INTERDEM and the European Working Group of People with Dementia. It has been formally adopted by the Board of Alzheimer Europe and endorsed by the Board of INTERDEM and by the JPND working group ‘Dementia Outcome Measures – Charting New Territory’.

The paper describes several topics of PPI that may help in making PPI really meaningful and enhancing the research process instead of merely being used as ‘box thicking’.